| Literature DB >> 32733667 |
Beatriz E Muñoz1,2, Valentina Quintana-Peña3, Maria C Gonzalez4, Jaime A Valderrama2,3, Yor Jaggy Castaño-Pino2,3, Domiciano Rincón2,3, Andrés Navarro2,3, Jorge L Orozco1,2,3.
Abstract
INTRODUCTION: Parkinson's disease (PD) is one of the most prevalent age-related neurodegenerative disorders. The progression of PD produces an important disease burden in patients due to functional impairment, which also has repercussions on caregivers. In addition, it has become a challenge for health systems, especially in developing countries, which have limited resources. Multidisciplinary teams with a community approach have proved effective in high-income countries; however, there is no reported literature in low- and middle-income countries about this kind of initiative.Entities:
Year: 2020 PMID: 32733667 PMCID: PMC7378612 DOI: 10.1155/2020/2497386
Source DB: PubMed Journal: Parkinsons Dis ISSN: 2042-0080
Surveys and questionnaires given to patients, caregivers, and clinical experts about SIM.
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| How many years ago where you diagnosed with Parkinson's disease? |
| Do you know the program of Alianza Parkinson Cali? |
| Do you consult our activities on Facebook? |
| Where did you hear about the activity SIM of the Alianza Parkinson Cali? |
| With what frequency have you attended the activities of SIM in the last year? |
| Who goes with you to SIM activities? |
| Which of the activities on SIM is your favourite? |
| Which of the following activities do you consider have been the most educative? (mark an X) |
| How would you rate the quality of the contents of SIM activities? |
| How satisfied do you feel with the activities of SIM? |
| Do you consider the activities have improved your quality of life? |
| Do you consider the activities have increased your knowledge on Parkinson's disease? |
| Have you practiced the exercises of SIM at home? |
| Is the space where SIM meetings are held comfortable? |
| Is the quality of sound good enough to understand everything said in the meetings? |
| With what frequency would you like the meetings of SIM? Would you recommend the SIM activities to a friend with Parkinson's disease? |
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| How would you define your quality of life? |
| Do you consider SIM has contributed in the improvement of your quality of life? |
| What do you think are the most important elements of the program SIM that contribute the most to improve your quality of life? |
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| Caregivers |
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| How would you define your quality of life? |
| Do you consider the time spend with the patient interferes with your quality of life? |
| Do you consider SIM has contributed in the improvement of the patient's quality of life? |
| What do you think are the most important elements of the program SIM that contribute the most to improve the patient's quality of life? |
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| Clinical experts |
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| What is your point of view on PD patients and caregivers involved in SIM? |
| How did your participation in SIM change your daily clinical practice? |
Figure 1Number of responses about aspects of SIM sessions between PD patients and caregivers.
Figure 2Graph showing the viewpoint of caregivers regarding the most important aspects of the SIM program that could be useful for patient care. Caregivers could select more than one option.