Literature DB >> 31845036

Patient-recorded benefit from nasal closure in a Danish cohort of patients with hereditary haemorrhagic telangiectasia.

Jonas Hjelm Andersen1, Anette Drøhse Kjeldsen2,3,4.   

Abstract

BACKGROUND: Nasal closure, also known as the modified Young's procedure was introduced in Denmark in 2008, as a surgical solution to severe epistaxis in patients with hereditary haemorrhagic telangiectasia (HHT). The objective of this study was to report the overall satisfaction of the procedure from a patient's point of view as well as the occurrence of complications.
METHODS: All the HHT patients who underwent nasal closure from 2008 to 2018 were included in the study. The patients were evaluated for postoperative complications and subjective outcome using Glasgow Benefit Inventory (GBI).
RESULTS: Ten patients were included in the study and were observed for a mean of 64 months. None of the patients was completely free of complications, and reversal was requested in a single case. Haemoglobin levels rose with an average of 2.8 g/dl. The average GBI score after surgery was 38.05. Nine of ten patients would recommend nasal closure to fellow HHT patients.
CONCLUSION: Nasal closure is highly recommended among patients, but due to the rate of postoperative complications, the procedure should be reserved for a carefully selected group of HHT patients.

Entities:  

Keywords:  Epistaxis; Glasgow Benefit Inventory; HHT; Hereditary hemorrhagic telangiectasia; Hht-center OUH; Nasal closure

Year:  2019        PMID: 31845036     DOI: 10.1007/s00405-019-05758-1

Source DB:  PubMed          Journal:  Eur Arch Otorhinolaryngol        ISSN: 0937-4477            Impact factor:   2.503


  19 in total

1.  The natural history of epistaxis in patients with hereditary hemorrhagic telangiectasia in the Norwegian population: a cross-sectional study.

Authors:  Sinan Dheyauldeen; Michael Abdelnoor; Gregor Bachmann-Harildstad
Journal:  Am J Rhinol Allergy       Date:  2011 Jul-Aug       Impact factor: 2.467

2.  Nasal closure for severe hereditary haemorrhagic telangiectasia in 100 patients. The Lund modification of the Young's procedure: a 22-year experience.

Authors:  V J Lund; Y Darby; J Rimmer; M Amin; S Husain
Journal:  Rhinology       Date:  2017-06-01       Impact factor: 3.681

3.  Efficiency of laser treatment in patients with hereditary hemorrhagic telangiectasia.

Authors:  Gita Jørgensen; Bibi Lange; Jens Højberg Wanscher; Anette Drøhse Kjeldsen
Journal:  Eur Arch Otorhinolaryngol       Date:  2011-06-26       Impact factor: 2.503

4.  The Young's procedure for severe epistaxis from hereditary hemorrhagic telangiectasia.

Authors:  Sara L Richer; Urban W Geisthoff; Nancy Livada; P Daniel Ward; Leland Johnson; Alexander Mainka; Katharine J Henderson; Steffen Maune; Robert I White; Douglas A Ross
Journal:  Am J Rhinol Allergy       Date:  2012 Sep-Oct       Impact factor: 2.467

5.  Diagnostic criteria for hereditary hemorrhagic telangiectasia (Rendu-Osler-Weber syndrome).

Authors:  C L Shovlin; A E Guttmacher; E Buscarini; M E Faughnan; R H Hyland; C J Westermann; A D Kjeldsen; H Plauchu
Journal:  Am J Med Genet       Date:  2000-03-06

6.  Intravenous Bevacizumab for Refractory Hereditary Hemorrhagic Telangiectasia-Related Epistaxis and Gastrointestinal Bleeding.

Authors:  Vivek N Iyer; Dinesh R Apala; Bibek S Pannu; Aditya Kotecha; Waleed Brinjikji; Michael D Leise; Patrick S Kamath; Sanjay Misra; Kebede H Begna; Rodrigo Cartin-Ceba; Hilary M DuBrock; Michael J Krowka; Erin K O'Brien; Rajiv K Pruthi; Darrell R Schroeder; Karen L Swanson
Journal:  Mayo Clin Proc       Date:  2018-01-24       Impact factor: 7.616

7.  Measuring patient benefit from otorhinolaryngological surgery and therapy.

Authors:  K Robinson; S Gatehouse; G G Browning
Journal:  Ann Otol Rhinol Laryngol       Date:  1996-06       Impact factor: 1.547

Review 8.  Hereditary hemorrhagic telangiectasia: diagnosis and management from the hematologist's perspective.

Authors:  Athena Kritharis; Hanny Al-Samkari; David J Kuter
Journal:  Haematologica       Date:  2018-05-24       Impact factor: 9.941

9.  The effects of nasal closure on quality of life in patients with hereditary hemorrhagic telangiectasia.

Authors:  Rhett S Thomson; Nicole L Molin; Kevin J Whitehead; Shaelene Ashby; Leland Johnson; P Daniel Ward; Bryan R McRae; Kevin F Wilson; Jamie McDonald
Journal:  Laryngoscope Investig Otolaryngol       Date:  2018-04-19

Review 10.  The Glasgow Benefit Inventory: a systematic review of the use and value of an otorhinolaryngological generic patient-recorded outcome measure.

Authors:  J Hendry; A Chin; I R C Swan; M A Akeroyd; G G Browning
Journal:  Clin Otolaryngol       Date:  2016-02-07       Impact factor: 2.597

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  1 in total

1.  Endoscopic surgical treatment of epistaxis in hereditary haemorrhagic telangiectasia: our experience.

Authors:  Fabio Pagella; Alessandro Pusateri; Eugenia Maiorano; Giuseppe Spinozzi; Sara Ugolini; Roberta Lizzio; Rosolino Mirabella; Carmine Tinelli; Carla Olivieri; Elina Matti
Journal:  Acta Otorhinolaryngol Ital       Date:  2021-02       Impact factor: 2.124

  1 in total

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