Literature DB >> 24443584

The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement.

Michael S Schechter1, Aliza K Fink, Karen Homa, Christopher H Goss.   

Abstract

Entities:  

Keywords:  Chronic Disease Management; Decision Support, Computerized; Quality Improvement

Mesh:

Year:  2014        PMID: 24443584     DOI: 10.1136/bmjqs-2013-002378

Source DB:  PubMed          Journal:  BMJ Qual Saf        ISSN: 2044-5415            Impact factor:   7.035


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  23 in total

Review 1.  Implementing quality measures for inflammatory bowel disease.

Authors:  Shahzad Ahmed; Corey A Siegel; Gil Y Melmed
Journal:  Curr Gastroenterol Rep       Date:  2015-04

2.  Philosophy of care delivery for spina bifida.

Authors:  Judy Thibadeau; William O Walker; Jonathan Castillo; Brad E Dicianno; Jonathan C Routh; Kathryn A Smith; Lijing Ouyang
Journal:  Disabil Health J       Date:  2019-12-20       Impact factor: 2.554

3.  A Person-Centered, Registry-Based Learning Health System for Palliative Care: A Path to Coproducing Better Outcomes, Experience, Value, and Science.

Authors:  Arif H Kamal; Kathryn B Kirkland; Diane E Meier; Tamara S Morgan; Eugene C Nelson; Steven Z Pantilat
Journal:  J Palliat Med       Date:  2017-11-01       Impact factor: 2.947

4.  Longevity of patients with cystic fibrosis in 2000 to 2010 and beyond: survival analysis of the Cystic Fibrosis Foundation patient registry.

Authors:  Todd MacKenzie; Alex H Gifford; Kathryn A Sabadosa; Hebe B Quinton; Emily A Knapp; Christopher H Goss; Bruce C Marshall
Journal:  Ann Intern Med       Date:  2014-08-19       Impact factor: 25.391

5.  Changing Epidemiology of the Respiratory Bacteriology of Patients With Cystic Fibrosis.

Authors:  Elizabeth L Salsgiver; Aliza K Fink; Emily A Knapp; John J LiPuma; Kenneth N Olivier; Bruce C Marshall; Lisa Saiman
Journal:  Chest       Date:  2016-01-12       Impact factor: 9.410

6.  Longitudinal development of initial, chronic and mucoid Pseudomonas aeruginosa infection in young children with cystic fibrosis.

Authors:  S L Heltshe; U Khan; V Beckett; A Baines; J Emerson; D B Sanders; R L Gibson; W Morgan; M Rosenfeld
Journal:  J Cyst Fibros       Date:  2017-10-28       Impact factor: 5.482

Review 7.  Background and Epidemiology.

Authors:  Don B Sanders; Aliza K Fink
Journal:  Pediatr Clin North Am       Date:  2016-08       Impact factor: 3.278

8.  Use of proton pump inhibitors is associated with lower hemoglobin levels in people with cystic fibrosis.

Authors:  Alex H Gifford; Julie L Sanville; Meghana Sathe; Sonya L Heltshe; Christopher H Goss
Journal:  Pediatr Pulmonol       Date:  2021-04-26

9.  CFTR Modulator Use Is Associated with Higher Hemoglobin Levels in Individuals with Cystic Fibrosis.

Authors:  Alex H Gifford; Sonya L Heltshe; Christopher H Goss
Journal:  Ann Am Thorac Soc       Date:  2019-03

10.  Comparison of Nutrition and Lung Function Outcomes in Patients with Cystic Fibrosis Living in Canada and the United States.

Authors:  Christopher H Goss; Jenna Sykes; Sanja Stanojevic; Bruce Marshall; Kristofer Petren; Josh Ostrenga; Aliza Fink; Alexander Elbert; Bradley S Quon; Anne L Stephenson
Journal:  Am J Respir Crit Care Med       Date:  2018-03-15       Impact factor: 30.528

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