Literature DB >> 32149013

Supportive care for end-stage kidney disease: an integral part of kidney services across a range of income settings around the world.

Barnaby Hole1,2, Brenda Hemmelgarn3,4, Edwina Brown5, Mark Brown6, Mignon I McCulloch7, Carlos Zuniga8, Sharon P Andreoli9, Peter G Blake10,11, Cécile Couchoud12, Alfonso M Cueto-Manzano13, Gavin Dreyer14, Guillermo Garcia Garcia15, Kitty J Jager16, Marla McKnight17,18,19, Rachael L Morton20, Fliss E M Murtagh21, Saraladevi Naicker22, Gregorio T Obrador23, Jeffrey Perl24,25, Muhibur Rahman26, Kamal D Shah27, Wim Van Biesen28, Rachael C Walker29,30, Karen Yeates31, Alexander Zemchenkov32,33, Ming-Hui Zhao34,35,36,37, Simon J Davies38, Fergus J Caskey1,2,39.   

Abstract

A key component of treatment for all people with advanced kidney disease is supportive care, which aims to improve quality of life and can be provided alongside therapies intended to prolong life, such as dialysis. This article addresses the key considerations of supportive care as part of integrated end-stage kidney disease care, with particular attention paid to programs in low- and middle-income countries. Supportive care should be an integrated component of care for patients with advanced chronic kidney disease, patients receiving kidney replacement therapy (KRT), and patients receiving non-KRT conservative care. Five themes are identified: improving information on prognosis and support, developing context-specific evidence, establishing appropriate metrics for monitoring care, clearly communicating the role of supportive care, and integrating supportive care into existing health care infrastructures. This report explores some general aspects of these 5 domains, before exploring their consequences in 4 health care situations/settings: in people approaching end-stage kidney disease in high-income countries and in low- and middle-income countries, and in people discontinuing KRT in high-income countries and in low- and middle-income countries.
© 2020 International Society of Nephrology. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  conservative care; end-stage kidney disease; palliative care; supportive care

Year:  2020        PMID: 32149013      PMCID: PMC7031687          DOI: 10.1016/j.kisu.2019.11.008

Source DB:  PubMed          Journal:  Kidney Int Suppl (2011)        ISSN: 2157-1716


  36 in total

Review 1.  A population approach to renal replacement therapy epidemiology: lessons from the EVEREST study.

Authors:  Fergus J Caskey; Kitty J Jager
Journal:  Nephrol Dial Transplant       Date:  2013-10-28       Impact factor: 5.992

2.  ESRD and Hospice Care in the United States: Are Dialysis Patients Welcome?

Authors:  Vanessa Grubbs
Journal:  Am J Kidney Dis       Date:  2018-06-18       Impact factor: 8.860

3.  Executive summary of the KDIGO Controversies Conference on Supportive Care in Chronic Kidney Disease: developing a roadmap to improving quality care.

Authors:  Sara N Davison; Adeera Levin; Alvin H Moss; Vivekanand Jha; Edwina A Brown; Frank Brennan; Fliss E M Murtagh; Saraladevi Naicker; Michael J Germain; Donal J O'Donoghue; Rachael L Morton; Gregorio T Obrador
Journal:  Kidney Int       Date:  2015-04-29       Impact factor: 10.612

4.  Moderator's view: Predictive models: a prelude to precision nephrology.

Authors:  Carmine Zoccali
Journal:  Nephrol Dial Transplant       Date:  2017-05-01       Impact factor: 5.992

Review 5.  Worldwide access to treatment for end-stage kidney disease: a systematic review.

Authors:  Thaminda Liyanage; Toshiharu Ninomiya; Vivekanand Jha; Bruce Neal; Halle Marie Patrice; Ikechi Okpechi; Ming-hui Zhao; Jicheng Lv; Amit X Garg; John Knight; Anthony Rodgers; Martin Gallagher; Sradha Kotwal; Alan Cass; Vlado Perkovic
Journal:  Lancet       Date:  2015-03-13       Impact factor: 79.321

6.  Assessment of Global Kidney Health Care Status.

Authors:  Aminu K Bello; Adeera Levin; Marcello Tonelli; Ikechi G Okpechi; John Feehally; David Harris; Kailash Jindal; Babatunde L Salako; Ahmed Rateb; Mohamed A Osman; Bilal Qarni; Syed Saad; Meaghan Lunney; Natasha Wiebe; Feng Ye; David W Johnson
Journal:  JAMA       Date:  2017-05-09       Impact factor: 56.272

7.  Understanding symptoms in patients with advanced chronic kidney disease managed without dialysis: use of a short patient-completed assessment tool.

