Literature DB >> 32431431

Death by Neurological Criteria: Caring for Families amid Tragedy.

Devan Stahl1, Tom Tomlinson2.   

Abstract

When a patient is declared dead using neurological criteria, intense emotional and ethical challenges can follow. In our experience as clinical ethicists, consults surrounding the declaration of "brain death" can be some of the most difficult. In what follows, we describe some best practices related to death by neurological criteria (DNC). We begin with important policies hospitals need to have in place to ensure that death is properly understood by all members of the clinical team and place some limits on the authority of families to demand continued "treatment" for deceased patients. Next, we explain how best to prepare families for the diagnosis. We then discuss how to talk to families when breaking the news concerning DNC. Finally, we describe how to approach a family that is resisting the determination of death.
SUMMARY: This article advises clinicians on how to talk to families about brain death. © Catholic Medical Association 2019.

Entities:  

Keywords:  Bioethics; Brain death; End-of-life care; Futility policies; Medical decision-making

Year:  2019        PMID: 32431431      PMCID: PMC6880066          DOI: 10.1177/0024363919874957

Source DB:  PubMed          Journal:  Linacre Q        ISSN: 0024-3639


  16 in total

1.  Presence of relatives during testing for brain stem death: questionnaire study.

Authors:  J Pugh; L Clarke; J Gray; J Haveman; P Lawler; S Bonner
Journal:  BMJ       Date:  2000-12-16

2.  Experiences of families when a relative is diagnosed brain stem dead: understanding of death, observation of brain stem death testing and attitudes to organ donation.

Authors:  J A Ormrod; T Ryder; R J Chadwick; S M Bonner
Journal:  Anaesthesia       Date:  2005-10       Impact factor: 6.955

3.  Breaking bad news: consultants' experience, previous education and views on educational format and timing.

Authors:  Mandy M Barnett; Joanne D Fisher; Heather Cooke; Patrick R James; Jeremy Dale
Journal:  Med Educ       Date:  2007-08-22       Impact factor: 6.251

4.  A national multicenter trial on family presence during brain death determination: the FABRA study.

Authors:  Erwin J O Kompanje; Yorick J de Groot; Jan Bakker; Jan N M Ijzermans
Journal:  Neurocrit Care       Date:  2012-10       Impact factor: 3.210

5.  Religious objections to brain death.

Authors:  Eran Segal
Journal:  J Crit Care       Date:  2014-06-29       Impact factor: 3.425

6.  "Brain death," "dead," and parental denial - the case of Jahi McMath.

Authors:  John J Paris; Brian M Cummings; M Patrick Moore; M P Moore
Journal:  Camb Q Healthc Ethics       Date:  2014-07-17       Impact factor: 1.284

7.  Improving the family experience through presence at brain death evaluation*.

Authors:  Judy E Davidson
Journal:  Crit Care Med       Date:  2014-04       Impact factor: 7.598

8.  How to Communicate Clearly about Brain Death and First-Person Consent to Donate.

Authors:  Stuart J Youngner
Journal:  AMA J Ethics       Date:  2016-02-01

9.  Family presence during brain death evaluation: a randomized controlled trial*.

Authors:  Isaac Tawil; Lawrence H Brown; David Comfort; Cameron S Crandall; Sonlee D West; Amber D Rollstin; Todd S Dettmer; Marc D Malkoff; Jonathan Marinaro
Journal:  Crit Care Med       Date:  2014-04       Impact factor: 7.598

10.  The end-of-life care experiences of relatives of brain dead intensive care patients.

Authors:  Mari Lloyd-Williams; Juliet Morton; Sarah Peters
Journal:  J Pain Symptom Manage       Date:  2008-09-11       Impact factor: 3.612

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