Literature DB >> 31663205

Comparing preferences for return of genome sequencing results assessed with rating and ranking items.

Suhan Guo1, Melody Goodman1, Kimberly Kaphingst2.   

Abstract

Entities:  

Keywords:  breast cancer; genetic counseling; genome sequencing; patient; preferences; return of results; secondary findings

Year:  2019        PMID： 31663205      PMCID： PMC7012659          DOI： 10.1002/jgc4.1186

Source DB:  PubMed          Journal:  J Genet Couns        ISSN： 1059-7700            Impact factor:   2.537


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  14 in total

1.  The measurement of personal values in survey research: a test of alternative rating procedures.

Authors:  J A McCarty; L J Shrum
Journal:  Public Opin Q       Date:  2000

2.  Factors affecting breast cancer patients' need for genetic risk information: From information insufficiency to information need.

Authors:  Soo Jung Hong; Barbara Biesecker; Jennifer Ivanovich; Melody Goodman; Kimberly A Kaphingst
Journal:  J Genet Couns       Date:  2019-01-24       Impact factor: 2.537

3.  Retention and use of breast cancer recurrence risk information from genomic tests: the role of health literacy.

Authors:  Sarah E Lillie; Noel T Brewer; Suzanne C O'Neill; Edward F Morrill; E Claire Dees; Lisa A Carey; Barbara K Rimer
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2007-01-30       Impact factor: 4.254

4.  The ClinSeq Project: piloting large-scale genome sequencing for research in genomic medicine.

Authors:  Leslie G Biesecker; James C Mullikin; Flavia M Facio; Clesson Turner; Praveen F Cherukuri; Robert W Blakesley; Gerard G Bouffard; Peter S Chines; Pedro Cruz; Nancy F Hansen; Jamie K Teer; Baishali Maskeri; Alice C Young; Teri A Manolio; Alexander F Wilson; Toren Finkel; Paul Hwang; Andrew Arai; Alan T Remaley; Vandana Sachdev; Robert Shamburek; Richard O Cannon; Eric D Green
Journal:  Genome Res       Date:  2009-07-14       Impact factor: 9.043

5.  Preferences for learning different types of genome sequencing results among young breast cancer patients: Role of psychological and clinical factors.

Authors:  Kimberly A Kaphingst; Jennifer Ivanovich; Sarah Lyons; Barbara Biesecker; Rebecca Dresser; Ashley Elrick; Cindy Matsen; Melody Goodman
Journal:  Transl Behav Med       Date:  2018-01-29       Impact factor: 3.046

6.  Psychosocial and Clinical Factors Associated with Family Communication of Cancer Genetic Test Results among Women Diagnosed with Breast Cancer at a Young Age.

Authors:  Ashley Elrick; Sato Ashida; Jennifer Ivanovich; Sarah Lyons; Barbara B Biesecker; Melody S Goodman; Kimberly A Kaphingst
Journal:  J Genet Couns       Date:  2016-07-16       Impact factor: 2.537

7.  Patients' understanding of and responses to multiplex genetic susceptibility test results.

Authors:  Kimberly A Kaphingst; Colleen M McBride; Christopher Wade; Sharon Hensley Alford; Robert Reid; Eric Larson; Andreas D Baxevanis; Lawrence C Brody
Journal:  Genet Med       Date:  2012-07       Impact factor: 8.822

8.  Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics.

Authors:  Sarah S Kalia; Kathy Adelman; Sherri J Bale; Wendy K Chung; Christine Eng; James P Evans; Gail E Herman; Sophia B Hufnagel; Teri E Klein; Bruce R Korf; Kent D McKelvey; Kelly E Ormond; C Sue Richards; Christopher N Vlangos; Michael Watson; Christa L Martin; David T Miller
Journal:  Genet Med       Date:  2016-11-17       Impact factor: 8.822

9.  Assessment of Survivor Concerns (ASC): a newly proposed brief questionnaire.

Authors:  Carolyn C Gotay; Ian S Pagano
Journal:  Health Qual Life Outcomes       Date:  2007-03-13       Impact factor: 3.186

10.  How, who, and when: preferences for delivery of genome sequencing results among women diagnosed with breast cancer at a young age.

Authors:  Kimberly A Kaphingst; Jennifer Ivanovich; Ashley Elrick; Rebecca Dresser; Cindy Matsen; Melody S Goodman
Journal:  Mol Genet Genomic Med       Date:  2016-10-24       Impact factor: 2.183
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  3 in total

1.  Return of individual research results from genomic research: A systematic review of stakeholder perspectives.

Authors:  Danya F Vears; Joel T Minion; Stephanie J Roberts; James Cummings; Mavis Machirori; Mwenza Blell; Isabelle Budin-Ljøsne; Lorraine Cowley; Stephanie O M Dyke; Clara Gaff; Robert Green; Alison Hall; Amber L Johns; Bartha M Knoppers; Stephanie Mulrine; Christine Patch; Eva Winkler; Madeleine J Murtagh
Journal:  PLoS One       Date:  2021-11-08       Impact factor: 3.240

2.  Interest in Cancer Predisposition Testing and Carrier Screening Offered as Part of Routine Healthcare Among an Ethnically Diverse Sample of Young Women.

Authors:  Kimberly A Kaphingst; Jemar R Bather; Brianne M Daly; Daniel Chavez-Yenter; Alexis Vega; Wendy K Kohlmann
Journal:  Front Genet       Date:  2022-04-14       Impact factor: 4.772

3.  Preferences for return of germline genome sequencing results for cancer patients and their genetic relatives in a research setting.

Authors:  Megan C Best; Phyllis Butow; Jacqueline Savard; Chris Jacobs; Nicole Bartley; Grace Davies; Christine E Napier; Mandy L Ballinger; David M Thomas; Barbara Biesecker; Katherine M Tucker; Ilona Juraskova; Bettina Meiser; Timothy Schlub; Ainsley J Newson
Journal:  Eur J Hum Genet       Date:  2022-03-11       Impact factor: 5.351
  3 in total

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