Literature DB >> 31816103

Using stakeholder perspectives to guide systematic adaptation of an autism mental health intervention for Latinx families: A qualitative study.

Colby Chlebowski1,2, Eliana Hurwich-Reiss1,2, Blanche Wright3, Lauren Brookman-Frazee1,2,4.   

Abstract

Embedded within a Hybrid Type 1 randomized effectiveness-implementation trial in publicly funded mental health services, the current study identified stakeholder recommendations to inform cultural adaptations to An Individualized Mental Health Intervention for Autism Spectrum Disorder (AIM HI) for Latinx and Spanish-speaking families. Recommendations were collected through focus groups with therapists (n = 17) and semi-structured interviews with Latinx parents (n = 29). Relevant themes were identified through a rapid assessment analysis process and thematic coding of interviews. Adaptations were classified according to the Framework for Reporting Adaptations and Modifications-Enhanced (FRAME) to facilitate fit, acceptability, and sustained implementation of AIM HI and classify the content, nature, and goals of the adaptations. Recommended adaptations were classified through FRAME as tailoring training and intervention materials, changing packaging or materials, extending intervention pacing, and integrating supplemental training strategies. Goals for adaptations included improving fit for stakeholders, increasing parent engagement, and enhancing intervention effectiveness. The current study illustrates the process of embedding an iterative process of intervention adaptation within a hybrid effectiveness-implementation trial. The next steps in this study are to integrate findings with implementation process data from the parent trial to develop a cultural enhancement to AIM HI and test the enhancement in a Hybrid Type 3 implementation-effectiveness trial.
© 2019 Wiley Periodicals, Inc.

Entities:  

Year:  2019        PMID: 31816103      PMCID: PMC7261618          DOI: 10.1002/jcop.22296

Source DB:  PubMed          Journal:  J Community Psychol        ISSN: 0090-4392


  45 in total

1.  Latino parents' perspectives on barriers to autism diagnosis.

Authors:  Katharine E Zuckerman; Brianna Sinche; Angie Mejia; Martiza Cobian; Thomas Becker; Christina Nicolaidis
Journal:  Acad Pediatr       Date:  2014 May-Jun       Impact factor: 3.107

2.  Commentary: linking cultural competence training to improved health outcomes: perspectives from the field.

Authors:  Joseph R Betancourt; Alexander R Green
Journal:  Acad Med       Date:  2010-04       Impact factor: 6.893

3.  The use of triangulation in qualitative research.

Authors:  Nancy Carter; Denise Bryant-Lukosius; Alba DiCenso; Jennifer Blythe; Alan J Neville
Journal:  Oncol Nurs Forum       Date:  2014-09       Impact factor: 2.172

4.  Bringing Culture Into Parent Training With Latinos.

Authors:  Esther J Calzada
Journal:  Cogn Behav Pract       Date:  2010-05

5.  Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda.

Authors:  Enola Proctor; Hiie Silmere; Ramesh Raghavan; Peter Hovmand; Greg Aarons; Alicia Bunger; Richard Griffey; Melissa Hensley
Journal:  Adm Policy Ment Health       Date:  2011-03

6.  Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities.

Authors:  Sandra Magaña; Susan L Parish; Roderick A Rose; Maria Timberlake; Jamie G Swaine
Journal:  Intellect Dev Disabil       Date:  2012-08

7.  A Balancing Act: Integrating Evidence-Based Knowledge and Cultural Relevance in a Program of Prevention Parenting Research with Latino/a Immigrants.

Authors:  José Rubén Parra-Cardona; Gabriela López-Zerón; Melanie M Domenech Rodríguez; A Rocío Escobar-Chew; Michael R Whitehead; Cris M Sullivan; Guillermo Bernal
Journal:  Fam Process       Date:  2015-10-26

8.  Therapists' Adaptations to an Intervention to Reduce Challenging Behaviors in Children with Autism Spectrum Disorder in Publicly Funded Mental Health Services.

Authors:  Margaret W Dyson; Colby Chlebowski; Lauren Brookman-Frazee
Journal:  J Autism Dev Disord       Date:  2019-03

9.  A two-way street: bridging implementation science and cultural adaptations of mental health treatments.

Authors:  Leopoldo J Cabassa; Ana A Baumann
Journal:  Implement Sci       Date:  2013-08-19       Impact factor: 7.327

Review 10.  Development of a framework and coding system for modifications and adaptations of evidence-based interventions.

Authors:  Shannon Wiltsey Stirman; Christopher J Miller; Katherine Toder; Amber Calloway
Journal:  Implement Sci       Date:  2013-06-10       Impact factor: 7.327

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  5 in total

Review 1.  Mental Health Services for Autistic Individuals Across the Lifespan: Recent Advances and Current Gaps.

Authors:  Brenna B Maddox; Kelsey S Dickson; Nicole A Stadnick; David S Mandell; Lauren Brookman-Frazee
Journal:  Curr Psychiatry Rep       Date:  2021-08-17       Impact factor: 5.285

2.  Collaboration Leading to Addiction Treatment and Recovery from Other Stresses (CLARO): process of adapting collaborative care for co-occurring opioid use and mental disorders.

Authors:  Karen Chan Osilla; Alex R Dopp; Katherine E Watkins; Venice Ceballos; Brian Hurley; Lisa S Meredith; Isabel Leamon; Vanessa Jacobsohn; Miriam Komaromy
Journal:  Addict Sci Clin Pract       Date:  2022-04-08

3.  Perceived and Observed Treatment Gains Following PEERS: A Preliminary Study with Latinx Adolescents with ASD.

Authors:  Elina Veytsman; Elizabeth Baker; Ann Marie Martin; Tricia Choy; Jan Blacher; Katherine Stavropoulos
Journal:  J Autism Dev Disord       Date:  2022-02-14

Review 4.  Stakeholder engagement to inform evidence-based treatment implementation for children's mental health: a scoping review.

Authors:  Noah S Triplett; Grace S Woodard; Clara Johnson; Julie K Nguyen; Rashed AlRasheed; Frank Song; Sophia Stoddard; Jules Cesar Mugisha; Kristen Sievert; Shannon Dorsey
Journal:  Implement Sci Commun       Date:  2022-07-29

5.  A Social Media Group Cognitive Behavioral Therapy Intervention to Prevent Depression in Perinatal Youth: Stakeholder Interviews and Intervention Design.

Authors:  Anupa Gewali; Alana Lopez; Kristin Dachelet; Elise Healy; Marimirca Jean-Baptiste; Holly Harridan; Yolanda Evans; Jennifer A Unger; Amritha Bhat; Darius Tandon; Keshet Ronen
Journal:  JMIR Ment Health       Date:  2021-09-15
  5 in total

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