Authors:  Emma L Murphy; Fliss E M Murtagh; Irene Carey; Neil S Sheerin
Journal:  Nephron Clin Pract       Date:  2008-12-16

Review 8.  Survival outcomes of supportive care versus dialysis therapies for elderly patients with end-stage kidney disease: A systematic review and meta-analysis.

Authors:  Celine Foote; Sradha Kotwal; Martin Gallagher; Alan Cass; Mark Brown; Meg Jardine
Journal:  Nephrology (Carlton)       Date:  2016-03       Impact factor: 2.506

9.  Trajectory of quality of life for poor prognosis stage 5D chronic kidney disease with and without dialysis.

Authors:  Ying-Ying Seow; Yin Bun Cheung; Li Min Qu; Alethea Chung Pheng Yee
Journal:  Am J Nephrol       Date:  2013-03-02       Impact factor: 3.754

Review 10.  International variation in classification of dialysis withdrawal: a systematic review.

Authors:  Emma Murphy; Michael J Germain; Hugh Cairns; Irene J Higginson; Fliss E M Murtagh
Journal:  Nephrol Dial Transplant       Date:  2013-11-28       Impact factor: 5.992

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  8 in total

1.  Implementation and Effectiveness of a Learning Collaborative to Improve Palliative Care for Seriously Ill Hemodialysis Patients.

Authors:  Manjula Kurella Tamura; Laura Holdsworth; Margaret Stedman; Annette Aldous; Steven M Asch; Jialin Han; Glenda Harbert; Karl A Lorenz; Elizabeth Malcolm; Amanda Nicklas; Alvin H Moss; Dale E Lupu
Journal:  Clin J Am Soc Nephrol       Date:  2022-09-14       Impact factor: 10.614

Review 2.  Early Detection of CKD: Implications for Low-Income, Middle-Income, and High-Income Countries.

Authors:  Marcello Tonelli; James A Dickinson
Journal:  J Am Soc Nephrol       Date:  2020-08-24       Impact factor: 10.121

3.  Availability, Accessibility, and Quality of Conservative Kidney Management Worldwide.

Authors:  Meaghan Lunney; Aminu K Bello; Adeera Levin; Helen Tam-Tham; Chandra Thomas; Mohamed A Osman; Feng Ye; Ezequiel Bellorin-Font; Mohammed Benghanem Gharbi; Mohammad Ghnaimat; Htay Htay; Yeoungjee Cho; Vivekanand Jha; Shahrzad Ossareh; Eric Rondeau; Laura Sola; Irma Tchokhonelidze; Vladimir Tesar; Kriang Tungsanga; Rumeyza Turan Kazancioglu; Angela Yee-Moon Wang; Chih-Wei Yang; Alexander Zemchenkov; Ming-Hui Zhao; Kitty J Jager; Kailash K Jindal; Ikechi G Okpechi; Edwina A Brown; Mark Brown; Marcello Tonelli; David C Harris; David W Johnson; Fergus J Caskey; Sara N Davison
Journal:  Clin J Am Soc Nephrol       Date:  2020-12-15       Impact factor: 8.237

Review 4.  Kidney Supportive Care in Peritoneal Dialysis: Developing a Person-Centered Kidney Disease Care Plan.

Authors:  Emily Lu; Emily Chai
Journal:  Kidney Med       Date:  2021-12-02

Review 5.  Changing landscape of dialysis withdrawal in patients with kidney failure: Implications for clinical practice.

Authors:  Jenny H C Chen; Wai H Lim; Prue Howson
Journal:  Nephrology (Carlton)       Date:  2022-03-06       Impact factor: 2.358

6.  Health care trajectories and barriers to treatment for patients with end-stage renal disease without health insurance in Mexico: a mixed methods approach.

Authors:  Marcela Agudelo-Botero; María Cecilia González-Robledo; Hortensia Reyes-Morales; Liliana Giraldo-Rodríguez; Mario Rojas-Russell; Dolores Mino-León; Dayan Irene Ocampo-Morales; Rafael Valdez-Ortiz
Journal:  Int J Equity Health       Date:  2020-06-08

7.  Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study.

Authors:  Catherine Sarfo-Walters; Edward Appiah Boateng
Journal:  BMC Palliat Care       Date:  2020-08-20       Impact factor: 3.234

Review 8.  The current and future landscape of dialysis.

Authors:  Jonathan Himmelfarb; Raymond Vanholder; Rajnish Mehrotra; Marcello Tonelli
Journal:  Nat Rev Nephrol       Date:  2020-07-30       Impact factor: 28.314

  8 in total

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