Literature DB >> 31605539

The Caregiver Burden of Delirium in Older Adults With Alzheimer Disease and Related Disorders.

Tamara G Fong1,2, Annie M Racine1,3, Donna M Fick4, Patricia Tabloski5, Yun Gou1, Eva M Schmitt1, Tammy T Hshieh1,6, Eran Metzger1,7, Sylvie E Bertrand1, Edward R Marcantonio1,8, Richard N Jones1,9, Sharon K Inouye1,4.   

Abstract

OBJECTIVES: To measure the burden of delirium in older adults with or without Alzheimer disease or related disorders (ADRDs).
DESIGN: Prospective, observational cohort.
SETTING: Inpatient hospital and study participants' homes. PARTICIPANTS: A subset (n = 267) of older medical and surgical patients and their caregivers enrolled in the Better Assessment of Illness study. MEASUREMENTS: Delirium burden was measured using the DEL-B instrument (range = 0-40, with higher scores indicating greater burden) in caregivers (DEL-B-C) and patients 1 month after hospitalization. Severity of cognitive impairment (Montreal Cognitive Assessment [MoCA]), delirium presence (Confusion Assessment Method [CAM]), and delirium severity (CAM-Severity [CAM-S]) were measured during hospitalization and at 1-month follow-up. ADRD diagnosis was determined by a clinical consensus process.
RESULTS: For patients with (n = 56) and without (n = 211) ADRD, both DEL-B instruments had good internal consistency. DEL-B-C scores had a median (interquartile range) among caregivers of patients with and without ADRD of 9 (5-15) and 5 (1-11), respectively (P < .05). If the patient developed delirium, caregivers experienced greater burden (β[delirium × ADRD] = -.29; P = .42), regardless of ADRD status. Further, caregiver burden was modestly correlated with patient MoCA scores (Spearman correlation coefficient, ρ = -0.18; P = .01). Patients with ADRD who developed delirium self-reported less burden than those without ADRD (β[delirium × ADRD] = -.67; P = .044). As with caregivers, delirium burden was modestly correlated with patient MoCA score (ρ = -0.18; P = .005) and correlated with the CAM-S in patients without ADRD (ρ = 0.38; P < .001) but not for patients with ADRD (ρ = -0.07; P = .61).
CONCLUSIONS: Delirium resulted in the same degree of increased caregiver burden regardless of whether a patient had ADRD, signifying delirium is equally stressful to caregivers, even among those with experience caring for someone with a chronic cognitive disorder. Delirium burden is only modestly associated with degree of cognitive impairment, suggesting that other aspects of delirium contribute to burden. J Am Geriatr Soc 67:2587-2592, 2019.
© 2019 The American Geriatrics Society.

Entities:  

Keywords:  Alzheimer disease; Alzheimer disease or related disorder; caregiver burden; delirium burden; dementia; patient burden

Mesh:

Year:  2019        PMID: 31605539      PMCID: PMC6898752          DOI: 10.1111/jgs.16199

Source DB:  PubMed          Journal:  J Am Geriatr Soc        ISSN: 0002-8614            Impact factor:   5.562


  29 in total

1.  Delirium superimposed on dementia: A quantitative and qualitative evaluation of patient experience.

Authors:  Alessandro Morandi; Elena Lucchi; Renato Turco; Sara Morghen; Fabio Guerini; Rossana Santi; Simona Gentile; David Meagher; Philippe Voyer; Donna Fick; Eva M Schmitt; Sharon K Inouye; Marco Trabucchi; Giuseppe Bellelli
Journal:  J Psychosom Res       Date:  2015-08-08       Impact factor: 3.006

2.  Delirium as a predictor of long-term cognitive impairment in survivors of critical illness.

Authors:  Timothy D Girard; James C Jackson; Pratik P Pandharipande; Brenda T Pun; Jennifer L Thompson; Ayumi K Shintani; Sharon M Gordon; Angelo E Canonico; Robert S Dittus; Gordon R Bernard; E Wesley Ely
Journal:  Crit Care Med       Date:  2010-07       Impact factor: 7.598

3.  Subjective burden of husbands and wives as caregivers: a longitudinal study.

Authors:  S H Zarit; P A Todd; J M Zarit
Journal:  Gerontologist       Date:  1986-06

4.  Clarifying confusion: the confusion assessment method. A new method for detection of delirium.

Authors:  S K Inouye; C H van Dyck; C A Alessi; S Balkin; A P Siegal; R I Horwitz
Journal:  Ann Intern Med       Date:  1990-12-15       Impact factor: 25.391

5.  Existential Absence: The Lived Experience of Family Members During Their Older Loved One's Delirium.

Authors:  Jenny Day; Isabel Higgins
Journal:  Qual Health Res       Date:  2015-01-20

Review 6.  A multinational review of recent trends and reports in dementia caregiver burden.

Authors:  Frank M Torti; Lisa P Gwyther; Shelby D Reed; Joëlle Y Friedman; Kevin A Schulman
Journal:  Alzheimer Dis Assoc Disord       Date:  2004 Apr-Jun       Impact factor: 2.703

7.  Performance of the Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) as a screening test for dementia.

Authors:  A F Jorm; R Scott; J S Cullen; A J MacKinnon
Journal:  Psychol Med       Date:  1991-08       Impact factor: 7.723

Review 8.  Delirium in Older Persons: Advances in Diagnosis and Treatment.

Authors:  Esther S Oh; Tamara G Fong; Tammy T Hshieh; Sharon K Inouye
Journal:  JAMA       Date:  2017-09-26       Impact factor: 56.272

9.  Delirium Burden in Patients and Family Caregivers: Development and Testing of New Instruments.

Authors:  Annie M Racine; Madeline D'Aquila; Eva M Schmitt; Jacqueline Gallagher; Edward R Marcantonio; Richard N Jones; Sharon K Inouye; Dena Schulman-Green
Journal:  Gerontologist       Date:  2019-09-17

10.  Abnormal level of arousal as a predictor of delirium and inattention: an exploratory study.

Authors:  Zoë Tieges; Aisling McGrath; Roanna J Hall; Alasdair M J Maclullich
Journal:  Am J Geriatr Psychiatry       Date:  2013-09-27       Impact factor: 4.105

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  3 in total

1.  Does Alzheimer's Disease and Related Dementias Modify Delirium Severity and Hospital Outcomes?

Authors:  Tammy T Hshieh; Tamara G Fong; Eva M Schmitt; Edward R Marcantonio; Guoquan Xu; Yun R Gou; Thomas G Travison; Eran D Metzger; Richard N Jones; Sharon K Inouye
Journal:  J Am Geriatr Soc       Date:  2020-04-07       Impact factor: 5.562

2.  Stratified delirium risk using prescription medication data in a state-wide cohort.

Authors:  Thomas H McCoy; Victor M Castro; Kamber L Hart; Roy H Perlis
Journal:  Gen Hosp Psychiatry       Date:  2021-05-07       Impact factor: 7.587

3.  A core outcome set for studies evaluating interventions to prevent and/or treat delirium for adults requiring an acute care hospital admission: an international key stakeholder informed consensus study.

Authors:  Louise Rose; Lisa Burry; Meera Agar; Bronagh Blackwood; Noll L Campbell; Mike Clarke; John W Devlin; Jacques Lee; John C Marshall; Dale M Needham; Najma Siddiqi; Valerie Page
Journal:  BMC Med       Date:  2021-06-18       Impact factor: 8.775

  3 in total

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