Yelena Gorina1, John T Redd2, Sara Hersey3, Amara Jambai4, Peter Meyer5, Ansumana S Kamara6, Alimamy Kamara7, Jadnah D Harding8, Brima Bangura8, Mohamed A M Kamara8. 1. National Center for Health Statistics, Division of Analysis and Epidemiology, Hyattsville, MD. Electronic address: yag9@cdc.gov. 2. The Department of Health and Human Services, Office of the Assistant Secretary for Preparedness and Response, Washington, DC. 3. World Bank, Washington, DC. 4. Sierra Leone Ministry of Health and Sanitation, Freetown, Sierra Leone. 5. NORC at The University of Chicago, Bethesda, MD. 6. African Field Epidemiology Network (AFENET), Freetown, Sierra Leone. 7. Centers for Disease Control and Prevention, Center for Global Health, Division of Global Health Protection, Freetown, Sierra Leone. 8. Columbia Mailman School of Public Health, ICAP, Sierra Leone Ebola Database (SLED) Data Team, Freetown, Sierra Leone.
Abstract
PURPOSE: Organizations responding to the 2014-2016 Ebola epidemic in Sierra Leone collected information from multiple sources and kept it in separate databases, including distinct data systems for Ebola hot line calls, patient information collected by field surveillance officers, laboratory testing results, clinical information from Ebola treatment and isolation facilities, and burial team records. METHODS: After the conclusion of the epidemic, the Sierra Leone Ministry of Health and Sanitation and the U.S. Centers for Disease Control and Prevention partnered to collect these disparate records and consolidate them in the Sierra Leone Ebola Database. RESULTS: The Sierra Leone Ebola Database data are providing a lasting resource for postepidemic data analysis and epidemiologic research, including identifying best strategies in outbreak response, and are used to help families locate the graves of family members who died during the epidemic. CONCLUSION: This report describes the Ministry of Health and Sanitation and Centers for Disease Control and Prevention processes to safeguard Ebola records while making the data available for public health research. Published by Elsevier Inc.
PURPOSE: Organizations responding to the 2014-2016 Ebola epidemic in Sierra Leone collected information from multiple sources and kept it in separate databases, including distinct data systems for Ebola hot line calls, patient information collected by field surveillance officers, laboratory testing results, clinical information from Ebola treatment and isolation facilities, and burial team records. METHODS: After the conclusion of the epidemic, the Sierra Leone Ministry of Health and Sanitation and the U.S. Centers for Disease Control and Prevention partnered to collect these disparate records and consolidate them in the Sierra Leone Ebola Database. RESULTS: The Sierra Leone Ebola Database data are providing a lasting resource for postepidemic data analysis and epidemiologic research, including identifying best strategies in outbreak response, and are used to help families locate the graves of family members who died during the epidemic. CONCLUSION: This report describes the Ministry of Health and Sanitation and Centers for Disease Control and Prevention processes to safeguard Ebola records while making the data available for public health research. Published by Elsevier Inc.
Entities:
Keywords:
Data access; Data ownership; Data sharing; Ebola virus disease; Ethics; Privacy; SLED; Sierra Leone Ebola database
Authors: Lucy A McNamara; Ilana J Schafer; Leisha D Nolen; Yelena Gorina; John T Redd; Terrence Lo; Elizabeth Ervin; Olga Henao; Benjamin A Dahl; Oliver Morgan; Sara Hersey; Barbara Knust Journal: MMWR Suppl Date: 2016-07-08
Authors: Carrie F Nielsen; Sarah Kidd; Ansumana R M Sillah; Edward Davis; Jonathan Mermin; Peter H Kilmarx Journal: MMWR Morb Mortal Wkly Rep Date: 2015-01-16 Impact factor: 17.586
Authors: Patty Kostkova; Helen Brewer; Simon de Lusignan; Edward Fottrell; Ben Goldacre; Graham Hart; Phil Koczan; Peter Knight; Corinne Marsolier; Rachel A McKendry; Emma Ross; Angela Sasse; Ralph Sullivan; Sarah Chaytor; Olivia Stevenson; Raquel Velho; John Tooke Journal: Front Public Health Date: 2016-02-17
Authors: Vasee S Moorthy; Cathy Roth; Piero Olliaro; Christopher Dye; Marie Paule Kieny Journal: Bull World Health Organ Date: 2016-04-01 Impact factor: 9.408
Authors: Barbara J Marston; E Kainne Dokubo; Amanda van Steelandt; Lise Martel; Desmond Williams; Sara Hersey; Amara Jambai; Sakoba Keita; Tolbert G Nyenswah; John T Redd Journal: Emerg Infect Dis Date: 2017-12 Impact factor: 6.883
Authors: Suerie Moon; Devi Sridhar; Muhammad A Pate; Ashish K Jha; Chelsea Clinton; Sophie Delaunay; Valnora Edwin; Mosoka Fallah; David P Fidler; Laurie Garrett; Eric Goosby; Lawrence O Gostin; David L Heymann; Kelley Lee; Gabriel M Leung; J Stephen Morrison; Jorge Saavedra; Marcel Tanner; Jennifer A Leigh; Benjamin Hawkins; Liana R Woskie; Peter Piot Journal: Lancet Date: 2015-11-23 Impact factor: 79.321