| Literature DB >> 32668026 |
Kevin Power1, Zita McCrea1, Maire White1,2, Annette Breen2, Brendan Dunleavy3, Sean O'Donoghue3, Tim Jacquemard1, Veronica Lambert4, Hany El-Naggar1,2,5, Norman Delanty1,2,5, Colin Doherty1,6, Mary Fitzsimons1,5.
Abstract
OBJECTIVES: The current coronavirus disease 2019 (COVID-19) pandemic stresses an urgency to accelerate much-needed health service reform. Rapid and courageous changes being made to address the immediate impact of the pandemic are demonstrating that the means and technology to enable new models of health care exist. For example, innovations such as electronic patient portals (ePortal) can facilitate (a) radical reform of outpatient care; (b) cost containment in the economically constrained aftermath of the pandemic; (c) environmental sustainability by reduction of unnecessary journeys/transport. Herein, the development of Providing Individualised Services and Care in Epilepsy (PiSCES), an ePortal to the Irish National Epilepsy Electronic Patient Record, is demonstrated. This project, which pre-dates the COVID-19 crisis, aims to facilitate better patient- and family-centered epilepsy care.Entities:
Keywords: COVID-19; electronic health records; epilepsy; patient portal
Mesh:
Year: 2020 PMID: 32668026 PMCID: PMC7404863 DOI: 10.1111/epi.16627
Source DB: PubMed Journal: Epilepsia ISSN: 0013-9580 Impact factor: 6.740
Figure 1Providing Individualised Services and Care in Epilepsy development process involved significant commitment and input from multiple stakeholders over a lengthy period. This was achieved by embedding the initiative in continuous quality improvement of epilepsy services. Various interrelated methods are employed across different phases of the project to engage the people involved in epilepsy care, understand the nature of their transactions with each other and the role technology can play. The project has been enabled through a number of research, health service innovation, and health service delivery funding sources. MVP, Minimum viable product; UI, User interface
Figure 2Screenshots of (A) the PiSCES Landing Page. By selecting “My Epilepsy Care Summary” the user is brought to (B) links to more detailed information
Figure 3Screenshots of (A) the Seizure‐Type module and (B) the Medications module, where Current antiepileptic drugs have been selected
Figure 4Screenshots of (A) Possible Causes of My Epilepsy and (B) Syndrome Classification modules
Figure 5Screenshots of the My Epilepsy Clinic Letter module. (A) A list of available clinic letters showing author, organization, and date can be reviewed. By selecting any of these (B) the clinic letter can be viewed
Figure 6Help us measure your progress