Literature DB >> 32308877

Parent Perspectives on Pediatric Inpatient OpenNotes.

Catherine Arnott Smith1, Ryan J Coller2, Shannon M Dean2,3, Daniel Sklansky2, Peter L T Hoonakker4, Windy Smith3, Anne S Thurber2, Brad D Ehlenfeldt3, Michelle M Kelly2,4.   

Abstract

INTRODUCTION: 169 U.S. health systems now engage in OpenNotes: a movement to share clinical notes with patients. Few studies have focused on releasing notes during hospitalization, pediatrics, or parents/caregiver perspectives.
METHODS: A focus group was conducted with eight parents with experience caring for a hospitalized child at a Midwest children's hospital. In the 2-hour session, parents were asked about their perspectives of the idea of sharing inpatient doctors' daily notes with parents during their child's hospitalization. Qualitative analysis was conducted to elicit themes related to the potential benefits and challenges of sharing inpatient notes.
RESULTS: The most mentioned benefits included notes providing information as a reference for improved family education/understanding, communication/continuity, and advocacy/empowerment. Challenges were primarily related to note content, impaired communication and negative impact on families.
CONCLUSION: Participants identified multiple potential benefits of and challenges to sharing notes with parents during their child's hospitalization but also acknowledged the impact on healthcare professionals who work alongside them. ©2019 AMIA - All rights reserved.

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Mesh：

Year:  2020        PMID： 32308877      PMCID： PMC7153057     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN： 1559-4076


  25 in total

1.  OpenNotes: Toward a Participatory Pediatric Health System.

Authors:  Chethan Sarabu; Natalie Pageler; Fabienne Bourgeois
Journal:  Pediatrics       Date:  2018-10       Impact factor: 7.124

2.  Student-accessible healthcare records: A mixed-methods study of college student and provider.

Authors:  Lori Keough; Julie Wright; Bonnie Watson; Tanya Nixon-Silberg; Suzanne Leveille; Patricia A Halon
Journal:  Health Informatics J       Date:  2016-11-15       Impact factor: 2.681

3.  Inviting patients to read their doctors' notes: a quasi-experimental study and a look ahead.

Authors:  Tom Delbanco; Jan Walker; Sigall K Bell; Jonathan D Darer; Joann G Elmore; Nadine Farag; Henry J Feldman; Roanne Mejilla; Long Ngo; James D Ralston; Stephen E Ross; Neha Trivedi; Elisabeth Vodicka; Suzanne G Leveille
Journal:  Ann Intern Med       Date:  2012-10-02       Impact factor: 25.391

4.  Inviting patients and care partners to read doctors' notes: OpenNotes and shared access to electronic medical records.

Authors:  Jennifer L Wolff; Jonathan D Darer; Andrea Berger; Deserae Clarke; Jamie A Green; Rebecca A Stametz; Tom Delbanco; Jan Walker
Journal:  J Am Med Inform Assoc       Date:  2017-04-01       Impact factor: 4.497

5.  Connecting Patients and Clinicians: The Anticipated Effects of Open Notes on Patient Safety and Quality of Care.

Authors:  Sigall K Bell; Patricia H Folcarelli; Melissa K Anselmo; Bradley H Crotty; Lydia A Flier; Jan Walker
Journal:  Jt Comm J Qual Patient Saf       Date:  2015-08

6.  Medical records: practicalities and principles of patient possession.

Authors:  M L Gilhooly; S M McGhee
Journal:  J Med Ethics       Date:  1991-09       Impact factor: 2.903

7.  SEIPS 2.0: a human factors framework for studying and improving the work of healthcare professionals and patients.

Authors:  Richard J Holden; Pascale Carayon; Ayse P Gurses; Peter Hoonakker; Ann Schoofs Hundt; A Ant Ozok; A Joy Rivera-Rodriguez
Journal:  Ergonomics       Date:  2013-10-03       Impact factor: 2.778

8.  Tackling Ambulatory Safety Risks Through Patient Engagement: What 10,000 Patients and Families Say About Safety-Related Knowledge, Behaviors, and Attitudes After Reading Visit Notes.

Authors:  Sigall K Bell; Patricia Folcarelli; Alan Fossa; Macda Gerard; Marvin Harper; Suzanne Leveille; Caroline Moore; Kenneth E Sands; Barbara Sarnoff Lee; Jan Walker; Fabienne Bourgeois
Journal:  J Patient Saf       Date:  2021-12-01       Impact factor: 2.844

9.  Should patients read their own medical records?

Authors:  G Chamberlain
Journal:  J R Soc Med       Date:  1987-09       Impact factor: 18.000

10.  Engaging patients through open notes: an evaluation using mixed methods.

Authors:  Tobias Esch; Roanne Mejilla; Melissa Anselmo; Beatrice Podtschaske; Tom Delbanco; Jan Walker
Journal:  BMJ Open       Date:  2016-01-29       Impact factor: 2.692
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  4 in total

1.  Lessons Learned from OpenNotes Learning Mode and Subsequent Implementation across a Pediatric Health System.

Authors:  Avinash Murugan; Holly Gooding; Jordan Greenbaum; Jeanne Boudreaux; Reena Blanco; Arin Swerlick; Cary Sauer; Steven Liu; Amina Bhatia; Alexis Carter; Meredith M Burris; Lauren Becker; Lashandra Abney; Sharon O'Brien; Shane Webb; Melissa Popkin; Herb Williams; Desiree Jennings; Evan W Orenstein
Journal:  Appl Clin Inform       Date:  2022-01-26       Impact factor: 2.342

2.  In Anticipation of Sharing Pediatric Inpatient Notes: Focus Group Study With Stakeholders.

Authors:  Catherine Arnott Smith; Michelle M Kelly
Journal:  J Particip Med       Date:  2022-05-30

3.  Stakeholder Perspectives in Anticipation of Sharing Physicians' Notes With Parents of Hospitalized Children.

Authors:  Michelle M Kelly; Catherine Arnott Smith; Peter L T Hoonakker; Carrie L Nacht; Shannon M Dean; Daniel J Sklansky; Windy Smith; Megan A Moreno; Anne S Thurber; Ryan J Coller
Journal:  Acad Pediatr       Date:  2020-11-28       Impact factor: 3.107

4.  Barriers and Facilitators to the Implementation of Family-Centered Technology in Complex Care: Feasibility Study.

Authors:  Jody L Lin; Bernd Huber; Ofra Amir; Sebastian Gehrmann; Kimberly S Ramirez; Kimberly M Ochoa; Steven M Asch; Krzysztof Z Gajos; Barbara J Grosz; Lee M Sanders
Journal:  J Med Internet Res       Date:  2022-08-23       Impact factor: 7.076
  4 in total

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