Literature DB >> 32597530

Excavating the Personal Genome: The Good Biocitizen in the Age of Precision Health.

Sandra Soo-Jin Lee.   

Abstract

The rise of genomic technologies has catalyzed shifts in the health care landscape through the commercialization of genome sequencing and testing services in the genomics marketplace. The development of consumer genomics into a growing array of information technologies aimed at collecting, curating, and broadly sharing personal data and biological materials reconstitutes the meaning of health and reframes patients into biocitizens. In this context, the good biocitizen is expected to assume personal responsibility for health through consumption of genomic information and acquiescence to public and private efforts at data surveillance and aggregation. These shifts raise fundamental questions about how competing interests of the public, the state, and corporate entities will be reconciled and what trade-offs are demanded for the promise of precision health.
© 2020 The Hastings Center.

Entities:  

Keywords:  big data; ethics; genetics; neoliberalism; precision medicine

Mesh:

Year:  2020        PMID: 32597530      PMCID: PMC8715499          DOI: 10.1002/hast.1156

Source DB:  PubMed          Journal:  Hastings Cent Rep        ISSN: 0093-0334            Impact factor:   2.683


  7 in total

1.  The Human Genome Project: lessons from large-scale biology.

Authors:  Francis S Collins; Michael Morgan; Aristides Patrinos
Journal:  Science       Date:  2003-04-11       Impact factor: 47.728

2.  Race, risk, and recreation in personal genomics: the limits of play.

Authors:  Sandra Soo-Jin Lee
Journal:  Med Anthropol Q       Date:  2013-11-08

Review 3.  Toward achieving precision health.

Authors:  Sanjiv Sam Gambhir; T Jessie Ge; Ophir Vermesh; Ryan Spitler
Journal:  Sci Transl Med       Date:  2018-02-28       Impact factor: 17.956

4.  Claims and disclaimers: whose expertise counts?

Authors:  Linda F Hogle
Journal:  Med Anthropol       Date:  2002 Jul-Dec

5.  The Social Life of DNA: Race, Reparations, and Reconciliation After the GenomeThe Social Life of DNA: Race, Reparations, and Reconciliation After the Genome Alondra Nelson Beacon Press, 2016. 216 pp.

Authors: 
Journal:  Science       Date:  2021-09-23       Impact factor: 47.728

6.  The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research.

Authors: 
Journal:  J Am Coll Dent       Date:  2014

7.  In-Home Cardiovascular Monitoring System for Heart Failure: Comparative Study.

Authors:  Nicholas J Conn; Karl Q Schwarz; David A Borkholder
Journal:  JMIR Mhealth Uhealth       Date:  2019-01-18       Impact factor: 4.773

  7 in total
  1 in total

1.  The double helix at school: Behavioral genetics, disability, and precision education.

Authors:  Maya Sabatello; Beverly J Insel; Thomas Corbeil; Bruce G Link; Paul S Appelbaum
Journal:  Soc Sci Med       Date:  2021-04-20       Impact factor: 5.379

  1 in total

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