Mariela Acuña Mora1, Markus Saarijärvi2, Carina Sparud-Lundin3, Philip Moons4, Ewa-Lena Bratt5. 1. Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium. Electronic address: mariela.acuna.mora@gu.se. 2. Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium. Electronic address: markus.saarijarvi@gu.se. 3. Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden. Electronic address: carina.s-lundin@fhs.gu.se. 4. Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; KU Leuven Department of Public Health and Primary Care, Leuven, Belgium; Department of Paediatrics and Child Health, University of Cape Town, South Africa. Electronic address: philip.Moons@med.kuleuven.be. 5. Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Sweden. Electronic address: ewa-lena.bratt@gu.se.
Abstract
PURPOSE: Describe the implementation of intervention mapping in the development of a transition program that aims to empower adolescents with congenital heart disease. DESIGN AND METHODS: To gain a better understanding of the problem, we conducted a literature review, focus group and individual interviews, and a cross-sectional survey. This information helped us decide on the scope of the intervention, relevant theories, determinants, formulate performance and change objectives and identify adequate evidence-based change methods. Once the transition program had been designed, effectiveness and process evaluation studies were planned. RESULTS: Young persons with congenital heart disease have insufficient disease-related knowledge, self-management skills and high parental involvement. The transition program involves three meetings with a trained transition coordinator over a two-and-a-half-year period and targets young persons with congenital heart disease and their parents. The transition coordinators use change techniques such as goal-setting, modeling and active learning in order to target three personal determinants (knowledge, self-efficacy and self-management). CONCLUSIONS: The use of intervention mapping may lead to designing interventions tailored to the needs of the targeted population. The transition program described in this paper is currently being evaluated in a hybrid experimental design with simultaneous undertaking of the process evaluation. PRACTICE IMPLICATIONS: This transition program can lead to the empowerment of young persons with congenital heart disease and help them in the process of becoming more responsible for their care. If proven effective, it can be implemented for other chronic conditions.
PURPOSE: Describe the implementation of intervention mapping in the development of a transition program that aims to empower adolescents with congenital heart disease. DESIGN AND METHODS: To gain a better understanding of the problem, we conducted a literature review, focus group and individual interviews, and a cross-sectional survey. This information helped us decide on the scope of the intervention, relevant theories, determinants, formulate performance and change objectives and identify adequate evidence-based change methods. Once the transition program had been designed, effectiveness and process evaluation studies were planned. RESULTS: Young persons with congenital heart disease have insufficient disease-related knowledge, self-management skills and high parental involvement. The transition program involves three meetings with a trained transition coordinator over a two-and-a-half-year period and targets young persons with congenital heart disease and their parents. The transition coordinators use change techniques such as goal-setting, modeling and active learning in order to target three personal determinants (knowledge, self-efficacy and self-management). CONCLUSIONS: The use of intervention mapping may lead to designing interventions tailored to the needs of the targeted population. The transition program described in this paper is currently being evaluated in a hybrid experimental design with simultaneous undertaking of the process evaluation. PRACTICE IMPLICATIONS: This transition program can lead to the empowerment of young persons with congenital heart disease and help them in the process of becoming more responsible for their care. If proven effective, it can be implemented for other chronic conditions.
Authors: Markus Saarijärvi; Lars Wallin; Philip Moons; Hanna Gyllensten; Ewa-Lena Bratt Journal: BMC Health Serv Res Date: 2022-02-05 Impact factor: 2.655
Authors: Anitha S John; Jamie L Jackson; Philip Moons; Karen Uzark; Andrew S Mackie; Susan Timmins; Keila N Lopez; Adrienne H Kovacs; Michelle Gurvitz Journal: J Am Heart Assoc Date: 2022-03-17 Impact factor: 6.106
Authors: Markus Saarijärvi; Lars Wallin; Philip Moons; Hanna Gyllensten; Ewa-Lena Bratt Journal: BMC Health Serv Res Date: 2021-06-10 Impact factor: 2.655
Authors: Anna Lena Brorsson; Ewa-Lena Bratt; Philip Moons; Anna Ek; Elisabeth Jelleryd; Torun Torbjörnsdotter; Carina Sparud-Lundin Journal: BMJ Open Date: 2020-04-14 Impact factor: 2.692