| Literature DB >> 32843987 |
Lucas Diebel1, Maryam Jafari2, Sachin Shah3, Christine Day4, Connie McNaught5, Bhanu Prasad6.
Abstract
BACKGROUND: Despite clinical and lifestyle advantages of home hemodialysis (HHD) compared with in-center hemodialysis (ICHD), it remains underutilized in our province. The aim of the study was to explore the patients' perception and to identify the barriers to use of HHD in Saskatchewan, Canada.Entities:
Keywords: barriers; end-stage renal disease; home hemodialysis; in-center hemodialysis; patients
Year: 2020 PMID: 32843987 PMCID: PMC7418229 DOI: 10.1177/2054358120948293
Source DB: PubMed Journal: Can J Kidney Health Dis ISSN: 2054-3581
Figure 1.Study flowchart.
Note. HD = hemodialysis; HHD = home hemodialysis.
Patients’ Characteristics.
| Total, n = 364 | Main dialysis units, n =217 | Satellite dialysis units, n = 147 | Main vs satellite dialysis units | |
|---|---|---|---|---|
| Patients’ characteristics | N (%) | N (%) | N (%) | |
| Living location | ||||
| Town/city | 329/346 (69.1%) | 161/201 (80.1%) | 78/145 (53.8%) | <.001 |
| Aboriginal reserve | 62/346 (17.9%) | 26/201 (12.9%) | 36/145 (24.8%) | |
| Farm | 45/346 (13%) | 14/201 (7%) | 31/145 (21.4%) | |
| Distance of home to in-center hemodialysis (kilometers) | n = 358 | n = 211 | n = 147 | .041 |
| Resident of assisted living facility | 62/364 (17%) | 19/217(8.8%) | 43/147 (29.3%) | <.001 |
| >Grade 12 education | 153/363 (42.1%) | 99/216 (45.8%) | 54/147 (36.7%) | .085 |
| >6months being under care of a nephrologist prior to starting dialysis | 215/362 (59.4%) | 147/216 (68.1%) | 68/146 (46.6%) | <.001 |
Note. IQR = interquartile range.
Figure 2.Patients’ attitude/perspective to home hemodialysis (responses on a 5-point Likert scale).
Patients’ Perceptions and Perceived Barriers to HHD (Awareness/Knowledge, Home Constraints, Satisfaction).
| Total, n = 364 | Main dialysis units, n = 217 | Satellite dialysis units, n = 147 | Main vs satellite dialysis units | |
|---|---|---|---|---|
| Patients’ perceptions and perceived barriers to HHD | N (%) | N (%) | ||
| HHD awareness | ||||
| I am aware of HHD as treatment option | 273/363 (75.2%) | 190/217 (87.6%) | 83/146 (56.8%) | <.001 |
| I attended renal replacement therapy class prior to starting dialysis | 146/330 (44.2%) | 105/199 (52.8%) | 41/131 (31.3%) | <.001 |
| Knowledge; I am not on HHD because: | ||||
| I was never offered HHD by the medical care team | 201/356 (56.5%) | 92/211 (43.6%) | 109/145 (75.2%) | <.001 |
| I do not understand the benefits and risks of HHD | 191/355 (53.8%) | 70/210 (33.3%) | 121/145 (83.4%) | <.001 |
| Home consideration; I am not on HHD because: | ||||
| The water in my area is unsuitable for HHD | 65/350 (18.6%) | 40/207 (19.3%) | 25/142 (17.5%) | .663 |
| I have no additional space at home | 160/353 (45.3%) | 115/209 (55%) | 45/144 (31.2%) | <.001 |
| I would rather not bring medical supplies to my home | 191/353 (54.1%) | 115/209 (55%) | 76/144 (52.8%) | .677 |
| I am not keen on making changes to my home that may be required to do HHD | 151/354 (42.7%) | 121/209 (57.9%) | 30/145 (20.7%) | <.001 |
| I do not feel my home is suitable for HHD | 147/353 (41.6%) | 111/208 (53.4%) | 36/145 (24.8%) | <.001 |
| Satisfaction; I am not on HHD because: | ||||
| I am satisfied with the care I receive at my hemodialysis unit and would not want to change | 325/355 (91.5%) | 184/210 (87.6%) | 141/145 (97.2%) | .001 |
| I feel more comfortable doing dialysis in the presence of medical staff | 316/351 (90%) | 178/206 (86.4%) | 138/145 (95.2%) | .007 |
| I like socializing with other patients/staff at my hemodialysis unit | 306/354 (86.4%) | 181/209 (86.6%) | 125/145 (86.2%) | .915 |
| My landlord would not agree to the home renovations that may be required for HHD | 81/153 (52.9%) | 51/109 (46.8%) | 30/44 (68.2%) | .016 |
Note. For 5-point Likert scale, the count (%) of patient who agreed or strongly agreed is shown. HHD = home hemodialysis.
Patients’ Perceptions and Perceived Barriers to HHD (Family Concerns, Risk/Fears).
| Patients’ perceptions and perceived barriers to HHD | Total, n = 364 | Main dialysis units, n = 217 | Satellite dialysis units, n = 147 | Main vs satellite dialysis units |
|---|---|---|---|---|
| N (%) | N (%) | |||
| Family; I am not on HHD because: | ||||
| I have no support at home | 96/353 (27.2%) | 60/208 (28.8%) | 36/145 (24.8%) | .404 |
| I am worried about family burnout | 157/313 (50.2%) | 67/165 (40.6%) | 90/148 (60.8%) | <.001 |
| My family would be upset with the sight of blood and needles | 76/317 (24%) | 40/172 (23.3%) | 36/145 (24.8%) | .744 |
| I cannot afford the additional increase in my utility bills | 223/364 (64.5%) | 92/204 (45.1%) | 131/142 (92.3%) | <.001 |
| Risk/fear; I am not on HHD because: | ||||
| I have a fear of technology | 47/355 (13.2%) | 37/210 (17.6%) | 10/145 (6.9%) | .003 |
| I would not be able to confidently operate a hemodialysis machine at home | 157/354 (44.4%) | 59/209(28.2%) | 98/145 (67.6%) | <.001 |
| I do not have time for the 2 months of training needed for HHD | 169/355 (47.6%) | 68/210 (32.4%) | 101/145 (69.7%) | <.001 |
| I am fearful of not having doctors and nurses at home | 201/253 (56.9%) | 123/208 (59.1%) | 78/145 (53.8%) | .319 |
| I am scared I would have a major health event at home without supervision | 210/356 (59%) | 133/211 (63%) | 77/145 (53.1%) | .061 |
| I am scared of using needles on myself | 133/349 (38.1%) | 83/204 (40.7%) | 50/145 (34.5%) | .240 |
| HHD is not as good as in-center | 108/356 (30.3%) | 72/211 (34.1%) | 36/145 (24.8%) | .061 |
Note. For 5-point Likert scale questions, the count (%) of patients who agreed or strongly agreed is shown. HHD = home hemodialysis.