Literature DB >> 31357029

Integrated Model for Patient-Centered Advanced Liver Disease Care.

Aanand D Naik1, Jennifer Arney2, Jack A Clark3, Lindsey A Martin4, Anne M Walling5, Autumn Stevenson6, Donna Smith6, Steven M Asch7, Fasiha Kanwal8.   

Abstract

Advanced liver disease (AdvLD) is a high-risk common condition with a progressive, highly morbid, and often fatal course. Despite effective treatments, there are substantial shortfalls in access to and use of evidence-based supportive and palliative care for AdvLD. Although patient-centered, chronic illness models that integrate early supportive and palliative care with curative treatments hold promise, there are several knowledge gaps that hinder development of an integrated model for AdvLD. We review these evidence gaps. We also describe a conceptual framework for a patient-centered approach that explicates key elements needed to improve integrated care. An integrated model of AdvLD would allow clinicians, patients, and caregivers to work collaboratively to identify treatments and other healthcare that best align with patients' priorities.
Copyright © 2020 AGA Institute. Published by Elsevier Inc. All rights reserved.

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Mesh:

Year:  2019        PMID: 31357029      PMCID: PMC9319576          DOI: 10.1016/j.cgh.2019.07.043

Source DB:  PubMed          Journal:  Clin Gastroenterol Hepatol        ISSN: 1542-3565            Impact factor:   13.576


  65 in total

1.  Moving From Disease-Centered to Patient Goals-Directed Care for Patients With Multiple Chronic Conditions: Patient Value-Based Care.

Authors:  Mary E Tinetti; Aanand D Naik; John A Dodson
Journal:  JAMA Cardiol       Date:  2016-04-01       Impact factor: 14.676

2.  Rifaximin treatment in hepatic encephalopathy.

Authors:  Nathan M Bass; Kevin D Mullen; Arun Sanyal; Fred Poordad; Guy Neff; Carroll B Leevy; Samuel Sigal; Muhammad Y Sheikh; Kimberly Beavers; Todd Frederick; Lewis Teperman; Donald Hillebrand; Shirley Huang; Kunal Merchant; Audrey Shaw; Enoch Bortey; William P Forbes
Journal:  N Engl J Med       Date:  2010-03-25       Impact factor: 91.245

Review 3.  Natural history and prognostic indicators of survival in cirrhosis: a systematic review of 118 studies.

Authors:  Gennaro D'Amico; Guadalupe Garcia-Tsao; Luigi Pagliaro
Journal:  J Hepatol       Date:  2005-11-09       Impact factor: 25.083

4.  Predicting risk of hospitalization or death among patients receiving primary care in the Veterans Health Administration.

Authors:  Li Wang; Brian Porter; Charles Maynard; Ginger Evans; Christopher Bryson; Haili Sun; Indra Gupta; Elliott Lowy; Mary McDonell; Kathleen Frisbee; Christopher Nielson; Fred Kirkland; Stephan D Fihn
Journal:  Med Care       Date:  2013-04       Impact factor: 2.983

5.  Discussing life expectancy with terminally ill cancer patients and their carers: a qualitative study.

Authors:  Josephine M Clayton; Phyllis N Butow; Robert M Arnold; Martin H N Tattersall
Journal:  Support Care Cancer       Date:  2005-03-11       Impact factor: 3.603

Review 6.  Personalised care planning for adults with chronic or long-term health conditions.

Authors:  Angela Coulter; Vikki A Entwistle; Abi Eccles; Sara Ryan; Sasha Shepperd; Rafael Perera
Journal:  Cochrane Database Syst Rev       Date:  2015-03-03

7.  Prospective validation of the short form liver disease quality of life instrument.

Authors:  F Kanwal; B M R Spiegel; R D Hays; F Durazo; S B Han; S Saab; R Bolus; S J Kim; I M Gralnek
Journal:  Aliment Pharmacol Ther       Date:  2008-07-30       Impact factor: 8.171

8.  Trends in burden of cirrhosis and hepatocellular carcinoma by underlying liver disease in US veterans, 2001-2013.

Authors:  Lauren A Beste; Steven L Leipertz; Pamela K Green; Jason A Dominitz; David Ross; George N Ioannou
Journal:  Gastroenterology       Date:  2015-08-05       Impact factor: 22.682

9.  Palliative Care and Health Care Utilization for Patients With End-Stage Liver Disease at the End of Life.

Authors:  Arpan A Patel; Anne M Walling; Joni Ricks-Oddie; Folasade P May; Sammy Saab; Neil Wenger
Journal:  Clin Gastroenterol Hepatol       Date:  2017-02-04       Impact factor: 13.576

10.  Valued life abilities among veteran cancer survivors.

Authors:  Michele J Karel; Elizabeth A Mulligan; Annette Walder; Lindsey A Martin; Jennifer Moye; Aanand D Naik
Journal:  Health Expect       Date:  2015-01-29       Impact factor: 3.377

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  3 in total

1.  Prognosis conversations in advanced liver disease: A qualitative interview study with health professionals and patients.

Authors:  Jennifer Arney; Caroline Gray; Jack A Clark; Donna Smith; Annie Swank; Daniel D Matlock; Jennifer Melcher; Fasiha Kanwal; Aanand D Naik
Journal:  PLoS One       Date:  2022-02-18       Impact factor: 3.752

2.  Eliciting and Understanding Primary Care and Specialist Mental Models of Cirrhosis Care: A Cognitive Task Analysis Study.

Authors:  Tanya Barber; Lynn Toon; Puneeta Tandon; Lee A Green
Journal:  Can J Gastroenterol Hepatol       Date:  2021-06-15

3.  Development, Validation, and Evaluation of a Simple Machine Learning Model to Predict Cirrhosis Mortality.

Authors:  Fasiha Kanwal; Thomas J Taylor; Jennifer R Kramer; Yumei Cao; Donna Smith; Allen L Gifford; Hashem B El-Serag; Aanand D Naik; Steven M Asch
Journal:  JAMA Netw Open       Date:  2020-11-02
  3 in total

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