Literature DB >> 33834363

Evaluation of the effects of the COVID-19 pandemic on children with cerebral palsy, caregivers' quality of life, and caregivers' fear of COVID-19 with telemedicine.

Damla Cankurtaran1, Nihal Tezel2, Sadik Yigit Yildiz2, Gulnur Celik2, Ece Unlu Akyuz2.   

Abstract

BACKGROUND: The sudden and unexpected pandemic changed the daily routine of the children with cerebral palsy (CP) and their caregivers. AIMS: This study aimed to investigate the impact of the novel coronavirus (COVID-19) pandemic on the utilization of health and rehabilitation services and the general health and physical status of children with CP. In addition, the second aim of the study was to examine the effects of the COVID-19 pandemic on caregivers' quality of life (QOL) and their fear of COVID-19.
METHODS: The utilization of children health and rehabilitation services during the pandemic, the general health and physical status of the children during the pandemic, and the children and caregivers' history of COVID-19 infections were questioned. Furthermore, the caregivers' level of fear of COVID-19 and their QOL were examined.
RESULTS: One hundred twenty caregivers were contacted by phone, and 94 (78.33%) caregivers agreed to participate in the study. Sixty-three of 94 children (67.1%) did not attend their routine control check-up during the pandemic. Twelve children (12.8%) discontinued their physical therapy sessions during the pandemic. Caregivers physical and mental QOL significantly decreased during the pandemic (p < 0.05). The median of caregivers' Fear of COVID-19 scale (FCV-19S) was 17.5 (7-35).
CONCLUSION: We think that more attention should be given to telerehabilitation and telemedicine services of the clinicians who deal with the children with CP, and their caregivers in order to prevent the negative effects of future pandemic periods.

Entities:  

Keywords:  COVİD-19; Caregivers’ QOL; Cerebral palsy; Pandemic

Year:  2021        PMID: 33834363     DOI: 10.1007/s11845-021-02622-2

Source DB:  PubMed          Journal:  Ir J Med Sci        ISSN: 0021-1265            Impact factor:   1.568


  17 in total

1.  Child characteristics, caregiver characteristics, and environmental factors affecting the quality of life of caregivers of children with cerebral palsy.

Authors:  Mei-Hui Tseng; Kuan-Lin Chen; Jeng-Yi Shieh; Lu Lu; Chien-Yu Huang; Rune J Simeonsson
Journal:  Disabil Rehabil       Date:  2016-01-10       Impact factor: 3.033

Review 2.  COVID-19 pandemic. What should Physical and Rehabilitation Medicine specialists do? A clinician's perspective.

Authors:  Stefano Carda; Marco Invernizzi; Ganesh Bavikatte; Djamel Bensmaïl; Francesca Bianchi; Thierry Deltombe; Nathalie Draulans; Alberto Esquenazi; Gerard E Francisco; Raphaël Gross; Luis J Jacinto; Susana Moraleda Pérez; Michael W O'dell; Rajiv Reebye; Monica Verduzco-Gutierrez; Jörg Wissel; Franco Molteni
Journal:  Eur J Phys Rehabil Med       Date:  2020-05-19       Impact factor: 2.874

Review 3.  Cerebral palsy.

Authors:  L Andrew Koman; Beth Paterson Smith; Jeffrey S Shilt
Journal:  Lancet       Date:  2004-05-15       Impact factor: 79.321

4.  Impact of COVID-19 outbreak on mental health and perceived strain among caregivers tending children with special needs.

Authors:  Sapna Dhiman; Pradeep Kumar Sahu; William R Reed; G Shankar Ganesh; Ramesh K Goyal; Shilpa Jain
Journal:  Res Dev Disabil       Date:  2020-10-06

Review 5.  Consensus recommendations for botulinum toxin injections in the spasticity management of children with cerebral palsy during COVID-19 outbreak

Authors:  Ebru Yılmaz Yalçınkaya; Evrim Karadağ Saygı; Özden Özyemişci Taşkıran; Nalan Çapan; Şehim Kutlay; Birkan Sonel Tur; Özlem El; Ece Ünlü Akyüz; Süda Tekin; Demet Ofluoğlu; Murat Zİnnuroğlu; Pınar Akpınar; Tuğçe Özekli Mısırlıoğlu; Berrin Hüner; Hakan Nur; Sibel Çağlar; Melek Sezgin; Canan Tıkız; Kadriye Öneş; Afitap İçağasıoğlu; Resa Aydın
Journal:  Turk J Med Sci       Date:  2021-04-30       Impact factor: 0.973

6.  Evaluation of health-related quality of life using EQ-5D in China during the COVID-19 pandemic.

Authors:  Weiwei Ping; Jianzhong Zheng; Xiaohong Niu; Chongzheng Guo; Jinfang Zhang; Hui Yang; Yan Shi
Journal:  PLoS One       Date:  2020-06-18       Impact factor: 3.240

Review 7.  Turkey's response to COVID-19 in terms of mental health.

Authors:  Hakan Öğütlü
Journal:  Ir J Psychol Med       Date:  2020-05-21

8.  Impact of Social Isolation due to the COVID-19 Pandemic in Patients With Pediatric Disorders: Rehabilitation Perspectives From a Developing Country.

