| Literature DB >> 32456670 |
Laura-Louise Arundell1,2, Helen Greenwood3, Helen Baldwin3, Eleanor Kotas4, Shubulade Smith3,5, Kasia Trojanowska3, Chris Cooper6,7.
Abstract
BACKGROUND: This work aimed to identify studies of interventions seeking to address mental health inequalities, studies assessing the economic impact of such interventions and factors which act as barriers and those that can facilitate interventions to address inequalities in mental health care.Entities:
Keywords: Equality; Health economics; Inequalities; Mapping review; Mental health; Qualitative research
Mesh:
Year: 2020 PMID: 32456670 PMCID: PMC7251669 DOI: 10.1186/s13643-020-01333-6
Source DB: PubMed Journal: Syst Rev ISSN: 2046-4053
Population characteristics (protected or other) considered for inclusion in this review
| Characteristics | Populations |
|---|---|
| Protected characteristics (Equality Act 2010) | |
| Age | Children and young peoplea |
| Older adultsa | |
| Disability | People with intellectual/learning disability and/or autism |
| People with physical or sensory impairment | |
| Race | Cultural and ethnic minority groups |
| Religion or belief | Religious communities |
| Pregnancy and maternity | New or expectant mothersa |
| Sex | Men or womena People who are intersexb |
| Gender reassignmente | People who are transsexual or transgender |
| Sexual orientation | People with a minority sexual orientation |
| Other characteristics (from the NICE equality impact assessment) | |
| Socioeconomic status | People with a low socioeconomic statusc |
| Other categories | Other groups in the population who experience poor health because of circumstances often affected by, but going beyond, sharing a protected characteristic or socioeconomic status. The following are examples of groups covered in the NICE guidance [ • refugees and asylum seekers • migrant workers • looked after children • homeless people • prisoners and young offendersd |
aStudy population with this characteristic must also have an additional characteristic (intersectionality) or need that puts them at risk of experiencing mental health inequalities
bThis is not explicitly protected by the Equality Act 2010
cDepending on policy or other context, this may cover factors such as social exclusion and deprivation associated with geographical areas, or inequalities or variations associated with other geographical distinctions (e.g. rural or urban poverty)
dStudy population with this characteristic only includes children and young people
eThis term is that used in the Equality Act 2010 where it is also stated that this term includes the protection of any person who is proposing to undergo or is undergoing a process of changing physiological attributes of biological sex
Fig. 1PRISMA flow diagram of research studies search
Systematic reviews for research question 1
| Study ID | Study intervention details | Intervention type(s) | Intervention strategies employed | Target population(s) |
|---|---|---|---|---|
| Bhui et al. [ | Therapeutic communication interventions | Access, intervention | Engaging the community (EC), other—culturally adapted interventions (OCA), other—technology (OT) | Minority ethnicities |
| Garcia et al. [ | Collaborative care model for people with limited English proficiency | Access | Restructuring the care team (RSCT), enhancing language, literacy and communication (ELLS), other—culturally adapted interventions (OCA) | People with depression and limited English-speaking proficiency |
| Gardner et al. [ | Incredible Years parenting programme | Early intervention, intervention | Delivering education and training (DET), providing psychological support (PPS) | Children aged 2–10 years from socially disadvantaged families (included differential effects for ethnic minorities) |
| Lucas et al. [ | Unconditional monetary or financial benefits interventions | Prevention, access | Providing financial incentives or removing financial barriers (PFIP) | Pregnant women and families with children with low socioeconomic status |
| Pega et al. [ | Unconditional monetary or financial benefits interventions | Prevention, access | Providing financial incentives or removing financial barriers (PFIP) | Children and adults with low socioeconomic status from low- and middle-income countries |
| Rojas-Garcia et al. [ | Psycho-educational interventions for depression | Early intervention, intervention | Delivering education and training (DET), providing psychological support (PPS), other—culturally adapted interventions (OCA) | Minority ethnic mothers with low socioeconomic status |
| Vallury et al. [ | Computerised CBT | Access, intervention | Providing psychological support (PPS), other—technology (OT) | People living in rural or remote communities |
