| Literature DB >> 31829292 |
Wendy Shoesmith1, Awang Faisal Bin Awang Borhanuddin2, Emmanuel Joseph Pereira3, Norhayati Nordin4, Beena Giridharan5, Dawn Forman6, Sue Fyfe7.
Abstract
BACKGROUND: The systems that help people with mental disorders in Malaysia include hospitals, primary care, traditional and religious systems, schools and colleges, employers, families and other community members. AIMS: To better understand collaboration between and within these systems and create a theoretical framework for system development.Entities:
Keywords: Collaboration; Malaysia; global mental health; grounded theory; health care systems
Year: 2019 PMID: 31829292 PMCID: PMC7001484 DOI: 10.1192/bjo.2019.92
Source DB: PubMed Journal: BJPsych Open ISSN: 2056-4724
Details of participants
| Participants | |
|---|---|
| Patients | 20 |
| Family members | 11 |
| Staff | 76 |
| Psychiatric hospital | 66 |
| Nurse | 23 |
| Medical assistant | 13 |
| Specialist | 5 |
| Medical officer | 6 |
| Occupational therapist | 3 |
| Physiotherapist | 4 |
| Social worker | 1 |
| Counsellor | 1 |
| Pharmacist | 4 |
| Healthcare assistant | 6 |
| Primary care | 5 |
| District hospital | 5 |
| Community | 27 |
| Village leaders | 8 |
| School counsellors | 5 |
| Religious professionals | 7 |
| Traditional healers | 3 |
| Non-governmental organisation workers | 4 |
| Total | 134 |
Fig. 1Factors that define and enable collaboration.
Relationship between themes (also see Appendix 2 that shows relationships with collaborative behaviours)
| Relationship between… | Examples |
|---|---|
| Relatedness and resources | Staff not knowing patients well reduces their competence to work with a particular patient (for example they are unaware of their educational needs). Time used inefficiently, since the same information is collected from the patient repetitively. |
| Relatedness and motivation towards goal/value | Caring about a patient increases motivation towards common goals and values. Relatedness reduces burnout in staff and increases motivation. Working towards goals/values together increases relatedness. |
| Relatedness and autonomy | Relatedness increases autonomy in both parties, by reducing hierarchy reinforcing stereotypes. Autonomy of staff allows them to work in line with relatedness-based values (for example caring). |
| Resources and autonomy | Lack of time and resources reduce the autonomy of staff to be able to act in line with their values. If staff are able to make decisions autonomously, they can be more efficient. |
| Resources and motivation | Low resources (time, training, physical resources) means people get frustrated and give up. Staff are unable to work towards goals if resources are too low for goals to be reached. Low motivation means resources do not improve – staff, patients and carers are not engaged and stop learning and building. |
| Relatedness and motivation to collaborate | Staff that do not trust each other do not believe the other person will reciprocate if they attempt to collaborate. |
| Resources and motivation to collaborate | Attempting to collaborate risks losing resources (for example time), without getting any closer to goals. Low resources reduce the risk-taking in attempting to collaborate. |
Collaborative behaviours and relationship with other themes (theme 1)
| Collaborative behaviour | Examples and relationship with other themes |
|---|---|
| Accepting and valuing the contribution of the other | Asking for help, referring to each other, valuing and appreciating each other. Hospital staff referred to each other. Staff sometimes mentioned feeling devalued or not listened to when attempting to make contributions. |
| Creating goals and a common vision | Described theoretically by some participants as being important for collaboration. Participants did not describe a regular process by which this happens, and some reported that it does not happen in the hospital.
‘I think what we lack is that we sometimes don't see a common vision for our patient, and I think also each person understands mental illness in a different way, so that is where the main obstacle comes…Because we come from different backgrounds. How to unite these people of different backgrounds will be one major challenge.’ (Specialist 3) |
| Creating and respecting boundaries and roles | Inside the hospital strong role boundaries were described, which were sometimes rigid – for example the role of doctor as ‘decision-maker’ (see Theme 3). Some participants, particularly school councillors reported that their role was not understood or respected. Some crossing of role boundaries by doctors, was causing frustration.
