Literature DB >> 31699175

An examination of Latino advanced cancer patients' and their informal caregivers' preferences for communication about advance care planning: A qualitative study.

Megan Johnson Shen1,2, Cyndi Gonzalez1,2, Benjamin Leach3, Paul K Maciejewski2,4, Elissa Kozlov1,2, Holly G Prigerson1,2.   

Abstract

OBJECTIVES: Latino-advanced cancer patients engage in advance care planning (ACP) at lower rates than non-Latino patients. The goal of the present study was to understand patients' and caregivers' preferred methods of communicating about ACP.
METHODS: Patients and caregivers were interviewed about cultural, religious, and familial beliefs that influence engagement in ACP and preferences for ACP communication.
RESULTS: Findings highlighted that Latino patients respect doctors' medical advice, prefer the involvement of family members in ACP discussions with doctors, hold optimistic religious beliefs (e.g., belief in miracles) that hinder ACP discussions, and prefer culturally competent approaches, such as using their native language, for learning how to discuss end-of-life (EoL) care preferences. SIGNIFICANCE OF
RESULTS: Key cultural, religious, and familial beliefs and dynamics influence Latino engagement in ACP. Patients prefer a family-centered, physician informed approach to discussing ACP with consideration and incorporation of their religious medical beliefs about EoL care. Promising targets for improving the communication of and engagement in ACP include integrating cultural and religious beliefs in ACP discussions, providing information about ACP from the physician, involving family members in ACP discussions and decision-making, and giving instructions on how to engage in ACP discussions.

Entities:  

Keywords:  Advance care planning; Cancer; Communication; End-of-life care; Health disparities; Latino

Mesh:

Year:  2020        PMID: 31699175      PMCID: PMC7205556          DOI: 10.1017/S1478951519000890

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  18 in total

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Authors:  Susan Enguidanos; Judy Yip; Kathleen Wilber
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2.  Examining cultural factors that influence treatment decisions: a pilot study of Latino men with cancer.

Authors:  Iraida V Carrion; Frances R Nedjat-Haiem; David X Marquez
Journal:  J Cancer Educ       Date:  2013-12       Impact factor: 2.037

Review 3.  Racial/ethnic disparities in hospice care: a systematic review.

Authors:  Lilian Liou Cohen
Journal:  J Palliat Med       Date:  2008-06       Impact factor: 2.947

4.  Racial differences in end-of-life planning: why don't Blacks and Latinos prepare for the inevitable?.

Authors:  Deborah Carr
Journal:  Omega (Westport)       Date:  2011

5.  Ethnicity and attitudes towards life sustaining technology.

Authors:  L J Blackhall; G Frank; S T Murphy; V Michel; J M Palmer; S P Azen
Journal:  Soc Sci Med       Date:  1999-06       Impact factor: 4.634

6.  Racial differences in doctors' information-giving and patients' participation.

Authors:  Howard S Gordon; Richard L Street; Barbara F Sharf; Julianne Souchek
Journal:  Cancer       Date:  2006-09-15       Impact factor: 6.860

7.  Patient assertiveness and physician decision-making among older breast cancer patients.

Authors:  E Krupat; J T Irish; L E Kasten; K M Freund; R B Burns; M A Moskowitz; J B McKinlay
Journal:  Soc Sci Med       Date:  1999-08       Impact factor: 4.634

8.  Racial and ethnic differences in advance care planning among patients with cancer: impact of terminal illness acknowledgment, religiousness, and treatment preferences.

Authors:  Alexander K Smith; Ellen P McCarthy; Elizabeth Paulk; Tracy A Balboni; Paul K Maciejewski; Susan D Block; Holly G Prigerson
Journal:  J Clin Oncol       Date:  2008-09-01       Impact factor: 44.544

9.  Experiences with advanced cancer among Latinas in a public health care system.

Authors:  Frances R Nedjat-Haiem; Karl A Lorenz; Kathleen Ell; Alison Hamilton; Lawrence Palinkas
Journal:  J Pain Symptom Manage       Date:  2012-05-09       Impact factor: 3.612

10.  Psychosocial concerns among Latinas with life-limiting advanced cancers.

Authors:  Frances R Nedjat-Haiem; Iraida V Carrion; Karl A Lorenz; Kathleen Ell; Lawrence Palinkas
Journal:  Omega (Westport)       Date:  2013
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  4 in total

1.  Fighting racism in research.

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Journal:  Palliat Support Care       Date:  2021-10

2.  Four Kinds of Hard: An Understanding of Cancer and Death among Latino Community Leaders.

Authors:  Kim L Larson; Holly F Mathews; Janet P Moye; Marianne R Congema; Sarah J Hoffman; Karla M Murrieta; Lee Ann Johnson
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3.  Cultural adaptation of meaning-centered psychotherapy for latino families: a protocol.

Authors:  Normarie Torres Blasco; Rosario Costas Muñiz; Carolina Zamore; Laura Porter; Maria Claros; Guillermo Bernal; Megan Johnson Shen; William Breitbart; E M Castro
Journal:  BMJ Open       Date:  2022-04-04       Impact factor: 2.692

4.  Family as a Bridge to Improve Meaning in Latinx Individuals Coping with Cancer.

Authors:  Normarie Torres-Blasco; Rosario Costas-Muñiz; Carolina Zamore; Laura Porter; Maria Claros; Guillermo Bernal; Megan J Shen; William Breitbart; Lianel Rosario; Cristina Peña-Vargas; Eida M Castro-Figueroa
Journal:  Palliat Med Rep       Date:  2022-09-05
  4 in total

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