Literature DB >> 32000876

Multiple uses of app instead of using multiple apps - a case for rethinking the digital health technology toolbox.

John Torous1, Aditya Vaidyam1.   

Abstract

There are tens of thousands of mental health-related apps available today - representing extreme duplication in this digital age. Instead of a plethora of apps, there is a need for a few that meet the needs of many. Focusing on transparency and free sharing of software, we argue that a collaborative approach towards apps can advance care through creating customisable and future proofed digital tools that allow all stakeholders to engage in their design and use.

Entities:  

Keywords:  Depression; health outcomes; mental health; other psychosocial techniques/treatments

Mesh:

Year:  2020        PMID: 32000876      PMCID: PMC7216034          DOI: 10.1017/S2045796020000013

Source DB:  PubMed          Journal:  Epidemiol Psychiatr Sci        ISSN: 2045-7960            Impact factor:   6.892


Form follows function is a principle first associated with architectural design and now software architecture. The shape and layout of building will determine the function of the space inside and the database and middleware of a computer program will determine what functions it can perform. Form follows function is relevant in digital health as well, and can explain why most health apps fail and yet one may still succeed. mindLAMP is an open source and freely sharable health app that our team and network of collaborators created to offer the core functions that users expect from digital health tools like education, innovative assessments, digital phenotyping, self-management tools and connections to human support. To date, over 1000 people have used it in research studies and our division uses the app to augment care in our ‘digital clinic’ offered in Boston. You can learn more about mindLAMP by visiting digitalpsych.org/lamp/about. But behind the visible functions such as mood tracking or peer chat is a unique architecture that allows the app to be flexible, adaptable and customisable to the unique clinical needs, preferences, languages and visualisation requests of each user. By carefully designing not only the app functionality but also the platform to support it, we argue that a single app can offer clear benefits outweighing a sea of individual apps. The lack of engagement with individual mental health apps, with recent data suggesting a 4% daily open rate (Baumel et al., 2019), highlights the challenges for even those apps featured highly on the commercial marketplaces. Reasons for the lack of engagement with these apps vary but include a lack of customisation (Fleming et al., 2019), skepticism of efficacy (Muse and Topol, 2019), concerns around privacy (Huckvale et al., 2019), challenges around usability (Sarkar et al., 2016), incompatibility with older or cheaper phones and lack of actionability (Torous et al., 2018). There are thousands of apps that offer functions such as mood tracking or mindfulness – but those numbers decay to single digits when looking for safe, evidence-based and adaptable tools. They approach zero when also demanding compatibility with older phones, working with poor internet connectivity, and being easy to use for those who are not already possessing high technology literacy. It is not for the lack of function that these myriad apps fail, but for the lack of form and the right support behind them and their screens. While a single app may seem like an anachronism in the year 2020, a single app supported by the right form, in this case a platform, offers a solution. We designed mindLAMP with many use cases in mind driven by collaboration with diverse stakeholders including numerous patients (Torous et al., 2019). One often discussed yet rarely designed for group of users is those people with older or cheaper smartphones, restricted access to wifi, limited data plans and low technology literacy. Our team's conversations with clinicians and patients in rural India, remote villages in Nepal and the community mental health centres across the United States underscored for how many people apps today do not work for. Thus, we sought to create a single app, supported by the right platform to offer the same utility and value to users whether they be located in Bhopal or Boston. Focusing on the needs of many users from many backgrounds instead of a single function of the app led us to seven design objectives: (1) global impact, (2) open source, (3) simplicity, (4) efficiency, (5) ethical design, (6) security and (7) privacy. Appendix 1 offers architectural design and infrastructure implementation details for mindLAMP and how we sought to ensure the form of the platform supports its functions. We operationalised these objectives through framing the app around data standards and accessible technology as pathway towards offering the same functions for diverse users. While representative, structured and secure data are not a feature on the mind of a user when selecting a mental health app – it is the foundation of any app. Without representative data to capture the live experience of a user be it through surveys or cognitive