Literature DB >> 32653402

International perspectives on patient involvement in clinical trials in nephrology.

Debasish Banerjee1, Racquel Lowe-Jones2, Sandrine Damster3, Nicola Thomas4, Nicole Scholes-Robertson5, Allison Tong5, Adeera Levin6.   

Abstract

Entities:  

Keywords:  clinical research; clinical trial; nephrology; patient involvement

Mesh：

Year:  2020        PMID： 32653402     DOI： 10.1016/j.kint.2020.06.023

Source DB:  PubMed          Journal:  Kidney Int        ISSN： 0085-2538            Impact factor:   10.612


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  6 in total

1.  A Core Outcome Set for Trials in Glomerular Disease: A Report of the Standardized Outcomes in Nephrology-Glomerular Disease (SONG-GD) Stakeholder Workshops.

Authors:  Simon A Carter; Liz Lightstone; Dan Cattran; Allison Tong; Arvind Bagga; Sean J Barbour; Jonathan Barratt; John Boletis; Dawn J Caster; Rosanna Coppo; Fernando C Fervenza; Jürgen Floege; Michelle A Hladunewich; Jonathan J Hogan; A Richard Kitching; Richard A Lafayette; Ana Malvar; Jai Radhakrishnan; Brad H Rovin; Nicole Scholes-Robertson; Hernán Trimarchi; Hong Zhang; Samaya Anumudu; Yeoungjee Cho; Talia Gutman; Emma O'Lone; Andrea K Viecelli; Eric Au; Karolis Azukaitis; Amanda Baumgart; Amelie Bernier-Jean; Louese Dunn; Martin Howell; Angela Ju; Charlotte Logeman; Melissa Nataatmadja; Benedicte Sautenet; Ankit Sharma; Jonathan C Craig
Journal:  Clin J Am Soc Nephrol       Date:  2021-12-30       Impact factor: 8.237

Review 2.  Patient-centred clinical trial design.

Authors:  Allison Tong; Nicole Scholes-Robertson; Carmel Hawley; Andrea K Viecelli; Simon A Carter; Adeera Levin; Brenda R Hemmelgarn; Tess Harris; Jonathan C Craig
Journal:  Nat Rev Nephrol       Date:  2022-06-06       Impact factor: 42.439

3.  Patient and Caregiver Experiences and Attitudes about Their Involvement in Research in Chronic Kidney Disease.

Authors:  Talia Gutman; Ayano Kelly; Nicole Scholes-Robertson; Jonathan C Craig; Shilpanjali Jesudason; Allison Tong
Journal:  Clin J Am Soc Nephrol       Date:  2022-02       Impact factor: 10.614

4.  A Framework to Ensure Patient Partners Have Equal and Contributing Voices Throughout the Research Program Evaluation Process.

Authors:  David R Hillier; Mila Tang; William Clark; Cynthia MacDonald; Carol Connolly; Chantel Large; Malcolm King; Joel Singer; Adeera Levin; Braden Manns; Ana Konvalinka; James Scholey; Norman D Rosenblum
Journal:  Can J Kidney Health Dis       Date:  2020-11-26

5.  The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees.

Authors:  Stuart G Nicholls; Grace Fox; Zarah Monfaredi; Evelyn Poole; Chantelle Garritty; Alies Maybee; Justin Presseau; Beverley Shea; Dean A Fergusson
Journal:  Res Involv Engagem       Date:  2022-09-07

6.  Ethical Issues in the Design and Conduct of Pragmatic Cluster Randomized Trials in Hemodialysis Care: An Interview Study With Key Stakeholders.

Authors:  Stuart G Nicholls; Kelly Carroll; Charles Weijer; Cory E Goldstein; Jamie Brehaut; Manish M Sood; Ahmed Al-Jaishi; Erika Basile; Jeremy M Grimshaw; Amit X Garg; Monica Taljaard
Journal:  Can J Kidney Health Dis       Date:  2020-10-26
  6 in total

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