‘We did an assessment…the patient didn't have a problem that needed chest physio…So when I discussed with the doctor he was harsh and said to just do it. Although the patient from the assessment really didn't need it.’ (Physiotherapist 1) |
| Sharing information and learning from each other | Communication was frequently one way, with just a brief referral form. Information was sometimes not shared, for example primary care staff not being aware that a patient had been admitted or discharged. Family medicine specialist 1: ‘The department sends back a small slip saying, “thank-you for your referral we are currently seeing and following up this patient”.’ Student health centre doctor: ‘If you are very lucky, you will get that.’ Family medicine specialist 2: ‘If you are very fortunate.’ Student health centre doctor: ‘Most of the time nothing.’ Family medicine specialist 1: ‘Normally no diagnosis.’ |
| Sharing decision-making and creating a plan | Included eliciting opinions, sharing opinions, listening and coming to a decision together. Shared decision-making was described outside the hospital (for example in families making decisions about seeking help for the first time) between members of the same profession (normally between specialists) and in the community mental health team, but decision-making inside the hospital was rarely shared (see theme 3). |
| Sharing responsibility and accountability | Included proactivity and assertiveness, autonomous helping and following the agreed plan. Staff in the same profession helped each other if one of their colleagues needed help. Some staff deliberately withheld ideas and were not proactive, to avoid blame (see Theme 6). |
| Sharing experiences, rewards and frustrations | Sharing feelings of enjoyment, stress or frustration. ‘Take for example, some of the staff nurse, they do offer some consolation, “it is ok, this patient is always like this”.’ (MO1) |
| Sharing activities and resources | Community participants described joint events, between the hospital and non-governmental organisation workers, religious leaders and other community leaders. Community mental health staff described joint home visits. |
→, collaborative behaviour increases the feature; ←, feature increases the collaborative behaviour; +–, relationship is both positive and negative (further information on relationships in supplementary File 3).
Enablers and barriers to autonomy (theme 3)
| Enablers | Barriers | |
|---|---|---|
| Beliefs | Assumed rules (for example ‘Patients should be given choices’). | Assumed rules (for example ‘The doctor should make the decisions’, ‘The family should supervise and control the patient’). |
| Feelings | Confidence, bravery, respect, feeling respected, acceptance, feeling accepted, feeling responsible, feeling recognised, feeling connected. | Fear, feeling looked down on, fear of punishment or social disapproval if not following assumed rules. |
| Behaviours | Collaborative behaviours: shared decision-making; respecting, accepting and validating the contribution of the other; respecting boundaries and roles; sharing information; sharing responsibility and accountability. | People perceived to be higher in the hierarchy: monitoring, restricting, contingencies (punishments or rewards), giving directives, leaving out of decision-making and non-collaborative communication (for example not listening). |
Benefits, enablers and barriers to relatedness (theme 4)
| Subtheme | Examples |
|---|---|
| Components of relatedness | Caring, support, trust, depth of relationship and acceptance. |
| Benefits of relatedness | Understanding each other, understanding roles, understanding the situation and problems to be solved, increased autonomy in the relationship, feeling supported, open communication, increased influence, enjoyment of the relationship, taking responsibility and better outcomes.
‘For example, the nurses are my friends and that makes it easier to discuss patients. Not like gossip, but for the benefit of the patients.’ (Occupational Therapist 1) |
| Enablers of relatedness | Having a relationship with the same person (for example seeing the same doctor on each visit), collaborative behaviours, competency in relatedness, feeling supported, proactivity (for example home visits, calling a patient who does not come for an appointment), regularity and frequency of meetings and accessibility (for example being able to contact when needed) |
| Barriers to relatedness |
Resources (described in theme 5). Avoidance of difficult emotions associated with relationships, for example patients described how shame about the illness, guilt about being a burden and fears about rejection lead to deliberate distancing from others. Carers described disappointment, sadness, frustration, guilt, shame and anger associated with the relationship with the patient. Staff described sometimes how being unable to provide adequate care for a patient that they cared about (normally because of lack of resources) leads to feelings of shame in the staff involved. Lack of support. For example staff reported feeling blamed by people higher up in the hierarchy, rather than being supported by them to form closer relationships with patients. Fears about managing boundaries. For example staff reported a fear of families or patients become dependent or ‘spoiled’ if they showed too much care. Relatedness not being valued. For example staff described a task-oriented system, where relationships mattered less than tasks, routines and targets. Few staff discussed the benefits of a therapeutic alliance with patients. |
The effect of resources on collaboration (theme 5)
| Subtheme | Examples |
|---|---|
| Time | Healthcare staff report not enough time for collaboration. Sometimes related to autonomy in staff (time spent meeting and documenting targets meant less time to spend with patients).
‘We don't spend more than 5 min. It's always less than 5 min…We do not give them the room or the time and opportunity for them to describe their topic. So usually we don't spend a lot of time. I think this is 2 main questions that we ask, “do you sleep well?” or “do you have a good appetite?” then that's it, finish. It's more like fire fighting.’ (District hospital doctor 1) |
| Competencies | Mental health competencies – perceived lack of knowledge in one party reduced collaborative behaviour (for example patients not getting involved with decisions about their care, because they believed the doctor knows more). |
| Physical resources and opportunities | Resources and opportunities needed to meet goals. Inadequate resources leads to loss of motivation, which reduces collaboration. For example lack of work opportunities for patients causes loss of motivation in staff and patients and reduces collaboration to reach the goal of returning to work. |
| Collaborative spaces | Current collaborative spaces: meetings, ward rounds. Suggested ways to improve collaboration: computer system, patient handheld records, organisation into teams. |