Literature DB >> 17689833

Information about infantile hemangiomas on the Internet: how accurate is it?

Karen Minzer-Conzetti1, Maria C Garzon, Anita N Haggstrom, Kimberly A Horii, Anthony J Mancini, Kimberly D Morel, Brandon Newell, Amy J Nopper, Ilona J Frieden.   

Abstract

OBJECTIVES: We sought to measure the type, content, and quality of World Wide Web sites retrieved when conducting an Internet search for infantile hemangiomas.
METHODS: Fifty World Wide Web sites from a Google search for "hemangioma" were examined. Relevant sites were characterized, and content was evaluated by 8 pediatric dermatologists.
RESULTS: The most accurate subjects were the description of risk factors and natural history, whereas the least accurate areas were photographic representation of the disease and presentation of treatment options. Four sites were considered accurate, and the majority of raters would recommend these sites to parents. LIMITATIONS: Internet sites and search results change.
CONCLUSIONS: An Internet search for information about infantile hemangiomas yields few sites that accurately depict the full disease spectrum from innocuous to severe. Online educational resources containing a broader overview of the real disease spectrum of infantile hemangiomas are needed. Such sites should include large numbers of photographs, evidence-based content, and resources for parental support.

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Year:  2007        PMID: 17689833     DOI: 10.1016/j.jaad.2007.06.038

Source DB:  PubMed          Journal:  J Am Acad Dermatol        ISSN: 0190-9622            Impact factor:   11.527


  3 in total

1.  Assessment of the Readability, Adequacy, and Suitability of Online Patient Education Resources for Benign Vascular Tumours Using the DISCERN Instrument.

Authors:  Minh N Q Huynh; Katie E Hicks; Claudia Malic
Journal:  Plast Surg (Oakv)       Date:  2019-10-23       Impact factor: 0.947

Review 2.  Comparing the use of an online expert health network against common information sources to answer health questions.

Authors:  Martijn D F Rhebergen; Annet F Lenderink; Frank J H van Dijk; Carel T J Hulshof
Journal:  J Med Internet Res       Date:  2012-02-02       Impact factor: 5.428

3.  Do health promotion messages integrate unintended pregnancy and STI prevention? A content analysis of online information for adolescents and young adults.

Authors:  Riley J Steiner; Catherine N Rasberry; Jessica M Sales; Laura M Gaydos; Karen Pazol; Michael R Kramer; Andrea Swartzendruber
Journal:  Contraception       Date:  2018-04-21       Impact factor: 3.051

  3 in total

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