OBJECTIVE: To measure the co-morbidities associated with Down syndrome compared with those in other children with special health care needs (CSHCN). Additionally, to examine reported access to care, family impact, and unmet needs for children with Down syndrome compared with other CSHCN. STUDY DESIGN: An analysis was conducted on the nationally representative 2005 to 2006 National Survey of Children with Special Health Care Needs. Bivariate analyses compared children with Down syndrome with all other CSHCN. Multivariate analyses examined the role of demographic, socioeconomic, and medical factors on measures of care receipt and family impact. RESULTS: An estimated 98,000 CSHCN have Down syndrome nationally. Compared with other CSHCN, children with Down syndrome had a greater number of co-morbid conditions, were more likely to have unmet needs, faced greater family impacts, and were less likely to have access to a medical home. These differences become more pronounced for children without insurance and from low socioeconomic status families. CONCLUSIONS: Children with Down syndrome disproportionately face greater disease burden, more negatively pronounced family impacts, and greater unmet needs than other CSHCN. Promoting medical homes at the practice level and use of those services by children with Down syndrome and other CSHCN may help mitigate these family impacts.
OBJECTIVE: To measure the co-morbidities associated with Down syndrome compared with those in other children with special health care needs (CSHCN). Additionally, to examine reported access to care, family impact, and unmet needs for children with Down syndrome compared with other CSHCN. STUDY DESIGN: An analysis was conducted on the nationally representative 2005 to 2006 National Survey of Children with Special Health Care Needs. Bivariate analyses compared children with Down syndrome with all other CSHCN. Multivariate analyses examined the role of demographic, socioeconomic, and medical factors on measures of care receipt and family impact. RESULTS: An estimated 98,000 CSHCN have Down syndrome nationally. Compared with other CSHCN, children with Down syndrome had a greater number of co-morbid conditions, were more likely to have unmet needs, faced greater family impacts, and were less likely to have access to a medical home. These differences become more pronounced for children without insurance and from low socioeconomic status families. CONCLUSIONS:Children with Down syndrome disproportionately face greater disease burden, more negatively pronounced family impacts, and greater unmet needs than other CSHCN. Promoting medical homes at the practice level and use of those services by children with Down syndrome and other CSHCN may help mitigate these family impacts.
Authors: Lijing Ouyang; Scott D Grosse; Catharine Riley; Julie Bolen; Ellen Bishop; Melissa Raspa; Donald B Bailey Journal: Res Dev Disabil Date: 2014-04-20
Authors: Reem M Ghandour; Ashley H Hirai; Stephen J Blumberg; Bonnie B Strickland; Michael D Kogan Journal: Acad Pediatr Date: 2014 Jan-Feb Impact factor: 3.107
Authors: Taletha Mae Derrington; Milton Kotelchuck; Katrina Plummer; Howard Cabral; Angela E Lin; Candice Belanoff; Mikyong Shin; Adolfo Correa; Scott D Grosse Journal: Res Dev Disabil Date: 2013-07-26
Authors: Jin Liang Zhu; Carsten Obel; Henrik Hasle; Sonja A Rasmussen; Jiong Li; Jørn Olsen Journal: Am J Med Genet A Date: 2013-11-22 Impact factor: 2.802
Authors: Siti Nor Ismalina Isa; Ismarulyusda Ishak; Azriani Ab Rahman; Nur Zakiah Mohd Saat; Normah Che Din; Syarif Husin Lubis; Muhammad Faiz Mohd Ismail; Nur Riza Mohd Suradi Journal: Malays J Med Sci Date: 2021-04-21
Authors: Philip D Knollman; Christine H Heubi; Susan Wiley; David F Smith; Sally R Shott; Stacey L Ishman; Jareen Meinzen-Derr Journal: Otolaryngol Head Neck Surg Date: 2020-09-15 Impact factor: 5.591