Literature DB >> 31355653

Eliciting recovery narratives in global mental health: Benefits and potential harms in service user participation.

Bonnie N Kaiser1, Saiba Varma1, Elizabeth Carpenter-Song2, Rebecca Sareff3, Sauharda Rai4, Brandon A Kohrt5.   

Abstract

OBJECTIVE: The engagement of peers and service users is increasingly emphasized in mental health clinical, educational, and research activities. A core means of engagement is via the sharing of recovery narratives, through which service users present their personal history of moving from psychiatric disability to recovery. We critically examine the range of contexts and purposes for which recovery narratives are elicited in global mental health.
METHOD: We present 4 case studies that represent the variability in recovery narrative elicitation, purpose, and geography: a mental health Gap Action Programme clinician training program in Nepal, an inpatient clinical service in Indian-controlled Kashmir, a recovery-oriented care program in urban Australia, and an undergraduate education program in the rural United States. In each case study, we explore the context, purpose, process of elicitation, content, and implications of incorporating recovery narratives.
RESULTS: Within each context, organizations engaging service users had a specific intention of what "recovery" should constitute. This was influenced by the anticipated audience for the recovery stories. These expectations influenced the types of service users included, narrative content, and training provided for service users to prepare and share narratives. Our cases illustrate the benefit of these coconstructed narratives and potential negative impacts on service users in some contexts, especially when used as a prerequisite for accessing or being discharged from clinical care. CONCLUSIONS AND IMPLICATIONS FOR PRACTICE: Recovery narratives have the potential to be used productively across purposes and contexts when there is adequate identification of and responses to potential risks and challenges. (PsycInfo Database Record (c) 2020 APA, all rights reserved).

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Year:  2019        PMID: 31355653      PMCID: PMC6986986          DOI: 10.1037/prj0000384

Source DB:  PubMed          Journal:  Psychiatr Rehabil J        ISSN: 1095-158X


  19 in total

1.  Experiencing recovery: a dimensional analysis of recovery narratives.

Authors:  N Jacobson
Journal:  Psychiatr Rehabil J       Date:  2001

2.  Peer support/peer provided services underlying processes, benefits, and critical ingredients.

Authors:  Phyllis Solomon
Journal:  Psychiatr Rehabil J       Date:  2004

Review 3.  A review of the literature on peer support in mental health services.

Authors:  Julie Repper; Tim Carter
Journal:  J Ment Health       Date:  2011-08

4.  Photovoice: concept, methodology, and use for participatory needs assessment.

Authors:  C Wang; M A Burris
Journal:  Health Educ Behav       Date:  1997-06

Review 5.  Interventions targeting mental health self-stigma: A review and comparison.

Authors:  Philip T Yanos; Alicia Lucksted; Amy L Drapalski; David Roe; Paul Lysaker
Journal:  Psychiatr Rehabil J       Date:  2014-10-13

6.  The new paradigm of recovery from schizophrenia: cultural conundrums of improvement without cure.

Authors:  Janis H Jenkins; Elizabeth Carpenter-Song
Journal:  Cult Med Psychiatry       Date:  2005-12

7.  "A disease like any other"? A decade of change in public reactions to schizophrenia, depression, and alcohol dependence.

Authors:  Bernice A Pescosolido; Jack K Martin; J Scott Long; Tait R Medina; Jo C Phelan; Bruce G Link
Journal:  Am J Psychiatry       Date:  2010-09-15       Impact factor: 18.112

8.  A service user co-facilitated intervention to reduce mental illness stigma among primary healthcare workers: Utilizing perspectives of family members and caregivers.

Authors:  Sauharda Rai; Dristy Gurung; Bonnie N Kaiser; Kathleen J Sikkema; Manoj Dhakal; Anvita Bhardwaj; Cori Tergesen; Brandon A Kohrt
Journal:  Fam Syst Health       Date:  2018-06       Impact factor: 1.950

9.  PRIME: a programme to reduce the treatment gap for mental disorders in five low- and middle-income countries.

Authors:  Crick Lund; Mark Tomlinson; Mary De Silva; Abebaw Fekadu; Rahul Shidhaye; Mark Jordans; Inge Petersen; Arvin Bhana; Fred Kigozi; Martin Prince; Graham Thornicroft; Charlotte Hanlon; Ritsuko Kakuma; David McDaid; Shekhar Saxena; Dan Chisholm; Shoba Raja; Sarah Kippen-Wood; Simone Honikman; Lara Fairall; Vikram Patel
Journal:  PLoS Med       Date:  2012-12-27       Impact factor: 11.069

10.  Development and pilot testing of a mental healthcare plan in Nepal.

Authors:  M J D Jordans; N P Luitel; P Pokhrel; V Patel
Journal:  Br J Psychiatry       Date:  2015-10-07       Impact factor: 9.319

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  12 in total

1.  Reducing mental illness stigma in healthcare settings: Proof of concept for a social contact intervention to address what matters most for primary care providers.

