J Nicholas Dionne-Odom1, Erin R Currie2, Emily E Johnston3, Abby R Rosenberg4. 1. School of Nursing, University of Alabama at Birmingham (UAB), Birmingham, AL; Caregiver and Bereavement Support Services, UAB Center for Palliative and Supportive Care, Birmingham, AL. Electronic address: dionneod@uab.edu. 2. School of Nursing, University of Alabama at Birmingham (UAB), Birmingham, AL. 3. School of Medicine, University of Alabama at Birmingham, Birmingham, AL. 4. Division of Hematology-Oncology and Division of Bioethics and Palliative Care, Department of Pediatrics, School of Medicine, University of Washington, Seattle, WA.
Abstract
OBJECTIVES: To describe the needs and formal assessment of family caregivers and ways to intervene to alleviate distress and enhance caregiving skills in the setting of adult and pediatric leukemia. DATA SOURCES: Literature review, clinical practice observations and experiences. CONCLUSION: While rapid treatment advances in leukemia are a welcome development, the reliance on complex care delivered by family members across settings continues to grow and, concomitantly, so does the risk of mental, physical, and economic burden. IMPLICATIONS FOR NURSING PRACTICE: Oncology nurses and other clinicians should systematically incorporate screening and assessment services so that educational and referral needs are identified and intervened upon.
OBJECTIVES: To describe the needs and formal assessment of family caregivers and ways to intervene to alleviate distress and enhance caregiving skills in the setting of adult and pediatric leukemia. DATA SOURCES: Literature review, clinical practice observations and experiences. CONCLUSION: While rapid treatment advances in leukemia are a welcome development, the reliance on complex care delivered by family members across settings continues to grow and, concomitantly, so does the risk of mental, physical, and economic burden. IMPLICATIONS FOR NURSING PRACTICE: Oncology nurses and other clinicians should systematically incorporate screening and assessment services so that educational and referral needs are identified and intervened upon.
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Authors: Abby R Rosenberg; Chuan Zhou; Miranda C Bradford; Krysta Barton; Courtney C Junkins; Mallory Taylor; Erin K Kross; J Randall Curtis; J Nicholas Dionne-Odom; Joyce P Yi-Frazier Journal: J Palliat Med Date: 2021-03-15 Impact factor: 2.947
Authors: Carma L Bylund; Easton N Wollney; Gemme Campbell-Salome; Allison J Applebaum; Samantha R Paige; Kennan DeGruccio; Elisa Weiss; Maria Sae-Hau; Jason Arnold; Domenic Durante; Tithi B Amin; Chelsea N Hampton; Carla L Fisher Journal: JMIR Cancer Date: 2022-07-05
Authors: Carla L Fisher; Kevin B Wright; Chelsea N Hampton; Taylor S Vasquez; Amanda Kastrinos; Allison J Applebaum; Maria Sae-Hau; Elisa S Weiss; Greg Lincoln; Carma L Bylund Journal: Transl Behav Med Date: 2021-05-25 Impact factor: 3.046