Literature DB >> 31814797

Consumer (dis-)interest in Genetic Ancestry Testing: The roles of race, immigration, and ancestral certainty.

Adam L Horowitz1, Aliya Saperstein2, Jasmine Little2, Martin Maiers3, Jill A Hollenbach4.   

Abstract

Genetic ancestry testing (GAT) is marketed as a way to make up for missing knowledge about one's ancestry. Previous research questions the GAT industry's ability to fulfill this promise in terms of the validity and reliability of test results. We instead explore the demand side of GAT, evaluating who is most and least likely to express interest in GAT. Using data from an original, nationwide survey of over 100,000 American adults, we find that GAT interest is related to both self-identified race and immigrant generation, with Asian Americans and first-generation immigrants expressing the least interest. Our quantitative and qualitative evidence suggests interest is further shaped by a pre-existing sense of ancestral certainty, leading some individuals to decline GAT, even if it were free. How interest and ancestral certainty are patterned has implications for who is included in - and thus for the conclusions that can be drawn from - genetic ancestry databases.

Entities:  

Keywords:  Consumer Genomics; Immigration and Assimilation; Race

Year:  2019        PMID: 31814797      PMCID: PMC6897494          DOI: 10.1080/14636778.2018.1562327

Source DB:  PubMed          Journal:  New Genet Soc        ISSN: 1463-6778


  21 in total

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3.  Public awareness and use of direct-to-consumer genetic tests: results from 3 state population-based surveys, 2006.

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4.  Bio science: genetic genealogy testing and the pursuit of African ancestry.

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5.  Direct-to-Consumer Genetic Testing: User Motivations, Decision Making, and Perceived Utility of Results.

Authors:  J Scott Roberts; Michele C Gornick; Deanna Alexis Carere; Wendy R Uhlmann; Mack T Ruffin; Robert C Green
Journal:  Public Health Genomics       Date:  2017-01-10       Impact factor: 2.000

6.  A post-genomic surprise. The molecular reinscription of race in science, law and medicine.

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Journal:  Br J Sociol       Date:  2015-03

7.  Different differences: the use of 'genetic ancestry' versus race in biomedical human genetic research.

Authors:  Joan H Fujimura; Ramya Rajagopalan
Journal:  Soc Stud Sci       Date:  2011-02       Impact factor: 3.885

8.  Knowing something versus feeling different:The effects and non-effects of genetic ancestry on racial identity.

Authors:  Janet K Shim; Sonia Rab Alam; Bradley E Aouizerat
Journal:  New Genet Soc       Date:  2018-02-12

9.  Tilting at windmills no longer: a data-driven discussion of DTC DNA ancestry tests.

Authors:  Jennifer K Wagner; Jill D Cooper; Rene Sterling; Charmaine D Royal
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Review 10.  Internet-Based Direct-to-Consumer Genetic Testing: A Systematic Review.

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  4 in total

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2.  Do genetic ancestry tests increase racial essentialism? Findings from a randomized controlled trial.

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3.  Direct-to-consumer genetic testing: Prospective users' attitudes toward information about ancestry and biological relationships.

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4.  Health and kinship matter: Learning about direct-to-consumer genetic testing user experiences via online discussions.

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  4 in total

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