| van der Waerden et al. [ | Psycho-educational interventions for depression | Early intervention, intervention | Delivering education and training (DET), providing psychological support (PPS), other—culturally adapted interventions (OCA) | Women with low-socioeconomic status |
| Weaver and Lapidos [ | Community health workers interventions | Access | Engaging the community (EC), other—culturally adapted interventions (OCA) | Disadvantaged communities including ethnic minorities and immigrants, people of low socioeconomic status, gender (both male and female), pregnancy and location |
Intervention types, intervention strategies and target populations are reported
CBT Cognitive–behavioural therapy, DET delivering education and training, EC engaging the community, ELLS enhancing language/literacy and communication, OCA other—culturally adapted interventions, OT other—technology, PFIP providing financial incentives or removing financial barriers, PPS providing psychological support, RSCT restructuring the care team
Fig. 2Mapping diagram of primary studies. *Studies examining these characteristics were only included if they also looked at other characteristics. **Specific populations are those who may have a specific set of characteristics and experiences placing them at risk of experiencing mental health inequalities and therefore may already be defined by multiple characteristics (e.g. refugees). Circle size area is asscociated with the number of primary studies that consider a population characteristic. The lines between the circles indicate where characteristics were considered together, while the thickness of the lines indicates the frequency of the association. 49 studies examined 2 population characteristics; the most frequent association was between age and socioeconomic factors. 24 studies examined 3 characteristics, of which age, race and socioeconomic factors were the most frequent associations. 8 studies examined 4 characteristics. 3 studies examined 5 characteristics. 3 studies examined 6 characteristics
Modifications made to expand the taxonomy of disparities interventions used in this study
| Intervention strategy as defined by Clarke et al. [ | Modification(s) |
|---|---|
| Enhancing language and literacy services (ELLS) | Broadened to include ‘communication’ as follows: enhancing language, literacy and communication i.e. non-verbal languages (sign language and braille) and accessibility devices such as hearing aids and loops, in addition using interpreters and health literacy screening |
Other: - home-based care - increased referrals - patient/provider racial/ethnic concordance - adjust therapy regimen | Broadened to include the following additional strategies in the ‘other’ category: - technology (OT) - community revitalisation (OCR) - culturally adapted interventions (OCA) - not otherwise specified (NOS) |
| Additional intervention strategies not defined by Clarke et al (2013) [ | |
| Improving access to support, care and treatment for mental health problems (IASCT) | New category used in this study to sort strategies that address logistical barriers to accessing mental health support, care and treatment aimed at reaching wider populations or decreasing waitlists. It was added to capture intervention strategies that go beyond the provision of solely psychological therapies. It includes new service models or programmes such as the IAPT programme in the UK. |
ELLS enhancing language and literacy services/enhancing language, literacy and communication, IAPT improving access to psychological therapies, IASCT improving access to support care and treatment for mental health problems, NOS not otherwise specified, OT ‘other’ technology, OCR ‘other’ community revitalisation, OCA ‘other’ culturally adapted interventions
Summary of intervention strategies for tackling inequalities identified during research question 1
| Intervention strategy | Brief description | Population or inequalities targeted | Number of studies includeda |
|---|---|---|---|
| Delivering education and training (DET) | Delivering skills-based training/teaching or providing information or tools for self-learning. | • Minority ethnic or immigrant communities, indigenous communities, LGBTQ+ communities, people who have a sensory or physical impairment, people who have a learning disability, females young people, older adults • Pregnancy and maternity, socioeconomic factors, rural or remote localities, urban localities | 29 |
| Providing reminders and feedback (PRF) | Providing prompts to promote adherence to the intervention or care programme. | • Minority ethnic or immigrant communities, young people • Pregnancy and maternity, socioeconomic factors | 3 |
