Literature DB >> 32128714

Communicating Critical Information to Cancer Survivors: an Assessment of Survivorship Care Plans in Use in Diverse Healthcare Settings.

Helena C Lyson1, David Haggstrom2,3,4, Michael Bentz5, Samilia Obeng-Gyasi6, Niharika Dixit7, Urmimala Sarkar8.   

Abstract

Survivorship care plans (SCPs) serve to communicate critical information needed for cancer survivors' long-term follow-up care. The extent to which SCPs are tailored to meet the specific needs of underserved patient populations is understudied. To fill this gap, this study aimed to assess the content and communication appropriateness of SCPs collected from diverse healthcare settings. We analyzed collected SCPs (n = 16) for concordance with Institute of Medicine (IOM) recommendations for SCP content and for communication appropriateness using the Suitability Assessment of Materials (SAM) instrument. All plans failed to incorporate all IOM criteria, with the majority of plans (n = 11) incorporating less than 60% of recommended content. The average reading grade level of all the plans was 14, and only one plan received a superior rating for cultural appropriateness. There is significant variation in the format and content of SCPs used in diverse hospital settings and most plans are not written at an appropriate reading grade level nor tailored for underserved and/or minority patient populations. Co-designing SCPs with diverse patient populations is crucial to ensure that these documents are meeting the needs and preferences of all cancer survivors.
© 2020. American Association for Cancer Education.

Entities:  

Keywords:  Cancer survivorship; Content analysis; Health communication; Patient education; Survivorship care plans

Mesh:

Year:  2021        PMID: 32128714      PMCID: PMC7483188          DOI: 10.1007/s13187-020-01725-1

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   1.771


  19 in total

1.  Accessibility of web sites containing colorectal cancer information to adults with limited literacy (United States).

Authors:  Kimberly A Kaphingst; Christine J Zanfini; Karen M Emmons
Journal:  Cancer Causes Control       Date:  2006-03       Impact factor: 2.506

2.  Economic hardship of minority and non-minority cancer survivors 1 year after diagnosis: another long-term effect of cancer?

Authors:  Maria Pisu; Kelly M Kenzik; Robert A Oster; Patricia Drentea; Kimlin T Ashing; Mona Fouad; Michelle Y Martin
Journal:  Cancer       Date:  2015-01-06       Impact factor: 6.860

3.  Cancer survivors: a booming population.

Authors:  Carla Parry; Erin E Kent; Angela B Mariotto; Catherine M Alfano; Julia H Rowland
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2011-10       Impact factor: 4.254

4.  American Society of Clinical Oncology clinical expert statement on cancer survivorship care planning.

Authors:  Deborah K Mayer; Larissa Nekhlyudov; Claire F Snyder; Janette K Merrill; Dana S Wollins; Lawrence N Shulman
Journal:  J Oncol Pract       Date:  2014-10-14       Impact factor: 3.840

5.  Analysis of stroke patients' and carers' reading ability and the content and design of written materials: recommendations for improving written stroke information.

Authors:  Tammy Hoffmann; Kryss McKenna
Journal:  Patient Educ Couns       Date:  2005-08-10

Review 6.  Survivorship care planning after the institute of medicine recommendations: how are we faring?

Authors:  Carrie Tompkins Stricker; Linda A Jacobs; Betsy Risendal; Alison Jones; Sarahlena Panzer; Patricia A Ganz; Karen L Syrjala; Mary S McCabe; K Scott Baker; Kenneth Miller; Jacqueline Casillas; Donald L Rosenstein; Marci Campbell; Steven C Palmer
Journal:  J Cancer Surviv       Date:  2011-10-04       Impact factor: 4.442

7.  Are survivorship care plans responsive to African-American breast cancer survivors?: voices of survivors and advocates.

Authors:  Kimlin Ashing-Giwa; Carolyn Tapp; Shirley Brown; Gingi Fulcher; June Smith; Eudora Mitchell; Rhonda H Santifer; Kommah McDowell; Virginia Martin; Betty Betts-Turner; Deborrah Carter; Monica Rosales; Paris Adkins Jackson
Journal:  J Cancer Surviv       Date:  2013-03-08       Impact factor: 4.442

Review 8.  Cancer survivorship research among ethnic minority and medically underserved groups.

Authors:  Noreen M Aziz; Julia H Rowland
Journal:  Oncol Nurs Forum       Date:  2002-06       Impact factor: 2.172

9.  Cancer treatment and survivorship statistics, 2016.

Authors:  Kimberly D Miller; Rebecca L Siegel; Chun Chieh Lin; Angela B Mariotto; Joan L Kramer; Julia H Rowland; Kevin D Stein; Rick Alteri; Ahmedin Jemal
Journal:  CA Cancer J Clin       Date:  2016-06-02       Impact factor: 508.702

Review 10.  Survivorship care plans: a work in progress.

Authors:  H M L Daudt; C van Mossel; D L Dennis; L Leitz; H C Watson; J J Tanliao
Journal:  Curr Oncol       Date:  2014-06       Impact factor: 3.677

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  1 in total

1.  Catalyzing Navigation for Breast Cancer Survivorship (CaNBCS) in Safety-Net Settings: A Mixed Methods Study.

Authors:  Niharika Dixit; Urmimala Sarkar; Evelin Trejo; Paul Couey; Natalie A Rivadeneira; Barbara Ciccarelli; Nancy Burke
Journal:  Cancer Control       Date:  2021 Jan-Dec       Impact factor: 3.302

  1 in total

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