Literature DB >> 31763333

Assessment of the Readability, Adequacy, and Suitability of Online Patient Education Resources for Benign Vascular Tumours Using the DISCERN Instrument.

Minh N Q Huynh1, Katie E Hicks1, Claudia Malic2.   

Abstract

OBJECTIVE: This study aims to assess the quality and readability of Internet-based patient resources for vascular tumours in order to understand which areas require improvement.
METHODS: A World Wide Web search was performed, in addition to a literature review using PubMed, Ovid MEDLINE, and EMBASE. Any material that contained information on vascular tumours pertaining to patient education was included. We evaluated resources with DISCERN and Flesch Reading Ease scores when applicable. The language of publication was restricted to English and French. This review was registered with PROSPERO (CRD42018087885).
RESULTS: A total of 117 online resources were screened, with 73 resources included in the final analysis. The overall DISCERN rating for the patient resources was 1.8 (0.8). The majority of online resources failed to depict the entire spectrum of benign vascular tumours. The mean Flesch score was 36 (19), which translates to a college-level readability.
CONCLUSION: The majority of resources were not adequate or comprehensive and were written at a much higher level than the average reader would be expected to comprehend.
© 2019 The Author(s).

Entities:  

Keywords:  comprehension; haemangioma; health literacy; patient education as topic; pediatric; vascular anomalies; vascular tumour

Year:  2019        PMID: 31763333      PMCID: PMC6851725          DOI: 10.1177/2292550319880911

Source DB:  PubMed          Journal:  Plast Surg (Oakv)        ISSN: 2292-5503            Impact factor:   0.947


  36 in total

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Authors:  Kate de Kanter
Journal:  Dermatol Nurs       Date:  2002-10

2.  Neonatal hemangiomatosis.

Authors:  Laura Yousenasna
Journal:  Dermatol Nurs       Date:  2007-02

Review 3.  Low health literacy and health outcomes: an updated systematic review.

Authors:  Nancy D Berkman; Stacey L Sheridan; Katrina E Donahue; David J Halpern; Karen Crotty
Journal:  Ann Intern Med       Date:  2011-07-19       Impact factor: 25.391

4.  Readability analysis of online resources related to lung cancer.

Authors:  Kathleen D Weiss; Christina R Vargas; Olivia A Ho; Danielle J Chuang; Jonathan Weiss; Bernard T Lee
Journal:  J Surg Res       Date:  2016-07-16       Impact factor: 2.192

5.  Health Literacy and Outcomes in Patients With Heart Failure: A Prospective Community Study.

Authors:  Matteo Fabbri; Kathleen Yost; Lila J Finney Rutten; Sheila M Manemann; Cynthia M Boyd; Daniel Jensen; Susan A Weston; Ruoxiang Jiang; Véronique L Roger
Journal:  Mayo Clin Proc       Date:  2017-12-06       Impact factor: 7.616

6.  Patient Education Materials in Dermatology: Addressing the Health Literacy Needs of Patients.

Authors:  Arpan V Prabhu; Raghav Gupta; Christopher Kim; Ahmed Kashkoush; David R Hansberry; Nitin Agarwal; Ellen Koch
Journal:  JAMA Dermatol       Date:  2016-08-01       Impact factor: 10.282

7.  Hemangiomas and vascular malformations in infants and children: a classification based on endothelial characteristics.

Authors:  J B Mulliken; J Glowacki
Journal:  Plast Reconstr Surg       Date:  1982-03       Impact factor: 4.730

8.  Information about infantile hemangiomas on the Internet: how accurate is it?

Authors:  Karen Minzer-Conzetti; Maria C Garzon; Anita N Haggstrom; Kimberly A Horii; Anthony J Mancini; Kimberly D Morel; Brandon Newell; Amy J Nopper; Ilona J Frieden
Journal:  J Am Acad Dermatol       Date:  2007-08-08       Impact factor: 11.527

Review 9.  Epidemiology, diagnostics and treatment of vascular tumours and malformations.

Authors:  Piotr Wójcicki; Karolina Wójcicka
Journal:  Adv Clin Exp Med       Date:  2014 May-Jun       Impact factor: 1.727

Review 10.  Medication adherence in patients with rheumatoid arthritis: the effect of patient education, health literacy, and musculoskeletal ultrasound.

Authors:  Samantha Joplin; Rick van der Zwan; Fredrick Joshua; Peter K K Wong
Journal:  Biomed Res Int       Date:  2015-04-28       Impact factor: 3.411

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