| Providing psychological support (PPS) | Delivery of psychological therapies that promote well-being, such as CBT or interpersonal therapy. | • Minority ethnic or immigrant communities, indigenous communities, religious communities, LGBTQ+ communities, people who have a sensory or physical impairment, males, young people, older adults, people experiencing homelessness, refugees • Pregnancy and maternity, socioeconomic factors, rural or remote localities, urban localities | 45 |
| Restructuring the care team (RSCT) | The addition of new members to an existing care team, the introduction of a new role to the team or the shifting of duties among the team. | • Minority ethnic or immigrant communities, indigenous communities, females, young people, older adults • Pregnancy and maternity, socioeconomic factors | 13 |
| Engaging the community (EC) | Involving community members or organisations in mental health support or education, to improve engagement. This is best done outside of the health care setting. | • Minority ethnic or immigrant communities, indigenous communities, religious communities, LGBTQ+ communities, females, young people, older adults, refugees • Pregnancy and maternity, socioeconomic factors, rural or remote localities, urban localities | 26 |
| Providing financial incentives or removing financial barriers (PFIP) | Offering free provisions or money, subsidised services or removing financial barriers to accessing care or treatment. | • Minority ethnic or immigrant communities, indigenous communities, females, males, young people • Socioeconomic factors, rural or remote localities, urban localities | 7 |
| Improving access to testing and screening (IATS) | Improves the accessibility of testing or screening by addressing logistical, social or financial barriers. | • Minority ethnic or immigrant communities • Socioeconomic factors, urban localities | 2 |
| Improving access to support, care and treatment for mental health problems (IASCT) | Addresses logistical barriers to accessing psychological therapies in order to reach a wider population or decrease wait-list durations. | • Minority ethnic or immigrant communities, indigenous communities, religious communities, females, males, young people, older adults, socioeconomic factors, rural or remote localities, urban localities | 8 |
| Enhancing language, literacy and communication (ELLS) | Improving language or communication skills in order to improve engagement or adherence to care. | • Minority ethnic or immigrant communities, people who have a sensory or physical impairment, older adults • Pregnancy and maternity, socioeconomic factors | 3 |
| Other—home-based care (OHBC) | Delivery of healthcare or support in the participant’s home. | • Minority ethnic or immigrant communities, young people • Pregnancy and maternity, socioeconomic factors | 5 |
| Other—culturally adapted interventions (OCA) | Tailored interventions which work within the cultural context of the recipient and take greater account of their cultural background and experiences. | • Minority ethnic or immigrant communities, indigenous communities, religious communities, LGBTQ+ communities, people who have a sensory or physical impairment, females, males, young people, older adults, refugees • Pregnancy and maternity, socioeconomic factors, rural or remote localities, urban localities | 26 |
| Other—technology (OT) | Providing information, skills-based training or therapeutic regimens delivered through the Internet, typically via mobile devices. | • Minority ethnic or immigrant communities, indigenous communities, young people, older adults • Pregnancy and maternity, socioeconomic factors, rural or remote localities | 6 |
| Other—community revitalisation (OCR) | Regeneration or renewal of deprived community areas or poorer socioeconomic localities. | • Minority ethnic or immigrant communities, young people • Socioeconomic factors, urban localities | 6 |
| Other—not otherwise specified (O-NOS) | Alternative strategies not otherwise specified. | • Socioeconomic factors, rural or remote localities | 1 |
CBT cognitive behavioural therapy, DET delivering education and training, EC engaging the community, ELLS enhancing language/literacy and communication, IASCT improving access to support care and treatment for mental health problems, IATS improving access to testing and screening, LGBTQ+ lesbian, gay, bisexual, transgender and other, OCA other—culturally adapted interventions, OCR other—community revitalisation, OHBC other—home-based care, O-NOS other—not otherwise specified, OT other—technology; PFIP providing financial incentives or removing financial barriers, PPS, providing psychological support, PRF providing reminders and feedback, RSCT restructuring the care team. Text in italics provides further detail about the intervention strategies, including examples where relevant.
