Literature DB >> 32760185

A Primary Care Provider's Guide to Accessibility After Spinal Cord Injury.

Joseph Lee1,2, Jithin Varghese1,2, Rose Brooks3, Benjamin J Turpen4.   

Abstract

Individuals with spinal cord injury (SCI) continue to have shorter life expectancies, limited ability to receive basic health care, and unmet care needs when compared to the general population. Primary preventive health care services remain underutilized, contributing to an increased risk of secondary complications. Three broad themes have been identified that limit primary care providers (PCPs) in providing good quality care: physical barriers; attitudes, knowledge, and expertise; and systemic barriers. Making significant physical alterations in every primary care clinic is not realistic, but solutions such as seeking out community partnerships that offer accessibility or transportation and scheduling appointments around an individual's needs can mitigate some access issues. Resources that improve provider and staff disability literacy and communication skills should be emphasized. PCPs should also seek out easily accessible practice tools (SCI-specific toolkit, manuals, modules, quick reference guides, and other educational materials) to address any knowledge gaps. From a systemic perspective, it is important to recognize community SCI resources and develop collaboration between primary, secondary, and tertiary care services that can benefit SCI patients. Providers can address some of these barriers that lead to inequitable health care practices and in turn provide good quality, patient-centered care for such vulnerable groups. This article serves to assist PCPs in identifying the challenges of providing equitable care to SCI individuals.
© 2020 American Spinal Injury Association.

Entities:  

Keywords:  SCI; accessibility; barriers; primary care

Mesh:

Year:  2020        PMID: 32760185      PMCID: PMC7384542          DOI: 10.46292/sci2602-79

Source DB:  PubMed          Journal:  Top Spinal Cord Inj Rehabil        ISSN: 1082-0744


  21 in total

1.  The uniform data system for medical rehabilitation: report of patients with traumatic spinal cord injury discharged from rehabilitation programs in 2002-2010.

Authors:  Carl V Granger; Amol M Karmarkar; James E Graham; Anne Deutsch; Paulette Niewczyk; Margaret A Divita; Kenneth J Ottenbacher
Journal:  Am J Phys Med Rehabil       Date:  2012-04       Impact factor: 2.159

2.  Improving primary care for persons with spinal cord injury: Development of a toolkit to guide care.

Authors:  James Milligan; Joseph Lee; Loretta M Hillier; Karen Slonim; Catharine Craven
Journal:  J Spinal Cord Med       Date:  2018-05-07       Impact factor: 1.985

3.  Health care utilization and barriers experienced by individuals with spinal cord injury.

Authors:  Michael D Stillman; Karen L Frost; Craig Smalley; Gina Bertocci; Steve Williams
Journal:  Arch Phys Med Rehabil       Date:  2014-02-22       Impact factor: 3.966

4.  Utilization, access and satisfaction with primary care among people with spinal cord injuries: a comparison of three countries.

Authors:  C Donnelly; M A McColl; S Charlifue; C Glass; P O'Brien; G Savic; K Smith
Journal:  Spinal Cord       Date:  2006-05-30       Impact factor: 2.772

5.  Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit.

Authors:  James Milligan; Joseph Lee; Matt Smith; Lindsay Donaldson; Peter Athanasopoulos; Kent Bassett-Spiers; Jeremy Howcroft; Jennifer W Howcroft; Tara Jeji; Phalgun B Joshi; Upender Mehan; Vanessa Noonan
Journal:  J Spinal Cord Med       Date:  2018-12-17       Impact factor: 1.985

6.  Physician perspectives on care of individuals with severe mobility impairments in primary care in Southwestern Ontario, Canada.

Authors:  Colleen McMillan; Joseph Lee; James Milligan; Loretta M Hillier; Craig Bauman
Journal:  Health Soc Care Community       Date:  2015-03-26

7.  Spinal Cord Injury Community Survey: Understanding the Needs of Canadians with SCI.

Authors:  Luc Noreau; Vanessa K Noonan; John Cobb; Jean Leblond; Frédéric S Dumont
Journal:  Top Spinal Cord Inj Rehabil       Date:  2014

Review 8.  Primary care of people with spinal cord injury: scoping review.

Authors:  Mary Ann McColl; Alice Aiken; Alexander McColl; Brodie Sakakibara; Karen Smith
Journal:  Can Fam Physician       Date:  2012-11       Impact factor: 3.275

9.  Development of a Chronic Care Model for Neurological Conditions (CCM-NC).

Authors:  Susan B Jaglal; Sara J T Guilcher; Tarik Bereket; Mae Kwan; Sarah Munce; James Conklin; Joan Versnel; Tanya Packer; Molly Verrier; Connie Marras; Kristen B Pitzul; Richard Riopelle
Journal:  BMC Health Serv Res       Date:  2014-09-19       Impact factor: 2.655

10.  Preventive care among primary care patients living with spinal cord injury.

Authors:  Aisha Lofters; Maha Chaudhry; Morgan Slater; Andree Schuler; James Milligan; Joseph Lee; Sara J T Guilcher
Journal:  J Spinal Cord Med       Date:  2018-02-09       Impact factor: 1.985

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