Literature DB >> 31791933

Why parents consent to their children's participation in genetic research: A study of parental decision making.

Sunita Kumari1, Triptish Bhatia2, Nagendra N Mishra3, Nupur Kumari4, Sreelatha S Narayanan5, Deepak Malik6, Smita N Deshpande7.   

Abstract

Parents need to be asked to provide informed consent on behalf of their child for participation in genetic research. Decision making for such parents is difficult because ethical challenges in paediatric genetic research studies are different from similar adult studies. This paper focuses on interviews conducted with parents who were asked to consent to their children's participation (or not) in a genetic research study of intellectual disability and/or autism.

Entities:  

Year:  2019        PMID： 31791933      PMCID： PMC7018624          DOI： 10.20529/IJME.2019.063

Source DB:  PubMed          Journal:  Indian J Med Ethics        ISSN： 0974-8466


  24 in total

1.  Parents' perspectives on participating in genetic research in autism.

Authors:  Magan Trottier; Wendy Roberts; Irene Drmic; Stephen W Scherer; Rosanna Weksberg; Cheryl Cytrynbaum; David Chitayat; Cheryl Shuman; Fiona A Miller
Journal:  J Autism Dev Disord       Date:  2013-03

2.  Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers.

Authors:  Kristien Hens; Herman Nys; Jean-Jacques Cassiman; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2009-08       Impact factor: 4.246

3.  Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles.

Authors:  Laurence Baret; Beatrice Godard
Journal:  Eur J Hum Genet       Date:  2011-06-15       Impact factor: 4.246

4.  Acquisition of cytomegaloviral infections in families with young children: a serological study.

Authors:  L H Taber; A L Frank; M D Yow; A Bagley
Journal:  J Infect Dis       Date:  1985-05       Impact factor: 5.226

5.  Parents' attitudes toward genetic research in autism spectrum disorder.

Authors:  Jarle Johannessen; Terje Nærland; Cinnamon Bloss; Marcella Rietschel; Jana Strohmaier; Elen Gjevik; Arvid Heiberg; Srdjan Djurovic; Ole A Andreassen
Journal:  Psychiatr Genet       Date:  2016-04       Impact factor: 2.458

6.  Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study.

Authors:  Fasil Tekola; Susan Bull; Bobbie Farsides; Melanie J Newport; Adebowale Adeyemo; Charles N Rotimi; Gail Davey
Journal:  BMC Med Ethics       Date:  2009-08-22       Impact factor: 2.652

7.  Evaluation of the ability of clinical research participants to comprehend informed consent form.

Authors:  S Bhansali; N Shafiq; S Malhotra; P Pandhi; Inderjeet Singh; S P Venkateshan; S Siddhu; Y P Sharma; K K Talwar
Journal:  Contemp Clin Trials       Date:  2009-03-31       Impact factor: 2.226

8.  Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent.

Authors:  Barbara A Bernhardt; Ellen S Tambor; Gertrude Fraser; Lawrence S Wissow; Gail Geller
Journal:  Am J Med Genet A       Date:  2003-02-01       Impact factor: 2.802

9.  Taking part in a pharmacogenetic clinical trial: assessment of trial participants understanding of information disclosed during the informed consent process.

Authors:  Diana Rose; Jasna Russo; Til Wykes
Journal:  BMC Med Ethics       Date:  2013-09-11       Impact factor: 2.652

10.  Trust in the health care professional and health outcome: A meta-analysis.

Authors:  Johanna Birkhäuer; Jens Gaab; Joe Kossowsky; Sebastian Hasler; Peter Krummenacher; Christoph Werner; Heike Gerger
Journal:  PLoS One       Date:  2017-02-07       Impact factor: 3.240
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.