aNumber of included studies by intervention for research question 1 and the populations or inequalities targeted. Some studies may be applied to multiple intervention types
Populations identified and number of included studies by characteristic across all research questions
| Characteristic | Number of studies | Characteristic sub-type | Number of studies |
|---|---|---|---|
| 1. Race | 49 | a) Minority ethnic and immigrants | 47 |
| b) Indigenous communities | 6 | ||
| 2. Religion | 2 | a) Religion | 2 |
| 3. Sexual orientation and gender identity | 4 | a) LGBTQ+ | 4 |
| 4. Disability | 7 | a) Physical or sensory impairment | 4 |
| b) Learning disability | 5 | ||
| 5. Sex | 12 | a) Female | 9 |
| b) Male | 4 | ||
| 6. Age | 56 | a) Young people | 49 |
| b) Older adult | 8 | ||
| 7. Pregnancy and maternity | 21 | a) Pregnancy and maternity (including perinatal and postnatal periods) | 21 |
| 8. Socioeconomic factors | 80 | a) Socioeconomic factors | 80 |
| 9. Location | 24 | a) Rural/remote | 16 |
| b) Urban | 9 | ||
| 10. Specific intersectional groups | 10 | a) Homeless people | 3 |
| b) Youth offenders | 1 | ||
| c) Refugees | 7 | ||
| 11. Other | 10 | a) Any other | 10 |
LGBTQI+ lesbian, gay, bisexual, transgender, queer and others
Countries in which primary studies included in the review were conducted, by research question
| Country | Number of studies |
|---|---|
| Research question 1—Effectiveness of interventions to address inequalities in mental health care | |
| USA | 34 |
| UK | 17 |
| Australia | 7 |
| Ireland | 6 |
| The Netherlands | 4 |
| Iran | 3 |
| India | 2 |
| Austria, Belgium, Canada, China, Colombia, France, Germany, Israel, Norway, Pakistan, Portugal, Spain | 1 study per country |
| Research question 2—Economic evaluations of interventions to address mental health inequalities | |
| Ireland | 2 |
| USA | 2 |
| UK | 1 |
| Research question 2—Barriers and facilitators to interventions to address mental health inequalities | |
| UK | 10 |
| USA | 8 |
| Australia | 7 |
| Canada | 2 |
| Chile and Colombia, Ethiopia, Ireland, Kenya, Sweden | 1 study per country |
Cost-effectiveness studies identified for research question 2
| Study ID | Intervention details | Intervention strategies employed |
|---|---|---|
| Gardner et al [ | Incredible Years parenting programme | Providing psychological support (PPS), delivering education and training (DET) |
| Grote et al. [ | MOMCare intervention | Providing reminders and feedback (PRF), providing psychological support (PPS), pestructuring the care team (RSCT), other—culturally adapted interventions (OCA) |
| McGilloway et al. [ | Incredible Years parenting programme | Providing psychological support (PPS), delivering education and training (DET) |
| O’Neil et al. [ | Incredible Years parenting programme | Providing psychological support (PPS), delivering education and training (DET) |
| Rhodes et al. [ | Chronic Care Initiative | Improving access to testing and screening (IATS), improving access to support, care and treatment for mental health problems (IASCT), restructuring the care team (RSCT) |
| Romeo et al. [ | Health check intervention | Improving access to testing and screening (IATS) |
DET delivering education and training, IASCT improving access to support care and treatment for mental health problems, IATS improving access to testing and screening, OCA other—culturally adapted interventions, PPS providing psychological support, PRF providing reminders and feedback, RSCT restructuring the care team
Types of barriers, populations at risk and facilitators as identified in the literature
| Types of barriers | Populations at risk of experiencing barrier type | Barriers identified in the literature | Facilitators identified in the literaturea |
|---|---|---|---|
| Limited treatment options and service limitations | Homeless people, pregnant women with low socioeconomic status | • Institutional challenges, such as time/length of session [ • Inexperienced or unhelpful staff [ • Lack of provision of home treatment [ • Lack of service coordination [ • Limited treatment options [ • Long waiting lists and availability of treatment [ • Lack of adequate discharge planning [ • The use of specialist services as the ‘default’ [ • Perceived or actual availability of resources [ • Inappropriate or limited booking systems [ • Appointments scheduled during working hours [ • Perceived difficulties in administering treatment [ | • Diversity of treatment options (e.g. outreach, home-based care, help over the phone, street clinics) [ • Collaborative agency approach [ |
| Perceived or real discrimination (from staff, family or the community) | Aboriginal communities, ethnic minorities | • Clinician bias [ • Discrimination towards patients from staff [ • Racism [ • Failure to acknowledge non-mainstream concepts of health [ • Stigma and shame around help-seeking [ • Sociocultural barriers that may reduce motivation for treatment [ • Fear of harassment [ • Attitudinal factors [ • Cultural naivety, insensitivity and discrimination [ • Existing social and cultural values or norms concerning gender and traditional family structure [ | • Staff trained in providing culturally appropriate alternatives to mainstream care [ |
