| Literature DB >> 32220047 |
Thomas May1,2, Ashley Cannon3, Irene P Moss3, Mariko Nakano-Okuno3, Sharonda Hardy3, Edrika L Miskell3, Whitley V Kelley2, William Curry3, Kelly M East2, Aras Acemgil3, Julie Schach3, Stephen O Sodeke4, Mona N Fouad3, Robert D Johnson3, James Cimino3, Jaimie L Richards3, Sara J Knight5, Bruce Korf3.
Abstract
Lack of diversity among genomic research participants results in disparities in benefits from genetic testing. To address this, the Alabama Genomic Health Initiative employed community engagement strategies to recruit diverse populations where they lived. In this paper, we describe our engagement techniques and recruitment strategies, which resulted in significant improvement in representation of African American participants. While African American participation has not reached the representation of this community as a percentage of Alabama's overall population (26%-27%), we have achieved an overall representation exceeding 20% for African Americans. We believe this demonstrates the value of engagement and recruitment where diverse populations reside.Entities:
Keywords: community engagement; disparities; diversity; genomic research; the Alabama Genomic Health Initiative
Mesh：
Year: 2020 PMID： 32220047 PMCID： PMC7484696 DOI： 10.1002/jgc4.1258
Source DB: PubMed Journal: J Genet Couns ISSN： 1059-7700 Impact factor: 2.717