Literature DB >> 32297678

The Use of Telehealth to Enhance Care in ALS and other Neuromuscular Disorders.

Anne Haulman1, Andrew Geronimo2, Amit Chahwala3, Zachary Simmons1.   

Abstract

Telehealth has the potential to improve the efficiency of healthcare while reducing the burden on patients and caregivers. Encounters can be synchronous or asynchronous. When used for care of those with amyotrophic lateral sclerosis (ALS) by individual health care providers or by a multidisciplinary team, synchronous telehealth is feasible, acceptable, may produce outcomes comparable to those of in-person care, and is cost effective. Individuals with ALS who use telehealth tend to have lower physical and respiratory function and to live farther from an ALS clinic than those who exclusively attend in-person clinic visits. Asynchronous telehealth can be used as a substitute full multidisciplinary visits, or for remote monitoring of pulmonary function, gait/falls, and speech. Barriers to implementing telehealth on a wider scale include disparities in access to technology and challenges surrounding medical licensure and billing, but these are being addressed.
© 2020 Wiley Periodicals, Inc.

Entities:  

Keywords:  ALS; mHealth; mobile health; telehealth; telemedicine

Year:  2020        PMID: 32297678     DOI: 10.1002/mus.26838

Source DB:  PubMed          Journal:  Muscle Nerve        ISSN: 0148-639X            Impact factor:   3.217


  9 in total

1.  A cross-sectional evaluation of acceptability of an online palliative rehabilitation program for family caregivers of people with amyotrophic lateral sclerosis and cognitive and behavioral impairments.

Authors:  Lene Klem Olesen; Karen la Cour; Heidi With; Annette Faber Mahoney; Charlotte Handberg
Journal:  BMC Health Serv Res       Date:  2022-05-24       Impact factor: 2.908

2.  Telemedicine visits in myasthenia gravis: Expert guidance and the Myasthenia Gravis Core Exam (MG-CE).

Authors:  Srikanth Muppidi; Richard J Nowak; Amanda C Guidon; Jeffrey T Guptill; Michael K Hehir; Katherine Ruzhansky; Leeann B Burton; David Post; Gary Cutter; Robin Conwit; Nicte I Mejia; Henry J Kaminski; James F Howard
Journal:  Muscle Nerve       Date:  2021-07-07       Impact factor: 3.852

Review 3.  New technologies and Amyotrophic Lateral Sclerosis - Which step forward rushed by the COVID-19 pandemic?

Authors:  Susana Pinto; Stefano Quintarelli; Vincenzo Silani
Journal:  J Neurol Sci       Date:  2020-08-05       Impact factor: 3.181

4.  Why and how the work of Motor Neurone Disease Associations matters before and during bereavement: a consumer perspective.

Authors:  Samar M Aoun; Paul A Cafarella; Anne Hogden; Geoff Thomas; Leanne Jiang; Robert Edis
Journal:  Palliat Care Soc Pract       Date:  2021-04-22

5.  Reflections of family caregivers and health professionals on the everyday challenges of caring for persons with amyotrophic lateral sclerosis and cognitive impairments: a qualitative study.

Authors:  Lene Klem Olesen; Karen la Cour; Heidi With; Charlotte Handberg
Journal:  Palliat Care Soc Pract       Date:  2022-02-15

6.  Delivering multidisciplinary neuromuscular care for children via telehealth.

Authors:  Kate Carroll; Justine Adams; Katy de Valle; Robin Forbes; Rachel A Kennedy; Andrew J Kornberg; Moya Vandeleur; Daniella Villano; Ian R Woodcock; Eppie M Yiu; Monique M Ryan; Zoe Davidson
Journal:  Muscle Nerve       Date:  2022-04-29       Impact factor: 3.852

7.  Amyotrophic lateral sclerosis care and research in the United States during the COVID-19 pandemic: Challenges and opportunities.

Authors:  Jinsy A Andrews; James D Berry; Robert H Baloh; Nathan Carberry; Merit E Cudkowicz; Brixhilda Dedi; Jonathan Glass; Nicholas J Maragakis; Timothy M Miller; Sabrina Paganoni; Jeffrey D Rothstein; Jeremy M Shefner; Zachary Simmons; Michael D Weiss; Richard S Bedlack
Journal:  Muscle Nerve       Date:  2020-06-05       Impact factor: 3.852

Review 8.  Support Needs and Interventions for Family Caregivers of Patients with Amyotrophic Lateral Sclerosis (ALS): A Narrative Review with Report of Telemedicine Experiences at the Time of COVID-19 Pandemic.

Authors:  Giulia D'Alvano; Daniela Buonanno; Carla Passaniti; Manuela De Stefano; Luigi Lavorgna; Gioacchino Tedeschi; Mattia Siciliano; Francesca Trojsi
Journal:  Brain Sci       Date:  2021-12-30

Review 9.  Telemedicine in the management of patients with chronic respiratory failure.

Authors:  Neeraj M Shah; Georgios Kaltsakas
Journal:  Breathe (Sheff)       Date:  2021-03
  9 in total

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