Literature DB >> 31657121

Crowdsourced analysis of factors and misconceptions associated with parental willingness to donate their child's organs.

Amy H Jones1,2, Marni B Jacobs3, Tessie W October1,2.   

Abstract

We evaluated factors associated with a parental willingness to donate their child's organs. A twenty-one-question survey was administered to US parents with at least one child to measure organ donation acceptability and brain death beliefs using an online crowdsourcing medium, Amazon's Mechanical Turk Prime. We collected 425 surveys; 76% were willing to donate their own and 65% willing to donate their child's organs. Parents who agreed brain death was synonymous with death (47%) were 2.37 times more willing to donate. Compared with White respondents, Black (OR 5.27, CI 2.81, 9.88) and Hispanic (OR 2.24, CI 1.06-4.75) participants were more likely to believe doctors "steal organs from patients" and "declare someone dead based on their skin color" (OR 4.97, CI 2.65-9.32; OR 2.19, CI 1.01-4.72, respectively). Lower income participants were also more likely to believe doctors "steal organs from patients," OR 0.81 (95% CI 0.68-0.96 for increasing income) and "declare someone dead based on how much money they have," OR 0.80 (95% CI 0.67-0.96 for increasing income). Confusion surrounding brain death and skepticism (particularly among racial and ethnic minorities and lower socioeconomic groups) toward doctors' motivations for donation contribute to lack of parental willingness to donate.
© 2019 Wiley Periodicals, Inc.

Entities:  

Keywords:  brain death; surveys and questionnaires; tissue and organ procurement

Year:  2019        PMID: 31657121      PMCID: PMC7347227          DOI: 10.1111/petr.13606

Source DB:  PubMed          Journal:  Pediatr Transplant        ISSN: 1397-3142


  30 in total

1.  Trust the Internet or Trust Your Physician: Public Perception of Brain Death Isn't a No Brainer.

Authors:  Anthony A Sochet; Thomas A Nakagawa
Journal:  Chest       Date:  2018-08       Impact factor: 9.410

2.  Factors affecting consent in pediatric critical care research.

Authors:  Kusum Menon; Roxanne E Ward; Isabelle Gaboury; Margot Thomas; Ari Joffe; Karen Burns; Deborah Cook
Journal:  Intensive Care Med       Date:  2011-11-26       Impact factor: 17.440

3.  Guidelines for the determination of brain death in infants and children: an update of the 1987 task force recommendations-executive summary.

Authors:  Thomas A Nakagawa; Stephen Ashwal; Mudit Mathur; Mohan Mysore
Journal:  Ann Neurol       Date:  2012-04       Impact factor: 10.422

4.  Organ donation in children: role of the pediatric intensive care unit.

Authors:  E Tsai; S D Shemie; P N Cox; S Furst; L McCarthy; D Hebert
Journal:  Pediatr Crit Care Med       Date:  2000-10       Impact factor: 3.624

5.  Investigation of Public Perception of Brain Death Using the Internet.

Authors:  Amy H Jones; Zoelle B Dizon; Tessie W October
Journal:  Chest       Date:  2018-01-31       Impact factor: 9.410

6.  Deceased organ donation consent rates among racial and ethnic minorities and older potential donors.

Authors:  David S Goldberg; Scott D Halpern; Peter P Reese
Journal:  Crit Care Med       Date:  2013-02       Impact factor: 7.598

Review 7.  Attitudes, beliefs and behaviors surrounding organ donation among Hispanic women.

Authors:  Carmen Radecki Breitkopf
Journal:  Curr Opin Organ Transplant       Date:  2009-04       Impact factor: 2.640

8.  Pediatric organ donation: a national survey examining consent rates and characteristics of donor hospitals.

Authors:  Patricia A Webster; Lori Markham
Journal:  Pediatr Crit Care Med       Date:  2009-07       Impact factor: 3.624

Review 9.  Modifiable factors influencing relatives' decision to offer organ donation: systematic review.

Authors:  Arabella L Simpkin; Laura C Robertson; Vicki S Barber; J Duncan Young
Journal:  BMJ       Date:  2009-04-21

10.  TurkPrime.com: A versatile crowdsourcing data acquisition platform for the behavioral sciences.

Authors:  Leib Litman; Jonathan Robinson; Tzvi Abberbock
Journal:  Behav Res Methods       Date:  2017-04
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