Literature DB >> 31339831

The Rise of Citizen Science in Health and Biomedical Research.

Andrea Wiggins1, John Wilbanks2.   

Abstract

Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for citizen science in health and biomedical research.

Entities:  

Keywords:  citizen science; confidentiality and privacy; participatory research; professional–patient relationship; research ethics; social science research

Mesh:

Year:  2019        PMID: 31339831     DOI: 10.1080/15265161.2019.1619859

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  27 in total

1.  Citizen Science Models in Health Research: an Australian Commentary.

Authors:  Ann Borda; Kathleen Gray; Laura Downie
Journal:  Online J Public Health Inform       Date:  2019-12-31

2.  The Limitations of User-and Human-Centered Design in an eHealth Context and How to Move Beyond Them.

Authors:  Lex van Velsen; Geke Ludden; Christiane Grünloh
Journal:  J Med Internet Res       Date:  2022-10-05       Impact factor: 7.076

3.  Core values of genomic citizen science: results from a qualitative interview study.

Authors:  Christi J Guerrini; Meredith Trejo; Isabel Canfield; Amy L McGuire
Journal:  Biosocieties       Date:  2020-09-28

4.  "A cohort of pirate ships": biomedical citizen scientists' attitudes toward ethical oversight.

Authors:  Meredith Trejo; Isabel Canfield; Whitney Bash Brooks; Alex Pearlman; Christi J Guerrini
Journal:  Citiz Sci       Date:  2021-05-20

5.  Biomedical Citizen Science or Something Else? Reflections on Terms and Definitions.

Authors:  Christi J Guerrini; Anna Wexler; Patricia J Zettler; Amy L McGuire
Journal:  Am J Bioeth       Date:  2019-08       Impact factor: 11.229

6.  How Biomedical Citizen Scientists Define What They Do: It's All in the Name.

Authors:  Meredith Trejo; Isabel Canfield; Jill O Robinson; Christi J Guerrini
Journal:  AJOB Empir Bioeth       Date:  2020-09-29

7.  Development of a Mobile App for Clinical Research: Challenges and Implications for Investigators.

Authors:  Shibani Chettri; Vivian Wang; Eli Asher Balkin; Michael F Rayo; Clara N Lee
Journal:  JMIR Mhealth Uhealth       Date:  2022-04-01       Impact factor: 4.947

8.  A Citizen Science Approach to Determine Physical Activity Patterns and Demographics of Greenway Users in Winston-Salem, North Carolina.

Authors:  Joshua R Dilley; Justin B Moore; Phillip Summers; Amanda A Price; Matthew Burczyk; Lynn Byrd; Patricia J Sisson; Alain G Bertoni
Journal:  Int J Environ Res Public Health       Date:  2019-08-29       Impact factor: 3.390

9.  The Science of the Future: Establishing a Citizen-Scientist Collaborative Agenda After Covid-19.

Authors:  Livio Provenzi; Serena Barello
Journal:  Front Public Health       Date:  2020-06-05

10.  Communication and Community Involvement to Support Risk Governance.

Authors:  Liliana Cori; Fabrizio Bianchi; Mario Sprovieri; Angela Cuttitta; Silvia Ruggieri; Anna Lisa Alessi; Girolama Biondo; Francesca Gorini
Journal:  Int J Environ Res Public Health       Date:  2019-11-08       Impact factor: 3.390

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