Authors:  André Luís Ferreira Meireles; Louisiana Carolina Ferreira de Meireles
Journal:  Phys Ther       Date:  2020-10-30

9.  Impact of COVID-19 pandemic on mental health: An international study.

Authors:  Andrew T Gloster; Demetris Lamnisos; Jelena Lubenko; Giovambattista Presti; Valeria Squatrito; Marios Constantinou; Christiana Nicolaou; Savvas Papacostas; Gökçen Aydın; Yuen Yu Chong; Wai Tong Chien; Ho Yu Cheng; Francisco J Ruiz; Maria B Garcia-Martin; Diana P Obando-Posada; Miguel A Segura-Vargas; Vasilis S Vasiliou; Louise McHugh; Stefan Höfer; Adriana Baban; David Dias Neto; Ana Nunes da Silva; Jean-Louis Monestès; Javier Alvarez-Galvez; Marisa Paez-Blarrina; Francisco Montesinos; Sonsoles Valdivia-Salas; Dorottya Ori; Bartosz Kleszcz; Raimo Lappalainen; Iva Ivanović; David Gosar; Frederick Dionne; Rhonda M Merwin; Angelos P Kassianos; Maria Karekla
Journal:  PLoS One       Date:  2020-12-31       Impact factor: 3.240

Review 10.  COVID-19 outbreak control, example of ministry of health of Turkey

Authors:  Yasemin Demirbilek; Gülen Pehlivantürk; Zeynep Özge Özgüler; Emine Alp Meşe
Journal:  Turk J Med Sci       Date:  2020-04-21       Impact factor: 0.973

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  11 in total

1.  The Effects of an Online-Offline Hybrid Exercise Program on the Lives of Children with Cerebral Palsy Using Wheelchairs during the COVID-19 Pandemic in Korea.

Authors:  Youngshin Lim; Areum Han; Mingoo Lee; May Kim
Journal:  Int J Environ Res Public Health       Date:  2022-06-12       Impact factor: 4.614

2.  The Effect of a Horse-Riding Simulator with Virtual Reality on Gross Motor Function and Body Composition of Children with Cerebral Palsy: Preliminary Study.

Authors:  Yong Gi Jung; Hyun Jung Chang; Eun Sol Jo; Da Hye Kim
Journal:  Sensors (Basel)       Date:  2022-04-10       Impact factor: 3.847

Review 3.  COVID-19 and neurologic manifestations: a synthesis from the child neurologist's corner.

Authors:  Carolina Valderas; Gastón Méndez; Alejandra Echeverría; Nelson Suarez; Katherin Julio; Francisca Sandoval
Journal:  World J Pediatr       Date:  2022-04-27       Impact factor: 9.186

4.  The Economic Burden and Determinant Factors of Parents/Caregivers of Children with Cerebral Palsy in Malaysia: A Mixed Methods Study.

Authors:  Aniza Ismail; Ruhana Sk Abd Razak; Leny Suzana Suddin; Aidalina Mahmud; Sazlina Kamaralzaman; Ghazali Yusri
Journal:  Int J Environ Res Public Health       Date:  2022-01-01       Impact factor: 3.390

5.  Rehabilitation status of children with cerebral palsy and anxiety of their caregivers during the COVID-19 pandemic.

Authors:  Pinar Akpinar; Ilknur Aktas; Feyza Unlu Ozkan; Arzu Atici; Meryem Yilmaz Kaysin; Kubra Cambekli
Journal:  North Clin Istanb       Date:  2021-12-31

6.  Impact of lack of face-to-face schooling during COVID-19 confinement on family quality of life of children with disabilities and typical development.

Authors:  Rocío Palomo-Carrión; Rita-Pilar Romero-Galisteo; Helena Romay-Barrero; María-Dolores Cortés-Vega; María-Jesús Casuso-Holgado; Elena Pinero-Pinto
Journal:  Ther Adv Chronic Dis       Date:  2022-02-24       Impact factor: 5.091

7.  Mental health outcomes and experiences of family caregivers of children with disabilities during the COVID-19 pandemic in Bolivia.

Authors:  Guido G Urizar; Ivonne Ramírez; Brianna I Caicedo; Cindy Mora
Journal:  J Community Psychol       Date:  2021-11-29

8.  Vaccine Hesitancy and Fear of COVID-19 Among Italian Medical Students: A Cross-Sectional Study.

Authors:  Giuseppina Lo Moro; Eleonora Cugudda; Fabrizio Bert; Immacolata Raco; Roberta Siliquini
Journal:  J Community Health       Date:  2022-02-09

9.  The impact of digital physical therapy during COVID-19 lockdown in children with developmental disorders: A qualitative study.

Authors:  Alicia Portillo-Aceituno; Andrea Calderón-Bernal; Jorge Pérez-Corrales; César Fernández-de-Las-Peñas; Domingo Palacios-Ceña; Javier Güeita-Rodríguez
Journal:  Braz J Phys Ther       Date:  2022-09-16       Impact factor: 4.762

10.  Impact of COVID Pandemic on the Children with Cerebral Palsy.

Authors:  Atul R Bhaskar; Mayuri V Gad; Chasanal M Rathod
Journal:  Indian J Orthop       Date:  2022-01-18       Impact factor: 1.033

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