Literature DB >> 32185751

Investigation of the relationship between disease severity, caregiver burden and emotional expression in caregivers of children with cerebral palsy.

Fatih Yığman1, Zeynep Aykın Yığman2, Ece Ünlü Akyüz3.   

Abstract

PURPOSE: The aim of this study was to investigate the relation between the physical problems of children with CP and caregiving burden and the emotional expression characteristics of caregivers.
METHODS: The study included 144 caregivers of child with cerebral palsy and Zarit Burden Interview (ZBI) and Expressed Emotion Scale (EES) will be applied to the caregivers who will participate in the study. Disease severity of children with cerebral palsy will be evaluated by the Gross Motor Function Classification System (GMFCS) and Manual Ability Classification System (MACS) in children with cerebral palsy. Communication Function Classification System (CFCS) will be used to examine the communication of children with their families.
RESULTS: Accordingly, a positive, statistically significant, moderate correlation was found between the GMFCS, MACS, and CFCS scores and ZBI scores in patients with cerebral palsy (r ~ 0.50; p < 0.01). In this study, a positive, statistically significant but weak correlation was found between GMFCS, MACS, and CFCS scores and EES scores in patients with cerebral palsy (r ~ 0.30; p < 0.01). A statistically significant, moderate correlation was found between ZBI and EES (r ~ 0.50; p < 0.01).
CONCLUSION: According to the results of our study, as motor skills and communication skills decrease, especially the burden of caregivers increases and the family's emotional expression processes are related to these variables. We think that in the long-term follow-up of children with CP, it may be useful to provide appropriate psychiatric support by evaluating caregivers appropriately.

Entities:  

Keywords:  Caregiver burden; Cerebral palsy; Disability; Expressed emotion

Mesh:

Year:  2020        PMID: 32185751     DOI: 10.1007/s11845-020-02214-6

Source DB:  PubMed          Journal:  Ir J Med Sci        ISSN: 0021-1265            Impact factor:   1.568


  2 in total

1.  Evaluation of the effects of the COVID-19 pandemic on children with cerebral palsy, caregivers' quality of life, and caregivers' fear of COVID-19 with telemedicine.

Authors:  Damla Cankurtaran; Nihal Tezel; Sadik Yigit Yildiz; Gulnur Celik; Ece Unlu Akyuz
Journal:  Ir J Med Sci       Date:  2021-04-09       Impact factor: 1.568

2.  Rasch Analysis of the Korean Parenting Stress Index Short Form (K-PSI-SF) in Mothers of Children with Cerebral Palsy.

Authors:  Eun-Young Park; Soojung Chae
Journal:  Int J Environ Res Public Health       Date:  2020-09-25       Impact factor: 3.390

  2 in total

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