Literature DB >> 32611667

"Unspoken Questions": A Qualitative Study of Rheumatologists' Perspectives on the Clinical Implementation of Patient-reported Outcome Measures.

Shanthini Kasturi1, John B Wong2, Lisa A Mandl3, Timothy E McAlindon4, Amy LeClair5.   

Abstract

OBJECTIVE: To identify rheumatologists' views on perceived barriers and facilitators to the clinical implementation of patient-reported outcome measures (PROM).
METHODS: Semistructured interviews were conducted with academically affiliated clinical rheumatologists. Interviews were audio-recorded and transcribed. Deidentified transcripts were independently coded and analyzed for themes.
RESULTS: Fifteen attending rheumatologists, 8 women (53%) and 7 men (47%) with a mean of 17.3 years in practice (range 5-43) at 2 urban academic medical centers, participated in interviews. Rheumatologists identified several barriers to integrating PROM in clinical care, highlighting physician buy-in and culture change as significant challenges beyond logistical considerations. They further underscored the lack of effective interventions and resources for addressing the domains of most interest to patients. Physicians also recognized significant benefits of PROM in clinical care, including contributing to the clinical impression by providing the patient perspective, and promoting agenda setting by uncovering "unspoken questions." They additionally noted that PROM could support treatment planning, build patient-physician relationships, and facilitate patient engagement. Participants suggested that technology, physician education, and team-based care could facilitate the effective implementation of PROM.
CONCLUSION: Rheumatologists identified multiple mechanisms through which PROM could augment clinical care, but also noted several obstacles to implementation, questioning the added value of PROM and the limited availability of interventions to improve patient-centered outcomes. Programs seeking to successfully integrate PROM to enhance patient-centered care and meet quality benchmarks should prioritize physician buy-in and training, and provide resources to address the outcomes that are measured.

Entities:  

Keywords:  patient-centered care; patient-reported outcome measures; qualitative research; rheumatologists

Year:  2020        PMID: 32611667      PMCID: PMC7710532          DOI: 10.3899/jrheum.200232

Source DB:  PubMed          Journal:  J Rheumatol        ISSN: 0315-162X            Impact factor:   4.666


  25 in total

1.  Standard self-report questionnaires in routine clinical and research practice--an opportunity for patients and rheumatologists.

Authors:  F Wolfe; T Pincus
Journal:  J Rheumatol       Date:  1991-05       Impact factor: 4.666

2.  Use of patient-reported outcomes in clinical practice.

Authors:  Claire F Snyder; Neil K Aaronson
Journal:  Lancet       Date:  2009-08-01       Impact factor: 79.321

3.  Large-scale clinical implementation of PROMIS computer adaptive testing with direct incorporation into the electronic medical record.

Authors:  M O Papuga; C Dasilva; A McIntyre; D Mitten; S Kates; J F Baumhauer
Journal:  Health Syst (Basingstoke)       Date:  2017-12-07

4.  Rheumatology Informatics System for Effectiveness: A National Informatics-Enabled Registry for Quality Improvement.

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Journal:  Arthritis Care Res (Hoboken)       Date:  2016-12       Impact factor: 4.794

5.  Development of the American College of Rheumatology's Rheumatoid Arthritis Electronic Clinical Quality Measures.

Authors:  Jinoos Yazdany; Mark Robbins; Gabriela Schmajuk; Sonali Desai; Diane Lacaille; Tuhina Neogi; Jasvinder A Singh; Mark Genovese; Rachel Myslinski; Natalie Fisk; Melissa Francisco; Eric Newman
Journal:  Arthritis Care Res (Hoboken)       Date:  2016-11       Impact factor: 4.794

Review 6.  The History of Patient-Reported Outcomes in Rheumatology.

Authors:  Leigh F Callahan
Journal:  Rheum Dis Clin North Am       Date:  2016-03-17       Impact factor: 2.670

7.  The applications of PROs in clinical practice: what are they, do they work, and why?

Authors:  Joanne Greenhalgh
Journal:  Qual Life Res       Date:  2008-12-23       Impact factor: 4.147

8.  Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial.

Authors:  Ethan Basch; Allison M Deal; Mark G Kris; Howard I Scher; Clifford A Hudis; Paul Sabbatini; Lauren Rogak; Antonia V Bennett; Amylou C Dueck; Thomas M Atkinson; Joanne F Chou; Dorothy Dulko; Laura Sit; Allison Barz; Paul Novotny; Michael Fruscione; Jeff A Sloan; Deborah Schrag
Journal:  J Clin Oncol       Date:  2015-12-07       Impact factor: 44.544

9.  Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial.

Authors:  Galina Velikova; Laura Booth; Adam B Smith; Paul M Brown; Pamela Lynch; Julia M Brown; Peter J Selby
Journal:  J Clin Oncol       Date:  2004-02-15       Impact factor: 44.544

10.  Training clinicians in how to use patient-reported outcome measures in routine clinical practice.

Authors:  Maria J Santana; Lotte Haverman; Kate Absolom; Elena Takeuchi; David Feeny; Martha Grootenhuis; Galina Velikova
Journal:  Qual Life Res       Date:  2015-01-15       Impact factor: 4.147

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  2 in total

1.  Impetus of US hospital leaders to invest in patient-reported outcome measures (PROMs): a qualitative study.

Authors:  Danny Mou; Christer Mjaset; Claire M Sokas; Azan Virji; Barbara Bokhour; Marilyn Heng; Rachel C Sisodia; Andrea L Pusic; Meredith B Rosenthal
Journal:  BMJ Open       Date:  2022-07-06       Impact factor: 3.006

2.  Patients' and clinicians' perspectives on the clinical utility of the Rheumatoid Arthritis Foot Disease Activity Index.

Authors:  Anika Hoque; Martijn Steultjens; Diane M Dickson; Gordon J Hendry
Journal:  Rheumatol Int       Date:  2022-05-27       Impact factor: 3.580

  2 in total

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