Literature DB >> 32267314

Creation and Implementation of a Prospective and Multicentric Database of Patients with Acute Myocardial Infarction: RIAM.

Jacqueline Vaz1, Anibal Pereira Abelin1,2,3, Marcia Moura Schmidt1, Pedro Piccaro de Oliveira1, Carlos A M Gottschall1, Clarissa Garcia Rodrigues1, Alexandre Schaan de Quadros1.   

Abstract

BACKGROUND: Multicenter registries representing the real world can be a significant source of information, but few studies exist describing the methodology to implement these tools.
OBJECTIVE: To describe the process of implementing a database of ST-segment elevation acute myocardial infarction (STEMI) at a reference hospital, and the application of this process to other centers by means of an online platform.
METHODS: In 2009, our institution implemented an Registry of Acute Myocardial Infarction (RIAM), with the prospective and consecutive inclusion of every patient admitted to the institution who received a diagnosis of STEMI. From March 2014 to April 2016, the registries were uploaded to a web-based system using the REDCap software and the registry was expanded to other centers. Upon subscription, the REDCap platform is a noncommercial software made available by Vanderbilt University to institutions interested in research.
RESULTS: The following steps were taken to improve and expand the registry: 1. Standardization of variables; 2. Implementation of institutional REDCap (Research Electronic Data Capture); 3. Development of data collection forms (Case Report Form - CRF); 4. Expansion of registry to other reference centers using the REDCap software; 5. Training of teams and participating centers following an SOP (Standard Operating Procedure).
CONCLUSION: The description of the methodology used to implement and expand the RIAM may help other centers and researchers to conduct similar studies, share information between institutions, develop new health technologies, and assist public policies regarding cardiovascular diseases. (Arq Bras Cardiol. 2020; 114(3):446-455).

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Year:  2020        PMID: 32267314      PMCID: PMC7792739          DOI: 10.36660/abc.20190036

Source DB:  PubMed          Journal:  Arq Bras Cardiol        ISSN: 0066-782X            Impact factor:   2.000


  16 in total

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2.  Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

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5.  Rationality and methods: registry of clinical practice in high-risk cardiovascular patients.

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Review 7.  Trends in U.S. Cardiovascular Care: 2016 Report From 4 ACC National Cardiovascular Data Registries.

Authors:  Frederick A Masoudi; Angelo Ponirakis; James A de Lemos; James G Jollis; Mark Kremers; John C Messenger; John W M Moore; Issam Moussa; William J Oetgen; Paul D Varosy; Robert N Vincent; Jessica Wei; Jeptha P Curtis; Matthew T Roe; John A Spertus
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8.  Accuracy of dedicated risk scores in patients undergoing primary percutaneous coronary intervention in daily clinical practice.

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Review 9.  Standardized cardiovascular data for clinical research, registries, and patient care: a report from the Data Standards Workgroup of the National Cardiovascular Research Infrastructure project.

Authors:  H Vernon Anderson; William S Weintraub; Martha J Radford; Mark S Kremers; Matthew T Roe; Richard E Shaw; Dana M Pinchotti; James E Tcheng
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10.  I Brazilian Registry of Heart Failure - Clinical Aspects, Care Quality and Hospitalization Outcomes.

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  3 in total

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2.  National Registry of Acute Coronary Syndrome in Paraguay (RENASCA-PY).

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Journal:  Arch Cardiol Mex       Date:  2022

3.  Short Editorial: "Creation and Implementation of a Prospective Multicenter Registry of Acute Myocardial Infarction: RIAM".

Authors:  José Mariani Junior
Journal:  Arq Bras Cardiol       Date:  2020 May-Jun       Impact factor: 2.000

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