tests, step count or heart rate variability, the entire premise of any app is faulty as it would have collected incorrect data. Without structured data to support analysis and actionability of the data, for example triggering customisable just-in-time-adaptive interventions, app data will be less meaningful. Finally, without security measures in place to protect privacy and enable secure sharing, data will be a liability and even source of potential harm. By focusing on these features in the early stages of mindLAMP, we offer a form that can support diverse uses today and new ones tomorrow. For example, one user utilises the app to alert her to drink water as her step count reaches certain pre-set thresholds throughout the day in order to track her mood in response to more physical activity. At the time of this writing, we are aware of a few hybrid hydration and mental health apps yet today able to offer such functionality to that person. The second complementary component, straightforward and accessible technology ensures the app is available to as many people as possible. No two patients have the same needs and thus the ability to customise app use is critical. Customising the app can mean meeting with a clinician or digital navigator (Noel et al., 2019) or setting up the technology without any guidance. Regardless of the method, the investment in helping shape the final product will likely fuel engagement, especially compared to an off the shelf and ready to go app. Ensuring the functions of the app remain accessible means ensuring those with the least resources – and often the oldest phones and least ability to access the internet – can still benefit. In creating mindLAMP we have focused on low power and connectivity support so that a user in rural Nepal can still access the majority of functions even if they cannot always access the internet. This means a small version of the mindLAMP server runs on each device the app is installed on – even a smartwatch – so that there is the right support to keep the core functions running in almost any situation. Simplifying the app to be usable by all is an ongoing process that improves with user feedback, and offering support for multiple languages as well as pictorial icons has enabled mindLAMP to currently engage users from Shanghai in China to Tijuana in Mexico. At the time of this writing, we are aware of a few apps offering multi-language mental health functions. Returning the challenges of many mental health apps today as outlined in paragraph two, further advantages of a single app approach become clear. Concerns around privacy are always warranted, but assessing and understanding the risks of one app are a much simpler task than that for a toolkit. The ability to customise and create unique interventions triggered by data, or just a simpler alarm, offers further incentives for use. Continued learning from global users ensures usability and technical compatibility issues can be quickly addressed. A less concrete but equally important advantage is the ability to integrate apps into care via the single app approach. Drawing from our clinical experience of one patient who (Sandoval et al., 2017) created his own toolkit of mental health apps for therapy, that panoply of apps on his phone soon became a barrier to care. The messages from these numerous apps often conflicted (‘In this moment relax’, ‘In this moment challenge yourself’, ‘In this moment contact a friend’) and left the patient unsure and our team equally confused. In an era where integrated care is the goal, apps risk fragmenting care and soiling data if not access to data and results is not simple to access and share. A single app approach can be powerful but also presents challenges. The ultimate success of the mindLAMP app and platform behind it must be its broad adoption and expansion by others. While most health apps hide their foundation as propriety trade secrets, we openly offer ours towards forming a community of collaborators. The representative, structured and secure data as well as straightforward and accessible technology approaches are only as powerful as they are adopted by others to evolve and grow mindLAMP. Simply put, a single app can serve multiple purposes and meet the demands of many users only if has the support, input and upkeep of many. The mindLAMP project continues to expand and we encourage readers to explore our blueprint in Appendix 1, code shared online at gitub and to trial and customise the app itself at digitalpsych.org/lamp/about. We realise that with hundreds of thousands of health apps ready to download today it is possible to build an impressive toolkit of diverse apps. But, even the best toolkit is only as useful as those tools are utilised. With mindLAMP as a single app we believe that the focus does not need to be on tools but rather the people, using a tool, towards recovery.
  8 in total

1.  Digital orthodoxy of human data collection.

Authors:  Evan D Muse; Eric J Topol
Journal:  Lancet       Date:  2019-08-17       Impact factor: 79.321

Review 2.  Clinical review of user engagement with mental health smartphone apps: evidence, theory and improvements.

