Literature DB >> 31928964

Philosophy of care delivery for spina bifida.

Judy Thibadeau1, William O Walker2, Jonathan Castillo3, Brad E Dicianno4, Jonathan C Routh5, Kathryn A Smith6, Lijing Ouyang7.   

Abstract

The multidisciplinary model (MCM) is described as one that utilizes skills and experience from practitioners belonging to various disciplines, each treating patients from a specific clinical perspective.1 The Spina Bifida Association (SBA) supports and recommends that clinical care for people with Spina Bifida (SB) be provided in specialty clinics of which the MCM is an example; that care be coordinated; and that there be a plan for transitional care.2 This paper explores the challenges the MCM faces with a transitioning and aging population in a care system that calls for a positive patient experience, engaged health care professionals, desired outcomes, with consideration of cost.
Copyright © 2019 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Cost and outcomes; Multidisciplinary care model; Spina bifida

Year:  2019        PMID： 31928964      PMCID： PMC7477785          DOI： 10.1016/j.dhjo.2019.100883

Source DB:  PubMed          Journal:  Disabil Health J        ISSN： 1876-7583            Impact factor:   2.554


  18 in total

1.  The "failures" of spina bifida transdisciplinary care.

Authors:  E Calado; C Loff
Journal:  Eur J Pediatr Surg       Date:  2002-12       Impact factor: 2.191

2.  Primary care providers and medical homes for individuals with spina bifida.

Authors:  William O Walker
Journal:  J Pediatr Rehabil Med       Date:  2008

Review 3.  The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement.

Authors:  Michael S Schechter; Aliza K Fink; Karen Homa; Christopher H Goss
Journal:  BMJ Qual Saf       Date:  2014-01-17       Impact factor: 7.035

4.  Variation in surgical management of neurogenic bowel among centers participating in National Spina Bifida Patient Registry.

Authors:  Jonathan C Routh; David B Joseph; Tiebin Liu; Michael S Schechter; Judy K Thibadeau; M Chad Wallis; Elisabeth A Ward; John S Wiener
Journal:  J Pediatr Rehabil Med       Date:  2017-12-11

5.  A chronic care model for spina bifida transition.

Authors:  Ellen Fremion; Melissa Morrison-Jacobus; Jonathan Castillo; Heidi Castillo; Kathryn Ostermaier
Journal:  J Pediatr Rehabil Med       Date:  2017-12-11

6.  A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders.

Authors:  Judith R Baker; Sally O Crudder; Brenda Riske; Val Bias; Ann Forsberg
Journal:  Am J Public Health       Date:  2005-09-29       Impact factor: 9.308

7.  Health care expenditures of children and adults with spina bifida in a privately insured U.S. population.

Authors:  Lijing Ouyang; Scott D Grosse; Brian S Armour; Norman J Waitzman
Journal:  Birth Defects Res A Clin Mol Teratol       Date:  2007-07

8.  Differential clinical workloads among faculty at a major academic health center.

Authors:  G B Zelenock; J C Stanley; R A More; L J Greenfield; C J Shanley; L A Jacobs
Journal:  Ann Surg       Date:  1997-09       Impact factor: 12.969

9.  Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association.

Authors:  Brad E Dicianno; Patricia Beierwaltes; Nienke Dosa; Lisa Raman; Jerome Chelliah; Sara Struwe; Juanita Panlener; Timothy J Brei
Journal:  Disabil Health J       Date:  2019-06-18       Impact factor: 2.554

10.  The future of the multidisciplinary clinic.

Authors:  Timothy J Brei
Journal:  ScientificWorldJournal       Date:  2007-11-12
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  4 in total

Review 1.  Multidisciplinary spina bifida clinic: the Chicago experience.

Authors:  Nathan A Shlobin; Elizabeth B Yerkes; Vineeta T Swaroop; Sandi Lam; David G McLone; Robin M Bowman
Journal:  Childs Nerv Syst       Date:  2022-07-23       Impact factor: 1.532

2.  Child, Parent, and Family Adjustment for Patients Followed in a Multidisciplinary Spina Bifida Clinic.

Authors:  Tess S Simpson; Leah A Grande; Jessica J Kenny; Pamela E Wilson; Robin L Peterson
Journal:  Top Spinal Cord Inj Rehabil       Date:  2022-08-17

3.  Multidisciplinary Management of Tethered Spinal Cord Syndrome in Children: Operationalizing an Outpatient Patient-Centered Workflow.

Authors:  Mandana Behbahani; Nathan Shlobin; Colleen Rosen; Elizabeth Yerkes; Vineeta Swaroop; Sandi Lam; Robin Bowman
Journal:  J Multidiscip Healthc       Date:  2020-10-28

4.  Implementation and Evolution of a Primary Care-Based Program for Adolescents and Young Adults on the Autism Spectrum.

Authors:  Laura C Hart; Heather Saha; Stephanie Lawrence; Susan Friedman; Polly Irwin; Christopher Hanks
Journal:  J Autism Dev Disord       Date:  2021-07-02
  4 in total

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