Literature DB >> 19275998

Privacy as an enabler, not an impediment: building trust into health information exchange.

Deven McGraw1, James X Dempsey, Leslie Harris, Janlori Goldman.   

Abstract

Building privacy and security protections into health information technology systems will bolster trust in such systems and promote their adoption. The privacy issue, too long seen as a barrier to electronic health information exchange, can be resolved through a comprehensive framework that implements core privacy principles, adopts trusted network design characteristics, and establishes oversight and accountability mechanisms. The public policy challenges of implementing this framework in a complex and evolving environment will require improvements to existing law, new rules for entities outside the traditional health care sector, a more nuanced approach to the role of consent, and stronger enforcement mechanisms.

Mesh:

Year:  2009        PMID: 19275998     DOI: 10.1377/hlthaff.28.2.416

Source DB:  PubMed          Journal:  Health Aff (Millwood)        ISSN: 0278-2715            Impact factor:   6.301


  29 in total

1.  Impact of health disclosure laws on health information exchanges.

Authors:  Idris Adjerid; Rema Padman
Journal:  AMIA Annu Symp Proc       Date:  2011-10-22

2.  Consumer support for health information exchange and personal health records: a regional health information organization survey.

Authors:  Vaishali N Patel; Rina V Dhopeshwarkar; Alison Edwards; Yolanda Barrón; Jeffrey Sparenborg; Rainu Kaushal
Journal:  J Med Syst       Date:  2010-07-29       Impact factor: 4.460

3.  Improving Individual Acceptance of Health Clouds through Confidentiality Assurance.

Authors:  Tatiana Ermakova; Benjamin Fabian; Rüdiger Zarnekow
Journal:  Appl Clin Inform       Date:  2016-10-26       Impact factor: 2.342

4.  From Commercialization to Accountability: Responsible Health Data Collection, Use, and Disclosure for the 21st Century.

Authors:  Deven McGraw; Carolyn Petersen
Journal:  Appl Clin Inform       Date:  2020-05-20       Impact factor: 2.342

5.  Privacy and confidentiality in pragmatic clinical trials.

Authors:  Deven McGraw; Sarah M Greene; Caroline S Miner; Karen L Staman; Mary Jane Welch; Alan Rubel
Journal:  Clin Trials       Date:  2015-09-15       Impact factor: 2.486

6.  The differing privacy concerns regarding exchanging electronic medical records of internet users in Taiwan.

Authors:  Hsin-Ginn Hwang; Hwai-En Han; Kuang-Ming Kuo; Chung-Feng Liu
Journal:  J Med Syst       Date:  2012-04-20       Impact factor: 4.460

7.  Partnership disengagement from primary community care networks (PCCNs): a qualitative study for a national demonstration project.

Authors:  Chia-Yi Liau; Cheng-Chieh Lin; Yung-Kai Lin; Blossom Yen-Ju Lin
Journal:  BMC Health Serv Res       Date:  2010-04-02       Impact factor: 2.655

8.  Patient-controlled sharing of medical imaging data across unaffiliated healthcare organizations.

Authors:  Yaorong Ge; David K Ahn; Bhagyashree Unde; H Donald Gage; J Jeffrey Carr
Journal:  J Am Med Inform Assoc       Date:  2012-08-11       Impact factor: 4.497

9.  Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting.

Authors:  George Hripcsak; Meryl Bloomrosen; Patti FlatelyBrennan; Christopher G Chute; Jim Cimino; Don E Detmer; Margo Edmunds; Peter J Embi; Melissa M Goldstein; William Ed Hammond; Gail M Keenan; Steve Labkoff; Shawn Murphy; Charlie Safran; Stuart Speedie; Howard Strasberg; Freda Temple; Adam B Wilcox
Journal:  J Am Med Inform Assoc       Date:  2013-10-29       Impact factor: 4.497

10.  The authors reply.

Authors:  Lora A Reineck; Jeremy M Kahn
Journal:  Crit Care Med       Date:  2014-10       Impact factor: 7.598

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