Authors:  John Torous; Jennifer Nicholas; Mark E Larsen; Joseph Firth; Helen Christensen
Journal:  Evid Based Ment Health       Date:  2018-06-05

3.  Usability of Commercially Available Mobile Applications for Diverse Patients.

Authors:  Urmimala Sarkar; Gato I Gourley; Courtney R Lyles; Lina Tieu; Cassidy Clarity; Lisa Newmark; Karandeep Singh; David W Bates
Journal:  J Gen Intern Med       Date:  2016-07-14       Impact factor: 5.128

4.  Smartphones for Smarter Care? Self-Management in Schizophrenia.

Authors:  Luis R Sandoval; John Torous; Matcheri S Keshavan
Journal:  Am J Psychiatry       Date:  2017-08-01       Impact factor: 18.112

5.  Objective User Engagement With Mental Health Apps: Systematic Search and Panel-Based Usage Analysis.

Authors:  Amit Baumel; Frederick Muench; Stav Edan; John M Kane
Journal:  J Med Internet Res       Date:  2019-09-25       Impact factor: 5.428

6.  Assessment of the Data Sharing and Privacy Practices of Smartphone Apps for Depression and Smoking Cessation.

Authors:  Kit Huckvale; John Torous; Mark E Larsen
Journal:  JAMA Netw Open       Date:  2019-04-05

7.  The Importance of User Segmentation for Designing Digital Therapy for Adolescent Mental Health: Findings From Scoping Processes.

Authors:  Theresa Fleming; Sally Merry; Karolina Stasiak; Sarah Hopkins; Tony Patolo; Stacey Ruru; Manusiu Latu; Matthew Shepherd; Grant Christie; Felicity Goodyear-Smith
Journal:  JMIR Ment Health       Date:  2019-05-08

8.  The technology specialist: a 21st century support role in clinical care.

Authors:  Valerie A Noel; Elizabeth Carpenter-Song; Stephanie C Acquilano; John Torous; Robert E Drake
Journal:  NPJ Digit Med       Date:  2019-06-26
  8 in total
  6 in total

Review 1.  Psychiatry in the Digital Age: A Blessing or a Curse?

Authors:  Carl B Roth; Andreas Papassotiropoulos; Annette B Brühl; Undine E Lang; Christian G Huber
Journal:  Int J Environ Res Public Health       Date:  2021-08-05       Impact factor: 3.390

2.  Digital Health and Learning in Speech-Language Pathology, Phoniatrics, and Otolaryngology: Survey Study for Designing a Digital Learning Toolbox App.

Authors:  Yuchen Lin; Martin Lemos; Christiane Neuschaefer-Rube
Journal:  JMIR Med Educ       Date:  2022-04-27

3.  The digital clinic: Implementing technology and augmenting care for mental health.

Authors:  Elena Rodriguez-Villa; Natali Rauseo-Ricupero; Erica Camacho; Hannah Wisniewski; Matcheri Keshavan; John Torous
Journal:  Gen Hosp Psychiatry       Date:  2020-06-30       Impact factor: 3.238

4.  Cross cultural and global uses of a digital mental health app: results of focus groups with clinicians, patients and family members in India and the United States.

Authors:  Elena Rodriguez-Villa; Abhijit R Rozatkar; Mohit Kumar; Vikram Patel; Ameya Bondre; Shalini S Naik; Siddharth Dutt; Urvakhsh M Mehta; Srilakshmi Nagendra; Deepak Tugnawat; Ritu Shrivastava; Harikeerthan Raghuram; Azaz Khan; John A Naslund; Snehil Gupta; Anant Bhan; Jagadisha Thirthall; Prabhat K Chand; Tanvi Lakhtakia; Matcheri Keshavan; John Torous
Journal:  Glob Ment Health (Camb)       Date:  2021-08-24

5.  Enabling Research and Clinical Use of Patient-Generated Health Data (the mindLAMP Platform): Digital Phenotyping Study.

Authors:  Aditya Vaidyam; John Halamka; John Torous
Journal:  JMIR Mhealth Uhealth       Date:  2022-01-07       Impact factor: 4.773

6.  Global Collaboration Around Digital Mental Health: The LAMP Consortium.

Authors:  Rebecca Bilden; John Torous
Journal:  J Technol Behav Sci       Date:  2022-01-18
  6 in total

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