Liezl Schlebusch1, Karina Huus2, Alecia Samuels1, Mats Granlund2, Shakila Dada1. 1. Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria, South Africa. 2. CHILD Research Group, School of Health and Welfare, Swedish Institute for Disability Research, Jönköping University, Jönköping, Sweden.
Abstract
AIM: The purpose of this scoping review was to describe and map the literature available on the participation of young people (0-21y) with disabilities and/or chronic conditions living in low- and middle-income countries (LMICs). METHOD: A systematic search and selection process identified 78 publications. Descriptive data were extracted using a data-charting form, and studies were mapped using the family of participation-related constructs framework. RESULTS: The findings demonstrated that, although the published evidence is steadily increasing, the participation research on this vulnerable population is still either absent or very scarce in the majority of LMICs, and very little is known about the participation of children with chronic health conditions. Most studies included in this review focused on attendance or 'being there'. INTERPRETATION: Although attendance is an important aspect, more needs to be done to understand children's experiences or involvement while attending, thus capturing both dimensions of participation. WHAT THIS PAPER ADDS: There is an increasing trend in research on participation patterns of children with disabilities in low- and middle-income countries. Most research focuses on children's attendance, or 'being there'. We know very little about children's involvement, or experience, while attending daily activities.
AIM: The purpose of this scoping review was to describe and map the literature available on the participation of young people (0-21y) with disabilities and/or chronic conditions living in low- and middle-income countries (LMICs). METHOD: A systematic search and selection process identified 78 publications. Descriptive data were extracted using a data-charting form, and studies were mapped using the family of participation-related constructs framework. RESULTS: The findings demonstrated that, although the published evidence is steadily increasing, the participation research on this vulnerable population is still either absent or very scarce in the majority of LMICs, and very little is known about the participation of children with chronic health conditions. Most studies included in this review focused on attendance or 'being there'. INTERPRETATION: Although attendance is an important aspect, more needs to be done to understand children's experiences or involvement while attending, thus capturing both dimensions of participation. WHAT THIS PAPER ADDS: There is an increasing trend in research on participation patterns of children with disabilities in low- and middle-income countries. Most research focuses on children's attendance, or 'being there'. We know very little about children's involvement, or experience, while attending daily activities.
Authors: Shakila Dada; Kirsty Bastable; Liezl Schlebusch; Santoshi Halder Journal: Int J Environ Res Public Health Date: 2020-09-15 Impact factor: 3.390
Authors: Alecia Samuels; Shakila Dada; Karin Van Niekerk; Patrik Arvidsson; Karina Huus Journal: Int J Environ Res Public Health Date: 2020-09-15 Impact factor: 3.390
Authors: Roopa Srinivasan; Vrushali Kulkarni; Sana Smriti; Rachel Teplicky; Dana Anaby Journal: Int J Environ Res Public Health Date: 2021-02-05 Impact factor: 3.390