Stirling Bryan1, Laurie J Goldsmith2, Nitya Suryaprakash2, Richard Sawatzky2, Marilyn Mulldoon2, Moira Le Mercier2, David Moorthy2, Rajiv Gandhi2, Satwinder Kaur Bains2, Linda C Li2, Mary Doyle-Waters2, Sean Brown2. 1. School of Population and Public Health (Bryan), University of British Columbia, Vancouver, BC; Faculty of Health Sciences (Goldsmith), Simon Fraser University, Burnaby, BC; GoldQual Consulting (Goldsmith), Toronto, Ont.; Centre for Clinical Epidemiology & Evaluation (Bryan, Suryaprakash, Doyle-Waters), Vancouver Coastal Health Research Institute, Vancouver, BC; Department of Nursing (Sawatzky), Trinity Western University, Langley, BC; patient partners (Mulldoon, Le Mercier, Moorthy), BC; Department of Surgery (Gandhi), University of Toronto, Toronto, Ont.; South Asian Studies Institute (Bains), University of the Fraser Valley, Abbotsford, BC; Department of Physical Therapy (Li), University of British Columbia, Vancouver, BC; Arthritis Research Canada (Li), Richmond, BC; Fraser Health (Brown), Surrey, BC stirling.bryan@ubc.ca. 2. School of Population and Public Health (Bryan), University of British Columbia, Vancouver, BC; Faculty of Health Sciences (Goldsmith), Simon Fraser University, Burnaby, BC; GoldQual Consulting (Goldsmith), Toronto, Ont.; Centre for Clinical Epidemiology & Evaluation (Bryan, Suryaprakash, Doyle-Waters), Vancouver Coastal Health Research Institute, Vancouver, BC; Department of Nursing (Sawatzky), Trinity Western University, Langley, BC; patient partners (Mulldoon, Le Mercier, Moorthy), BC; Department of Surgery (Gandhi), University of Toronto, Toronto, Ont.; South Asian Studies Institute (Bains), University of the Fraser Valley, Abbotsford, BC; Department of Physical Therapy (Li), University of British Columbia, Vancouver, BC; Arthritis Research Canada (Li), Richmond, BC; Fraser Health (Brown), Surrey, BC.
Abstract
BACKGROUND: Up to 1 in 5 patients who undergo total knee arthroplasty (TKA) express dissatisfaction with their surgery. Our goal was to understand the experiences of patients of South Asian origin who undergo TKA and to identify a research agenda for this patient population. METHODS: We undertook a modified Delphi study in British Columbia to generate and prioritize potential research topics. An initial list of topics was generated using 3 focus groups with patients of South Asian origin who underwent TKA and their caregivers. Focus group sessions were audiotaped and transcribed, and the data were analyzed using thematic analysis. The resulting Delphi question-naire was administered over 2 rounds to patients, caregivers and health professionals. The second-round questionnaire included only topics that were strongly supported in the first round. A patient-oriented approach was adopted, with 3 patient partners as full research team members, who contributed to scoping, design, data collection, analysis and interpretation. RESULTS: Twenty-one patients who had undergone TKA and 6 caregivers attended the focus groups. Our analyses resulted in 6 broad themes and 25 research topics, all of which were presented in the first round of the Delphi survey. The survey was completed by 27 patients and 5 caregivers (54% combined response rate) and by 25 clinicians (76% response rate). Top priorities both for patients and caregivers and for clinicians were promoting exercise following surgery and self-management after hospital discharge. One of the highest ranked topics for patients and caregivers was improving knee implants; this was supported by only 60% of clinicians. INTERPRETATION: The patients and caregivers in our study prioritized research on promotion of exercise and self-management following surgery and improvement in knee implants. Future patient-oriented research efforts in Canada should emphasize these topics for this patient population. Copyright 2020, Joule Inc. or its licensors.
BACKGROUND: Up to 1 in 5 patients who undergo total knee arthroplasty (TKA) express dissatisfaction with their surgery. Our goal was to understand the experiences of patients of South Asian origin who undergo TKA and to identify a research agenda for this patient population. METHODS: We undertook a modified Delphi study in British Columbia to generate and prioritize potential research topics. An initial list of topics was generated using 3 focus groups with patients of South Asian origin who underwent TKA and their caregivers. Focus group sessions were audiotaped and transcribed, and the data were analyzed using thematic analysis. The resulting Delphi question-naire was administered over 2 rounds to patients, caregivers and health professionals. The second-round questionnaire included only topics that were strongly supported in the first round. A patient-oriented approach was adopted, with 3 patient partners as full research team members, who contributed to scoping, design, data collection, analysis and interpretation. RESULTS: Twenty-one patients who had undergone TKA and 6 caregivers attended the focus groups. Our analyses resulted in 6 broad themes and 25 research topics, all of which were presented in the first round of the Delphi survey. The survey was completed by 27 patients and 5 caregivers (54% combined response rate) and by 25 clinicians (76% response rate). Top priorities both for patients and caregivers and for clinicians were promoting exercise following surgery and self-management after hospital discharge. One of the highest ranked topics for patients and caregivers was improving knee implants; this was supported by only 60% of clinicians. INTERPRETATION: The patients and caregivers in our study prioritized research on promotion of exercise and self-management following surgery and improvement in knee implants. Future patient-oriented research efforts in Canada should emphasize these topics for this patient population. Copyright 2020, Joule Inc. or its licensors.
Authors: Maaike M Vissers; Johannes B Bussmann; Jan A N Verhaar; Jan J V Busschbach; Sita M A Bierma-Zeinstra; Max Reijman Journal: Semin Arthritis Rheum Date: 2011-10-28 Impact factor: 5.532
Authors: Robert B Bourne; Bert M Chesworth; Aileen M Davis; Nizar N Mahomed; Kory D J Charron Journal: Clin Orthop Relat Res Date: 2010-01 Impact factor: 4.176