Literature DB >> 32174157

State-Mandated Coverage of Cleft Lip and Cleft Palate Treatment.

Tanya Wanchek1, George Wehby2.   

Abstract

OBJECTIVE: We conducted a comprehensive review of state laws and regulations that require private health insurance plans to cover the services needed by children born with cleft lip and/or cleft palate (CL/P). The goal is to better understand how states are reducing the barriers children with CL/P face when seeking recommended health care services.
DESIGN: We identified all state laws and regulations mandating insurance coverage of services for children with CL/P by private insurance carriers from 1999 through 2017 using Westlaw legal database. We categorized laws and regulations into ten services: facial surgery (facial, corrective, reconstructive), oral surgery, orthodontics, dental care, habilitation/rehabilitation/speech therapy, prosthetic treatment, audiology, nutrition counseling, genetic testing, and psychological counseling. We also captured broad mandates indicating coverage for all necessary treatments.
RESULTS: There was a trend toward increased coverage of services for CL/P over time. In 1999, 27 states and Washington, DC did not have relevant laws or regulations. By 2017, there were 19 states without laws or regulations mandating services. The most common mandated service was facial surgery followed by habilitation/rehabilitation/speech therapy, orthodontics, dental care, and oral surgery. Nutrition, audiology, genetic testing and psychological counseling were rarely included in mandated services.
CONCLUSIONS: States vary widely in their requirements for coverage of services needed by children with CL/P in private health insurance plans. There has been an increase in mandates over the past two decades to cover services, although significant variation continues to exist across states.

Entities:  

Keywords:  craniofacial growth; ethics/health policies; quality of life; social support

Mesh:

Year:  2020        PMID: 32174157      PMCID: PMC7357273          DOI: 10.1177/1055665620910529

Source DB:  PubMed          Journal:  Cleft Palate Craniofac J        ISSN: 1055-6656


  12 in total

1.  Birth defects data from population-based birth defects surveillance programs in the United States, 2007 to 2011: highlighting orofacial clefts.

Authors:  Cara T Mai; Cynthia H Cassell; Robert E Meyer; Jennifer Isenburg; Mark A Canfield; Russel Rickard; Richard S Olney; Erin B Stallings; Meredith Beck; S Shahrukh Hashmi; Sook Ja Cho; Russell S Kirby
Journal:  Birth Defects Res A Clin Mol Teratol       Date:  2014-11-14

2.  The value of federalism in defining essential health benefits.

Authors:  Alan Weil
Journal:  N Engl J Med       Date:  2012-02-08       Impact factor: 91.245

3.  Children's dental health, school performance, and psychosocial well-being.

Authors:  Carol Cristina Guarnizo-Herreño; George L Wehby
Journal:  J Pediatr       Date:  2012-06-23       Impact factor: 4.406

4.  Oral clefts and wellbeing: a lifelong perspective and an agenda for comparative effectiveness research.

Authors:  George L Wehby; Lina M Moreno
Journal:  J Comp Eff Res       Date:  2014-01       Impact factor: 1.744

5.  Explaining racial/ethnic disparities in children's dental health: a decomposition analysis.

Authors:  Carol Cristina Guarnizo-Herreño; George L Wehby
Journal:  Am J Public Health       Date:  2012-03-15       Impact factor: 9.308

6.  Long-term effects of oral clefts on health care utilization: a sibling comparison.

Authors:  Morten Saaby Pedersen; George L Wehby; Dorthe Almind Pedersen; Kaare Christensen
Journal:  Eur J Health Econ       Date:  2014-06-08

7.  Primer on State Statutory Mandates of Third-Party Orthodontic Coverage for Cleft Palate and Craniofacial Care in the United States.

Authors:  Kristin D Pfeifauf; Alison Snyder-Warwick; Gary B Skolnick; Sybill D Naidoo; Richard J Nissen; Kamlesh B Patel
Journal:  Cleft Palate Craniofac J       Date:  2017-12-14

8.  Maternal perspectives: qualitative responses about perceived barriers to care among children with orofacial clefts in North Carolina.

Authors:  Cynthia H Cassell; Dara D Mendez; Ronald P Strauss
Journal:  Cleft Palate Craniofac J       Date:  2011-07-08

9.  Parameters for evaluation and treatment of patients with cleft lip/palate or other craniofacial anomalies. American Cleft Palate-Craniofacial Association. March, 1993.

Authors: 
Journal:  Cleft Palate Craniofac J       Date:  1993-03

Review 10.  The impact of orofacial clefts on quality of life and healthcare use and costs.

Authors:  G L Wehby; C H Cassell
Journal:  Oral Dis       Date:  2009-07-27       Impact factor: 3.511

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  2 in total

Review 1.  Academic outcomes of children with orofacial clefts: A review of the literature and recommendations for future research.

Authors:  Joanne Constantin; George L Wehby
Journal:  Oral Dis       Date:  2022-02-03       Impact factor: 4.068

2.  Thai Universal Health Care Coverage scheme promotes the accessibility to cleft lip/palate treatment: the result of cleft care provision assessment using modified Geographic Information System.

Authors:  Wannapong Chonnapasatid; Nita Viwattanatipa; Somchai Manopatanakul; Somchit Jaruratanasirikul
Journal:  BMC Health Serv Res       Date:  2022-03-29       Impact factor: 2.655

  2 in total

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