Alina Lúcia Oliveira Barros1, Gabriela Mancia de Gutierrez2, Amanda Oliveira Barros3, Maria Teresa Botti Rodrigues Santos4. 1. Dentistry Unit for Special Needs Patients (UDOPE), Federal University of Sergipe (UFS) Aracaju, Brazil. 2. Department of Dentistry, Unicsul, São Paulo, Brazil. 3. Department of Medicine, University Tiradentes (UNIT), Aracaju, Brazil. 4. Department of Dentistry, Persons with Disabilities Division, Unicsul, São Paulo, Brazil.
Abstract
AIMS: To evaluate the quality of life (QoL) and burden of primary caregivers of children and young adults (PCCYAs) with and without disabilities. METHODS: A cross-sectional study was carried out with sample composed of 336 PCCYAs with cerebral palsy (CP; n = 84), Down syndrome (DS; n = 84), autism spectrum disorder (ASD; n = 84), and without disabilities (control group: CG n = 84), matched by gender and age. The burden of caregivers was assessed with the Zarit Burden Interview (ZBI), whereas QoL was assessed using the WHOQOL-BREF instrument. RESULTS: QoL and burden of CG presented better results compared to groups with disabilities, with the lowest environmental domain of all study groups (P <.001). The prevalence of burden was moderate for PCCAs of groups with disabilities. There was association between all WHOQOL-BREF and ZBI domains and variables age, schooling, occupation and per capita income (Spearman's correlation coefficient, P <.05). There is a negative impact on WHOQOL-BREF, with an increase in the level of burden of PCCAs with disabilities. CONCLUSION: The majority of PCCYAs were unemployed married mothers, with low schooling and health problems. Older caregivers experience even higher burden and greater impact on QoL.
AIMS: To evaluate the quality of life (QoL) and burden of primary caregivers of children and young adults (PCCYAs) with and without disabilities. METHODS: A cross-sectional study was carried out with sample composed of 336 PCCYAs with cerebral palsy (CP; n = 84), Down syndrome (DS; n = 84), autism spectrum disorder (ASD; n = 84), and without disabilities (control group: CG n = 84), matched by gender and age. The burden of caregivers was assessed with the Zarit Burden Interview (ZBI), whereas QoL was assessed using the WHOQOL-BREF instrument. RESULTS: QoL and burden of CG presented better results compared to groups with disabilities, with the lowest environmental domain of all study groups (P <.001). The prevalence of burden was moderate for PCCAs of groups with disabilities. There was association between all WHOQOL-BREF and ZBI domains and variables age, schooling, occupation and per capita income (Spearman's correlation coefficient, P <.05). There is a negative impact on WHOQOL-BREF, with an increase in the level of burden of PCCAs with disabilities. CONCLUSION: The majority of PCCYAs were unemployed married mothers, with low schooling and health problems. Older caregivers experience even higher burden and greater impact on QoL.
Authors: Eman Ramadan Ghazawy; Eman Sameh Mohammed; Eman Mohamed Mahfouz; Marwa Gamal Abdelrehim Journal: BMC Public Health Date: 2020-07-23 Impact factor: 3.295
Authors: Saad Khoshhal; Khaled Al-Harbi; Ibrahim Al-Mozainy; Saeed Al-Ghamdi; Adnan Aselan; Mohammad Allugmani; Sherif Salem; Dina El-Agamy; Hany Abo-Haded Journal: Health Qual Life Outcomes Date: 2019-12-16 Impact factor: 3.186
Authors: Ana Cristina Fernandes Maria Ferreira; Ryan J Eveloff; Marcelo Freire; Maria Teresa Botti Rodrigues Santos Journal: Front Immunol Date: 2021-02-25 Impact factor: 7.561