Literature DB >> 31791140

Exploring the needs of people with dementia living at home reported by people with dementia and informal caregivers: a systematic review and Meta-analysis.

Eleanor Curnow1, Robert Rush1, Donald Maciver1, Sylwia Górska1, Kirsty Forsyth1.   

Abstract

OBJECTIVES: To provide prevalence estimates of needs of people with dementia living at home, and to determine sources of variation associated with needs for this population.
METHOD: A systematic review and meta-analysis was performed searching CINAHL, MEDLINE, PsycINFO and ASSIA databases. Following quality checks, random effects meta-analysis produced prevalence estimates for needs reported by people with dementia and by their informal caregivers. Fixed effects models were undertaken to compare caregiver and person with dementia reported needs. Heterogeneity was explored through sensitivity analysis. The study protocol was registered with Prospero #CRD42017074119.
RESULTS: Six retrieved studies published between 2005 and 2017 including 1011 people with dementia and 1188 caregivers were included in the analysis. All data were collected using Camberwell Assessment of Need for the Elderly. Prevalence estimates are provided for 24 needs reported by participants in The Netherlands, United Kingdom, Poland, Ireland, Germany, Norway, Portugal, Italy and Sweden. Most prevalent needs reported by people with dementia were Memory 0.713 [95% CI 0.627, 0.791]; Food 0.706 [95% CI 0.547, 0.842]; Household activities 0.677 [95% CI 0.613, 0.738]; and Money 0.566 [95% CI 0.416, 0.711]. Caregivers reported greater prevalence than people with dementia did for 22 of 24 needs, although the priority ranking of needs was similar. Exploration of heterogeneity revealed that people with young onset dementia were the major source of variation for 24 out of 48 analyses.
CONCLUSION: Increased understanding of prevalence of needs of people with dementia and associated heterogeneity can assist in planning services to meet those needs.

Entities:  

Keywords:  Assessment of need; care needs; caregivers; dementia; prevalence

Mesh:

Year:  2019        PMID: 31791140     DOI: 10.1080/13607863.2019.1695741

Source DB:  PubMed          Journal:  Aging Ment Health        ISSN: 1360-7863            Impact factor:   3.658


  8 in total

1.  Care Received and Unmet Care Needs Among Older Parents in Biological and Step Families.

Authors:  Sarah E Patterson; Robert F Schoeni; Vicki A Freedman; Judith A Seltzer
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2022-05-20       Impact factor: 4.942

2.  The Influence of Prior Functional Status on Self-Care Improvement During a Skilled Nursing Facility Stay.

Authors:  Brian Downer; Ioannis Malagaris; Chih-Ying Li; Mi Jung Lee; Rachel Deer
Journal:  J Am Med Dir Assoc       Date:  2022-04-05       Impact factor: 7.802

3.  Comparing Behavioral and Psychological Symptoms of Dementia and Caregiver Distress Caused Between Older Adults With Dementia Living in the Community and in Nursing Homes.

Authors:  Xuejiao Lu; Rui Ye; Jialan Wu; Dongping Rao; Xiaoyan Liao
Journal:  Front Psychiatry       Date:  2022-05-16       Impact factor: 5.435

4.  Met and unmet care needs of home-living people with dementia in China: An observational study using the Camberwell Assessment of Need for the Elderly.

Authors:  Juxia Zhang; Xiaoqing Xu; LiMei Yang; Jiancheng Wang
Journal:  Geriatr Gerontol Int       Date:  2020-11-25       Impact factor: 2.730

5.  Examining Dementia Family Caregivers' Forgone Care for General Practitioners and Medical Specialists during a COVID-19 Lockdown.

Authors:  Perla Werner; Aviad Tur-Sinai; Hanan AboJabel
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Review 6.  Assessment tools for measurement of dementia-friendliness of a community: A scoping review.

Authors:  Laura G Diaz; Evelyne Durocher; Paula Gardner; Carrie McAiney; Vishal Mokashi; Lori Letts
Journal:  Dementia (London)       Date:  2022-05-11

7.  Explaining Caregivers' Perceptions of Palliative Care Unmet Needs in Iranian Alzheimer's Patients: A Qualitative Study.

Authors:  Hadis Ashrafizadeh; Mahin Gheibizadeh; Maryam Rassouli; Fatemeh Hajibabaee; Shahnaz Rostami
Journal:  Front Psychol       Date:  2021-07-01

8.  The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic-A Qualitative Study.

Authors:  Maria Maćkowiak; Adrianna Senczyszyn; Katarzyna Lion; Elżbieta Trypka; Monika Małecka; Marta Ciułkowicz; Justyna Mazurek; Roksana Świderska; Clarissa Giebel; Mark Gabbay; Joanna Rymaszewska; Dorota Szcześniak
Journal:  Healthcare (Basel)       Date:  2021-12-03
  8 in total

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