Literature DB >> 32364474

Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.

Stephanie A Kraft1,2, Devan M Duenas1, Hannah Lewis1, Seema K Shah3,4.   

Abstract

Entities:  

Mesh：

Year:  2020        PMID： 32364474      PMCID： PMC7241299          DOI： 10.1080/15265161.2020.1745936

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  10 in total

1.  What makes clinical research ethical?

Authors:  E J Emanuel; D Wendler; C Grady
Journal:  JAMA       Date:  2000 May 24-31       Impact factor: 56.272

2.  The invisible hand in clinical research: the study coordinator's critical role in human subjects protection.

Authors:  Arlene M Davis; Sara Chandros Hull; Christine Grady; Benjamin S Wilfond; Gail E Henderson
Journal:  J Law Med Ethics       Date:  2002       Impact factor: 1.718

Review 3.  Interventions to improve research participants' understanding in informed consent for research: a systematic review.

Authors:  James Flory; Ezekiel Emanuel
Journal:  JAMA       Date:  2004-10-06       Impact factor: 56.272

4.  How Do We Really Communicate? Challenging the Assumptions behind Informed Consent Interventions.

Authors:  Stephanie Solomon Cargill
Journal:  Ethics Hum Res       Date:  2019-07

5.  Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.

Authors:  Neal W Dickert; Amanda Michelle Bernard; JoAnne M Brabson; Rodney J Hunter; Regina McLemore; Andrea R Mitchell; Stephen Palmer; Barbara Reed; Michele Riedford; Raymond T Simpson; Candace D Speight; Tracie Steadman; Rebecca D Pentz
Journal:  Am J Bioeth       Date:  2020-06       Impact factor: 11.229

6.  Online Education and e-Consent for GeneScreen, a Preventive Genomic Screening Study.

Authors:  R Jean Cadigan; Rita Butterfield; Christine Rini; Margaret Waltz; Kristine J Kuczynski; Kristin Muessig; Katrina A B Goddard; Gail E Henderson
Journal:  Public Health Genomics       Date:  2017-10-26       Impact factor: 2.000

7.  Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.

Authors:  Maureen Kelley; Cyan James; Stephanie Alessi Kraft; Diane Korngiebel; Isabelle Wijangco; Emily Rosenthal; Steven Joffe; Mildred K Cho; Benjamin Wilfond; Sandra Soo-Jin Lee
Journal:  Am J Bioeth       Date:  2015       Impact factor: 11.229

8.  Understanding variations in patient screening and recruitment in a multicentre pilot randomised controlled trial: a vignette-based study.

Authors:  Paul Hilton; Brian S Buckley; Elaine McColl; Denise Howel; Douglas G Tincello; Catherine Brennand
Journal:  Trials       Date:  2016-10-26       Impact factor: 2.279

9.  A randomized trial comparing concise and standard consent forms in the START trial.

Authors:  Christine Grady; Giota Touloumi; A Sarah Walker; Mary Smolskis; Shweta Sharma; Abdel G Babiker; Nikos Pantazis; Jorge Tavel; Eric Florence; Adriana Sanchez; Fleur Hudson; Antonios Papadopoulos; Ezekiel Emanuel; Megan Clewett; David Munroe; Eileen Denning
Journal:  PLoS One       Date:  2017-04-26       Impact factor: 3.240

Review 10.  Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials.

Authors:  Adam Nishimura; Jantey Carey; Patricia J Erwin; Jon C Tilburt; M Hassan Murad; Jennifer B McCormick
Journal:  BMC Med Ethics       Date:  2013-07-23       Impact factor: 2.652
  10 in total
  2 in total

1.  Motivators and barriers towards clinical research participation: A population-based survey from an Arab MENA country.

Authors:  Kamal M Al-Shami; Wesam S Ahmed; Karem H Alzoubi
Journal:  PLoS One       Date:  2022-06-24       Impact factor: 3.752

2.  Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.

Authors:  Stephanie A Kraft; Erin Rothwell; Seema K Shah; Devan M Duenas; Hannah Lewis; Kristin Muessig; Douglas J Opel; Katrina A B Goddard; Benjamin S Wilfond
Journal:  J Med Ethics       Date:  2020-10-06       Impact factor: 2.903
  2 in total

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