Authors:  Brandon A Kohrt; Elizabeth L Turner; Sauharda Rai; Anvita Bhardwaj; Kathleen J Sikkema; Adesewa Adelekun; Manoj Dhakal; Nagendra P Luitel; Crick Lund; Vikram Patel; Mark J D Jordans
Journal:  Soc Sci Med       Date:  2020-02-15       Impact factor: 4.634

2.  Why Psychiatry Needs the Anthropologist: A Reflection on 80 Years of Culture in Mental Health.

Authors:  Bonnie N Kaiser; Brandon A Kohrt
Journal:  Psychiatry       Date:  2019       Impact factor: 2.458

3.  'It was the deepest level of companionship': peer-to-peer experience of supporting community-dwelling older people with depression - a qualitative study.

Authors:  Jessica P S Tang; Tianyin Liu; Shiyu Lu; C Y Sing; Lesley C Y Sze; Terry Y S Lum; Samson Tse
Journal:  BMC Geriatr       Date:  2022-05-19       Impact factor: 4.070

4.  Impact of Service User Video Presentations on Explicit and Implicit Stigma toward Mental Illness among Medical Students in Nepal: A Randomized Controlled Trial.

Authors:  Cori L Tergesen; Dristy Gurung; Saraswati Dhungana; Ajay Risal; Prem Basel; Dipesh Tamrakar; Archana Amatya; Lawrence P Park; Brandon A Kohrt
Journal:  Int J Environ Res Public Health       Date:  2021-02-22       Impact factor: 3.390

5.  Collaboration With People With Lived Experience of Mental Illness to Reduce Stigma and Improve Primary Care Services: A Pilot Cluster Randomized Clinical Trial.

Authors:  Brandon A Kohrt; Mark J D Jordans; Elizabeth L Turner; Sauharda Rai; Dristy Gurung; Manoj Dhakal; Anvita Bhardwaj; Jagannath Lamichhane; Daisy R Singla; Crick Lund; Vikram Patel; Nagendra P Luitel; Kathleen J Sikkema
Journal:  JAMA Netw Open       Date:  2021-11-01

6.  Treatment Preferences for Pharmacological versus Psychological Interventions among Primary Care Providers in Nepal: Mixed Methods Analysis of a Pilot Cluster Randomized Controlled Trial.

Authors:  Anvita Bhardwaj; Dristy Gurung; Sauharda Rai; Bonnie N Kaiser; Cori L Cafaro; Kathleen J Sikkema; Crick Lund; Nagendra P Luitel; Brandon A Kohrt
Journal:  Int J Environ Res Public Health       Date:  2022-02-14       Impact factor: 3.390

Review 7.  Stigma against mental health disorders in Nepal conceptualised with a 'what matters most' framework: a scoping review.

Authors:  Dristy Gurung; Anubhuti Poudyal; Yixue Lily Wang; Mani Neupane; Kalpana Bhattarai; Syed Shabab Wahid; Susmeera Aryal; Eva Heim; Petra Gronholm; Graham Thornicroft; Brandon Kohrt
Journal:  Epidemiol Psychiatr Sci       Date:  2022-01-28       Impact factor: 6.892

8.  Implementation strategy in collaboration with people with lived experience of mental illness to reduce stigma among primary care providers in Nepal (RESHAPE): protocol for a type 3 hybrid implementation effectiveness cluster randomized controlled trial.

Authors:  Kamal Gautam; Mark J D Jordans; Brandon A Kohrt; Elizabeth L Turner; Dristy Gurung; Xueqi Wang; Mani Neupane; Nagendra P Luitel; Muralikrishnan R Kartha; Anubhuti Poudyal; Ritika Singh; Sauharda Rai; Phanindra Prasad Baral; Sabrina McCutchan; Petra C Gronholm; Charlotte Hanlon; Heidi Lempp; Crick Lund; Graham Thornicroft
Journal:  Implement Sci       Date:  2022-06-16       Impact factor: 7.960

9.  Empowerment training to support service user involvement in mental health system strengthening in rural Ethiopia: a mixed-methods pilot study.

Authors:  Brandon A Kohrt; Charlotte Hanlon; Sisay Abayneh; Heidi Lempp; Sauharda Rai; Eshetu Girma; Medhanit Getachew; Atalay Alem
Journal:  BMC Health Serv Res       Date:  2022-07-08       Impact factor: 2.908

10.  Uses and Misuses of Recorded Mental Health Lived Experience Narratives in Healthcare and Community Settings: Systematic Review.

Authors:  Caroline Yeo; Stefan Rennick-Egglestone; Victoria Armstrong; Marit Borg; Donna Franklin; Trude Klevan; Joy Llewellyn-Beardsley; Christopher Newby; Fiona Ng; Naomi Thorpe; Jijian Voronka; Mike Slade
Journal:  Schizophr Bull       Date:  2022-01-21       Impact factor: 9.306

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