Literature DB >> 32555012

Behavioral Observation of Infants With Life-Threatening or Life-Limiting Illness in the Neonatal Intensive Care Unit.

Christine A Fortney1, Stephanie D Sealschott, Rita H Pickler.   

Abstract

BACKGROUND: Infants in the neonatal intensive care unit experience aversive stimuli that cause pain and distress. Maintaining adequate relief from pain and distress is challenging because of infants' varying ages and stages of development and their nonverbal status. Thus, pain and distress must be interpreted by a healthcare provider or other proxy from their own observations or perceptions. There is no standard research or clinical measure for pain and distress in infants.
OBJECTIVE: The purpose of this analysis was to evaluate the use of the COMFORT Behavior (COMFORT-B) Scale as a measure of pain and distress in infants diagnosed with life-threatening or life-limiting illnesses in the neonatal intensive care unit in comparison with the nurse-documented Neonatal Pain, Agitation and Sedation Scale; the infants' Technology Dependence Scale; and the mothers' report of total perceived symptom scores.
METHODS: Infants diagnosed with life-threatening or life-limiting illnesses and hospitalized in a Level IV neonatal intensive care unit in the Midwestern United States and their parents were included. Measurement of pain and distress in infants was collected weekly from enrollment through 12 weeks or until discharge, whichever occurred first. Observations for the COMFORT-B Scale were conducted before and after standard caregiving activities. Pearson r correlations were used to compare means between pain and distress, technology dependence, and mothers' total perceived symptom scores over time.
RESULTS: Data from 78 infants (46 male and 32 female infants) of ages 23-41 weeks of gestation at birth were analyzed. No correlations were found among the COMFORT-B Scale; the Neonatal Pain, Agitation and Sedation Scale; and mothers' total perceived symptom scores. Moderate correlations were found among the Technology Dependence Scale; mothers' total perceived symptom scores; and the Neonatal Pain, Agitation and Sedation Scale. DISCUSSION: Performing COMFORT-B observations can be challenging, and it is unclear whether the information obtained from the COMFORT-B Scale added to the assessment of the infant's pain and distress that is typically recorded in the health record or from parents. Further evaluation is needed to determine if it is more reliable to collect the Neonatal Pain, Agitation and Sedation Scale scores rather than conduct observations using the COMFORT-B Scale in studies of infants with life-threatening and life-limiting illnesses in the neonatal intensive care unit.

Entities:  

Year:  2020        PMID: 32555012      PMCID: PMC7709877          DOI: 10.1097/NNR.0000000000000456

Source DB:  PubMed          Journal:  Nurs Res        ISSN: 0029-6562            Impact factor:   2.381


  22 in total

1.  The COMFORT Behavior Scale: a tool for assessing pain and sedation in infants.

Authors:  Monique van Dijk; Jeroen W B Peters; Patricia van Deventer; Dick Tibboel
Journal:  Am J Nurs       Date:  2005-01       Impact factor: 2.220

Review 2.  Primary palliative care in neonatal intensive care.

Authors:  Krishelle L Marc-Aurele; Nancy K English
Journal:  Semin Perinatol       Date:  2017-02-03       Impact factor: 3.300

3.  The reliability and validity of the COMFORT scale as a postoperative pain instrument in 0 to 3-year-old infants.

Authors:  M van Dijk; J B de Boer; H M Koot; D Tibboel; J Passchier; H J Duivenvoorden
Journal:  Pain       Date:  2000-02       Impact factor: 6.961

4.  The association between physiological and behavioral pain measures in 0- to 3-year-old infants after major surgery.

Authors:  M van Dijk; J B de Boer; H M Koot; H J Duivenvoorden; J Passchier; N Bouwmeester; D Tibboel
Journal:  J Pain Symptom Manage       Date:  2001-07       Impact factor: 3.612

5.  Factors that distinguish symptoms of most concern to parents from other symptoms of dying children.

Authors:  Michele Pritchard; Elizabeth A Burghen; Jami S Gattuso; Nancy K West; Poorna Gajjar; Deo Kumar Srivastava; Sheri L Spunt; Justin N Baker; Javier R Kane; Wayne L Furman; Pamela S Hinds
Journal:  J Pain Symptom Manage       Date:  2010-04       Impact factor: 3.612

Review 6.  Update on pain assessment in sick neonates and infants.

Authors:  Monique van Dijk; Dick Tibboel
Journal:  Pediatr Clin North Am       Date:  2012-08-22       Impact factor: 3.278

7.  Clinical reliability and validity of the N-PASS: neonatal pain, agitation and sedation scale with prolonged pain.

Authors:  P Hummel; M Puchalski; S D Creech; M G Weiss
Journal:  J Perinatol       Date:  2007-10-25       Impact factor: 2.521

8.  Medical record documentation and symptom management at the end of life in the NICU.

Authors:  Christine A Fortney; Deborah K Steward
Journal:  Adv Neonatal Care       Date:  2015-02       Impact factor: 1.968

9.  Taking up the challenge of measuring prolonged pain in (premature) neonates: the COMFORTneo scale seems promising.

Authors:  Monique van Dijk; Daniella W E Roofthooft; Kanwaljeet J S Anand; Fleur Guldemond; Joke de Graaf; Sinno Simons; Youette de Jager; Johannes B van Goudoever; Dick Tibboel
Journal:  Clin J Pain       Date:  2009-09       Impact factor: 3.442

10.  Validity and reliability of the N-PASS assessment tool with acute pain.

Authors:  P Hummel; P Lawlor-Klean; M G Weiss
Journal:  J Perinatol       Date:  2009-11-19       Impact factor: 2.521

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