Literature DB >> 31524328

Models of care for adolescent and young adult cancer programs.

Michael Osborn1,2, Rebecca Johnson3, Kate Thompson4, Antoinette Anazodo5,6,7, Karen Albritton8, Andrea Ferrari9, Daniel Stark10.   

Abstract

This review draws on the experience of adolescent and young adult (AYA) cancer clinicians from Australia, the United States, and the United Kingdom to summarize common aspects of models of care implemented in their countries. The principles underpinning these models include patient- and family-focused care informed by an understanding of normal AYA development, enhancing existing adult or pediatric cancer services to meet the needs of AYA, and promoting collaboration between pediatric and adult oncologists. Common elements of AYA cancer care include establishing an AYA multidisciplinary team that integrates medical and psychosocial care, efforts to centralize complex care, providing access and equity for all AYA, promoting clinical trials, and helping facilitate transition to healthy survivorship. Several organizational approaches are described, noting that local program development depends on resources, infrastructure, and assessment of unmet needs within the region. The development of national networks provides opportunities for shared learning and approaches to evaluation.
© 2019 Wiley Periodicals, Inc.

Entities:  

Keywords:  adolescents and young adults; clinical care; models of care

Year:  2019        PMID: 31524328     DOI: 10.1002/pbc.27991

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN: 1545-5009            Impact factor:   3.167


  15 in total

1.  Quality-of-Life Trajectories in Adolescent and Young Adult versus Older Adult Allogeneic Hematopoietic Cell Transplantation Recipients.

Authors:  Reema R Mathanda; Betty K Hamilton; Lisa Rybicki; Anjali S Advani; Amy Colver; Jane Dabney; Christina Ferraro; Rabi Hanna; Matt Kalaycio; Christine Lawrence; Linda McLellan; Ronald Sobecks; Navneet S Majhail; Seth J Rotz
Journal:  Biol Blood Marrow Transplant       Date:  2020-05-19       Impact factor: 5.742

2.  Next Step for Global Adolescent and Young Adult Oncology: A Core Patient-Centered Outcome Set.

Authors:  Olga Husson; Bryce B Reeve; Anne-Sophie Darlington; Christabel K Cheung; Samantha Sodergren; Winette T A van der Graaf; John M Salsman
Journal:  J Natl Cancer Inst       Date:  2022-04-11       Impact factor: 13.506

3.  Guidance to Support the Implementation of Specialized Adolescent and Young Adult Cancer Care: A Qualitative Analysis of Cancer Programs.

Authors:  Emily Haines; Sarah Asad; Lauren Lux; Hilary Gan; Kara Noskoff; Bindu Kumar; Betty Roggenkamp; John M Salsman; Sarah Birken
Journal:  JCO Oncol Pract       Date:  2022-06-24

4.  Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer.

Authors:  Ursula M Sansom-Daly; Lori Wiener; Anne-Sophie Darlington; Hanneke Poort; Abby R Rosenberg; Meaghann S Weaver; Fiona Schulte; Antoinette Anazodo; Celeste Phillips; Louise Sue; Anthony R Herbert; Jennifer W Mack; Toni Lindsay; Holly Evans; Claire E Wakefield
Journal:  PLoS One       Date:  2022-07-08       Impact factor: 3.752

5.  Online, Group-Based Psychological Support for Adolescent and Young Adult Cancer Survivors: Results from the Recapture Life Randomized Trial.

Authors:  Ursula M Sansom-Daly; Claire E Wakefield; Sarah J Ellis; Brittany C McGill; Mark W Donoghoe; Phyllis Butow; Richard A Bryant; Susan M Sawyer; Pandora Patterson; Antoinette Anazodo; Megan Plaster; Kate Thompson; Lucy Holland; Michael Osborn; Fiona Maguire; Catherine O'Dwyer; Richard De Abreu Lourenco; Richard J Cohn
Journal:  Cancers (Basel)       Date:  2021-05-18       Impact factor: 6.639

6.  The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care.

Authors:  Pandora Patterson; Kimberley R Allison; Helen Bibby; Kate Thompson; Jeremy Lewin; Taia Briggs; Rick Walker; Michael Osborn; Meg Plaster; Allan Hayward; Roslyn Henney; Shannyn George; Dominic Keuskamp; Antoinette Anazodo
Journal:  Cancers (Basel)       Date:  2021-05-28       Impact factor: 6.639

7.  The Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors.

Authors:  Jennifer M Jones; Margaret Fitch; Jared Bongard; Manjula Maganti; Abha Gupta; Norma D'Agostino; Chana Korenblum
Journal:  J Clin Med       Date:  2020-05-13       Impact factor: 4.241

Review 8.  Gynecological cancer among adolescents and young adults (AYA).

Authors:  Silvia Triarico; Michele Antonio Capozza; Stefano Mastrangelo; Giorgio Attinà; Palma Maurizi; Antonio Ruggiero
Journal:  Ann Transl Med       Date:  2020-03

9.  Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study.

Authors:  Rachel M Taylor; Lorna A Fern; Julie Barber; Javier Alvarez-Galvez; Richard Feltbower; Sarah Lea; Ana Martins; Stephen Morris; Louise Hooker; Faith Gibson; Rosalind Raine; Dan P Stark; Jeremy Whelan
Journal:  BMJ Open       Date:  2020-11-26       Impact factor: 2.692

10.  Reporting the whole story: Analysis of the 'out-of-scope' questions from the James Lind Alliance Teenage and Young Adult Cancer Priority Setting Partnership Survey.

Authors:  Faith Gibson; Lorna A Fern; Bob Phillips; Helen Gravestock; Sonia Malik; Amy Callaghan; Karen Dyker; Mike Groszmann; Leila Hamrang; Rachael Hough; Demi McGeachy; Sue Morgan; Sam Smith; Sheela Upadhyaya; Helen Veitch; Max Williamson; Jeremy Whelan; Susie Aldiss
Journal:  Health Expect       Date:  2021-07-10       Impact factor: 3.318

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