| Literature DB >> 32707602 |
Sue Read1, Alison M Aries2, Sue M Ashby3, Val Bambrick4, Steven J Blackburn5, Helen Clifford6, Carol Rhodes5, Sarah Thirlwall6, Carole A Watkins2.
Abstract
BACKGROUND: Public involvement in the education of students enrolled on higher education programmes has gained impetus. For students enrolled on professional health-care programmes and health-related modules in the UK, there is also a requirement by professional bodies to include "service user" involvement in preparation for entry to a professional health-care register and continuing professional development. Actively involving patients and members of the public in research is also a requirement by many research funders. In this article, the term Patient and Public Involvement (PPI) will be used throughout to include lay members, volunteers, user and carers.Entities:
Keywords: action research; co-production; engagement; personal development; qualitative research
Year: 2020 PMID: 32707602 PMCID: PMC7696120 DOI: 10.1111/hex.13097
Source DB: PubMed Journal: Health Expect ISSN: 1369-6513 Impact factor: 3.377
National Standards for Public Involvement in Research
| Standard 1: Inclusive opportunities | We offer public involvement opportunities that are accessible and that reach people and groups according to research needs. |
| Standard 2: Working together | We work together in a way that values all contributions, and that builds and sustains mutually respectful and productive relationships. |
| Standard 3: Support and learning | We offer and promote support and learning that builds confidence and skills for public involvement in research. |
| Standard 4: Communications | We use plain language for timely, two way and targeted communications, as part of involvement plans and activities. |
| Standard 5: Impact | To drive improvement, we capture and share the difference that public involvement makes to research. |
| Standard 6: Governance | We involve the public in our governance and leadership so that our decisions promote and protect the public interest. |
Figure 1The action research cycle
Overall evaluations
| Question | Strongly disagree | Disagree | Agree | Strongly agree |
|---|---|---|---|---|
| Session encouraged me to share my views of being involved in the host institution | 0 | 1 | 11 | 41 |
| Session encouraged me to influence the development of public contributors’ engagement at the host institution | 0 | 1 | 18 | 34 |
| Topics explored were appropriate and relevant | 0 | 0 | 13 | 40 |
| I felt able to contribute to discussions | 1 | 1 | 10 | 42 |
| I feel adequately prepared for contributing on the day | 0 | 1 | 19 | 33 |
| I found the content interesting and useful | 0 | 0 | 12 | 38 |
| I was happy with the information received before the day | 0 | 2 | 20 | 25 |
| I was happy with the refreshments on the day | 0 | 0 | 14 | 32 |
| The session ran smoothly | 0 | 0 | 13 | 36 |
| I enjoyed the session | 0 | 0 | 11 | 39 |
| I felt my contribution was valued | 0 | 0 | 13 | 36 |
| I feel that I benefitted from the session | 0 | 0 | 10 | 40 |
| I would recommend the session to others | 0 | 0 | 11 | 39 |
Figure 2Research processes in the PAR framework
Summary of attendance
| Title of session | No of attendees | ||
|---|---|---|---|
| F | M | Total | |
| Introduction to host institution | 5 | 1 | 6 |
| Exploring roles and barriers to taking part | 8 | 2 | 10 |
| Recognising the value of personal stories/experiences | 8 | 2 | 10 |
| The importance of good communication | 4 | 2 | 6 |
| Introduction to research | 6 | 1 | 7 |
| Participating in meetings | 5 | 2 | 7 |
| Equality and Diversity Training/Health and Safety | 7 | 4 | 11 |
| IT for beginners | 2 | 2 | 4 |
| Interviewing skills | 5 | 3 | 8 |
| Total number of attendees | 50 | 19 | 69 |