| Access to care (including physical access, such as transportation) | People with disabilities (learning or physical), homeless people, people with co-occurring substance use problems, people with low socioeconomic status, people living in rural or remote locations, young people with low socioeconomic status | • Difficulties getting an appointment and contacting health providers [ • Transport and the physical environment of treatment, access to buildings and facilities [ • Inappropriate referrals and referral rejections [ • Geographical location of treatment provision [ • Need for registration at GP practice in order to be treated [ • Inappropriate or limited booking systems [ | • Integration of different services [ • Reducing transportation barriers through use of mobile health interventions [ • Provision of services within geographical reach [ • Services provided in close proximity to where people live [ • Support for people’s ability to access treatment considering their working conditions [ • Involvement of family in the person’s care [ • GP as the first point of contact and with a link to external agencies, collaboration between GPs and other healthcare workers [ • Convenient location and provision of outreach [ • Internet-based interventions, as these offer flexibility regarding time and location, low effort, accessibility and (sometimes) anonymity [ • Widened programme/intervention eligibility (e.g. allowing women who already have a child to participate in the programme) [ |
| Financial constraints | Homeless people, people with low socioeconomic status, ethnic minorities | • Financial access to medication [ • Cost of care and treatment [ • Inadequate income support [ • Affordability of technological/digital means as requirements for some treatments (e.g. mobile phones, mobile data 3G/4G) [ • Lack of health insurance [ • Lack of childcare provisions [ • Reduction in spending on health and social care [ • Housing insecurity [ | • Removal of financial barriers to prescription medication [ • Reduce the financial costs associated with data usage by consolidating content onto health apps and minimising the need for online linkages [ • Provision of free health services and treatment [ • Provision of affordable services within reach of, and financial support for, families with low socioeconomic status [ • Subsidies for treatment-related expenses [ |
| Communication issues | Ethnic minorities, immigrants and migrants, people with disabilities (learning or physical) | • Availability of accessible information [ • Difficulty contacting practitioners [ • Perceived ineligibility for treatment based on communication difficulties [ • Language barriers/lack of translators [ • Poor literacy [ • Problems in communicating, articulating or negotiating problems and needs [ | • Define and provide specific staff training on communication strategies focused on health needs of the identified population (e.g. migrants) [ • Meeting the needs of people with low literacy using health apps that provide audio recordings, audio-visual displays and diagrams as well as written information [ |
| Awareness of available services | Older people, ethnic minorities | • Reliance on informal supports and poor knowledge about services available [ • Ignorance about services [ • Lack of understanding from staff about types of care available and who these are designed for [ • Lack of education about available services and what treatment entails [ • Lack of knowledge about the healthcare system and about informal networks of healthcare professionals [ | • Making campaigns more relevant and effective, use of simpler, more positive language, use of less individualistic language (e.g. ‘me’), respecting different beliefs [ • Community engagement [ • Primary care professionals to map community activities [ • Engaging the local targeted community (including members of the religious community, e.g. the local rabbi )[ |
| Trust in services or ‘the system’ | People living in rural or remote locations, aboriginal communities, ethnic minorities | • Patient cultural views and/or perceptions of the clinician’s culture [ • Anxiety and/or lack of confidence in asking for help [ • Fear of medical services [ • Confidentiality concerns [ • Negative past experiences with services [ • Past experience of punitive or forced mental health care making patients unwilling to take up treatment [ • Concerns about privacy [ • Decision to seek help from a traditional or religious healer [ • Fear of ‘asylums’ [ • Distrust of social workers and doctors, fear of being asked too many questions, lack of trust in measures to protect confidentiality [ | • Facilitation of opportunities for disclosure through tele-mental health methods [ • Building trusting relationships [ |
| Appropriateness of available services | Aboriginal communities, ethnic minorities, immigrants, children and young people | • Patient cultural views [ • Limited culturally appropriate services [ • Diagnostic overshadowing [ • Complex comorbidity [ • Technical ability [ • Inconsistent methods and application of treatment (e.g. for trans-identifying patients) [ • Lack of GP training in mental health and/or substance use issues [ • Failure to provide age-appropriate environments [ | • Provision of culturally appropriate alternatives to mainstream care [ • Cultural and linguistic competence of staff; cultural reference points [ • Developing services that are acceptable to people at risk of disadvantage, such as older people and those from ethnic minorities [ • Making services ‘holistic’ and ensuring ‘cultural safety’ of primary healthcare services [ • Providing access to male and female therapists, provision of choice in care and maintaining confidentiality [ |
GP general practitioner
aWe have included the various facilitators reported across studies to answer research question 3