Literature DB >> 32434225

From Commercialization to Accountability: Responsible Health Data Collection, Use, and Disclosure for the 21st Century.

Deven McGraw1, Carolyn Petersen2.   

Abstract

Year:  2020        PMID: 32434225      PMCID: PMC7239667          DOI: 10.1055/s-0040-1710392

Source DB:  PubMed          Journal:  Appl Clin Inform        ISSN: 1869-0327            Impact factor:   2.342


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  19 in total

1.  Privacy as an enabler, not an impediment: building trust into health information exchange.

Authors:  Deven McGraw; James X Dempsey; Leslie Harris; Janlori Goldman
Journal:  Health Aff (Millwood)       Date:  2009 Mar-Apr       Impact factor: 6.301

2.  A Belmont Report for Health Data.

Authors:  Efthimios Parasidis; Elizabeth Pike; Deven McGraw
Journal:  N Engl J Med       Date:  2019-04-18       Impact factor: 91.245

3.  Barriers to Pediatric Health Information Exchange.

Authors:  Christoph U Lehmann; Susan Kressly; Winston W Chip Hart; Kevin B Johnson; Mark E Frisse
Journal:  Pediatrics       Date:  2017-05       Impact factor: 7.124

4.  Health data cooperatives - citizen empowerment.

Authors:  E Hafen; D Kossmann; A Brand
Journal:  Methods Inf Med       Date:  2014-02-11       Impact factor: 2.176

5.  Consumer-Facing Data, Information, And Tools: Self-Management Of Health In The Digital Age.

Authors:  Karandeep Singh; Sean R Meyer; John M Westfall
Journal:  Health Aff (Millwood)       Date:  2019-03       Impact factor: 6.301

Review 6.  The commercialization of university-based research: Balancing risks and benefits.

Authors:  Timothy Caulfield; Ubaka Ogbogu
Journal:  BMC Med Ethics       Date:  2015-10-14       Impact factor: 2.652

7.  Research data management in health and biomedical citizen science: practices and prospects.

Authors:  Ann Borda; Kathleen Gray; Yuqing Fu
Journal:  JAMIA Open       Date:  2019-12-09

8.  Data sharing practices of medicines related apps and the mobile ecosystem: traffic, content, and network analysis.

Authors:  Quinn Grundy; Kellia Chiu; Fabian Held; Andrea Continella; Lisa Bero; Ralph Holz
Journal:  BMJ       Date:  2019-03-20

9.  Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation.

Authors:  Kit Huckvale; John Torous; Mark E Larsen
Journal:  JAMA Netw Open       Date:  2019-04-05

10.  Patient informaticians: Turning patient voice into patient action.

Authors:  Carolyn Petersen
Journal:  JAMIA Open       Date:  2018-05-23
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  1 in total

1.  Up-to-the-Minute Privacy Policies via Gossips in Participatory Epidemiological Studies.

Authors:  Aakash Sharma; Thomas Bye Nilsen; Katja Pauline Czerwinska; Daria Onitiu; Lars Brenna; Dag Johansen; Håvard D Johansen
Journal:  Front Big Data       Date:  2021-05-13
  1 in total

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