Literature DB >> 32628127

The I in COVID: The importance of community and patient involvement in COVID-19 research.

Anenta Ratneswaren1.   

Abstract

The call for community and patient involvement in the COVID-19 response is yet to be heard and answered. There are practical and ethical reasons for researchers not to neglect patient and public involvement (PPI), which has become an important cornerstone of UK-based clinical research. There has been a commendable effort towards driving evidence-based research, particularly through clinical trials in the UK. This article presents a brief background to PPI and points for consideration for clinical researchers currently active in or planning COVID-19 research. © Royal College of Physicians 2020. All rights reserved.

Entities:  

Keywords:  COVID-19; Patient and public involvement; clinical trials; community; engagement

Mesh：

Year:  2020        PMID： 32628127      PMCID： PMC7385787          DOI： 10.7861/clinmed.2020-0173

Source DB:  PubMed          Journal:  Clin Med (Lond)        ISSN： 1470-2118            Impact factor:   2.659


  3 in total

1.  From tokenism to empowerment: progressing patient and public involvement in healthcare improvement.

Authors:  Josephine Ocloo; Rachel Matthews
Journal:  BMJ Qual Saf       Date:  2016-03-18       Impact factor: 7.035

2.  How to incorporate patient and public perspectives into the design and conduct of research.

Authors:  Pat Hoddinott; Alex Pollock; Alicia O'Cathain; Isabel Boyer; Jane Taylor; Chris MacDonald; Sandy Oliver; Jenny L Donovan
Journal:  F1000Res       Date:  2018-06-18

3.  Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis.

Authors:  Joanna C Crocker; Ignacio Ricci-Cabello; Adwoa Parker; Jennifer A Hirst; Alan Chant; Sophie Petit-Zeman; David Evans; Sian Rees
Journal:  BMJ       Date:  2018-11-28
  3 in total
  6 in total

1.  'What is the risk to me from COVID-19?': Public involvement in providing mortality risk information for people with 'high-risk' conditions for COVID-19 (OurRisk.CoV).

Authors:  Amitava Banerjee; Laura Pasea; Sinduja Manohar; Alvina G Lai; Eade Hemingway; Izaak Sofer; Michail Katsoulis; Harpreet Sood; Andrew Morris; Caroline Cake; Natalie K Fitzpatrick; Bryan Williams; Spiros Denaxas; Harry Hemingway
Journal:  Clin Med (Lond)       Date:  2021-11       Impact factor: 2.659

2.  LIVES for families psychological first aid training programme to address COVID-19 psychological distress: a mixed methods acceptability and feasibility protocol.

Authors:  Melissa Kimber; Sheila Harms; Noam Soreni; Maggie Inrig; Anita Acai; Ellen Louise Lipman; Roberto Sassi; David L Streiner; Harriet L MacMillan
Journal:  BMJ Open       Date:  2021-05-05       Impact factor: 2.692

3.  COVID-19 and Children's Well-Being: A Rapid Research Agenda.

Authors:  Rebecca N Dudovitz; Shirley Russ; Mary Berghaus; Iheoma U Iruka; Jessica DiBari; Dana M Foney; Michael Kogan; Neal Halfon
Journal:  Matern Child Health J       Date:  2021-08-24

4.  Sharing research results with Latina breast cancer survivors who participated in a community-engaged behavioral RCT study: a descriptive cross-sectional survey study.

Authors:  Jackie Bonilla; Alia Alhomsi; Jasmine Santoyo-Olsson; Anita L Stewart; Carmen Ortiz; Cathy Samayoa; Alma Torres-Nguyen; Helen Palomino; La Verne Coleman; Aday Urias; Nayeli Gonzalez; Silvia Araceli Cervantes; Ysabel Duron; Anna María Nápoles
Journal:  Trials       Date:  2022-01-08       Impact factor: 2.279

5.  Adapting patient and public involvement in patient-oriented methods research: Reflections in a Canadian setting during COVID-19.

Authors:  Jenny Leese; Leana Garraway; Linda Li; Nelly Oelke; Martha MacLeod
Journal:  Health Expect       Date:  2021-11-12       Impact factor: 3.318

6.  CCopeY: A Mixed-Methods Coproduced Study on the Mental Health Status and Coping Strategies of Young People During COVID-19 UK Lockdown.

Authors:  Lindsay H Dewa; Caroline Crandell; Elizabeth Choong; Jack Jaques; Alex Bottle; Catherine Kilkenny; Anna Lawrence-Jones; Martina Di Simplicio; Dasha Nicholls; Paul Aylin
Journal:  J Adolesc Health       Date:  2021-02-13       Impact factor: 7.830
  6 in total

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